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Hi Elizabeth,
I have been struggling with this for over ten years. I have found there is not much written about. All I have come up with is that it is incurable, Some are in pain 24/7, and the amount of the pain is usually different from person to person. I have constant pain in my neck, but I have learned to deal with it. I know my boundaries to keep it from going so much pain that I can't move. I have to type while watching where I type because the nerve damage is so bad in my arms hands and fingers that I don't know what key I am at except by looking. I also can't tell you how many time I have burnt myself cooking. I just don't feel the heat of the pan until I see my fingers with blisters. Walking is no fun either. I live in senior housing and when I walk down the halls I usually bounce from one wall to the other. I know my cane would help, but I hate using it.I wish there were a place for us like the heart association,or the lung association for people for our
disease. Maybe that would give us answers. Although I was told from the beginning that things would only get worst with time or stay the same. With me as each year passes everything gets worst. I went to the doctor this morning, and he would like me to use a walker. As far as I am concerned.Using a cane leads to a walker. A walker leads to a wheel chair. I plan on fighting this awful thing as long as I possibly can. I'm sorry I don't have encouraging words for you. At least we all have each other where we all too well understand how hard this is. Prayer is good too. Gloria
Elizabeth Long <superelizzzabeth@...> wrote:
Elizabeth Long <superelizzzabeth@...> wrote:
Hi Gwynne,I am also new to this condition, I was diagnosed with MS on October 31, 2005, and then with Cevical Spondylosis Myelopathy on February 27th, 2006. My neurologist didn't go over any of the facts with me. I'm very lost. I do know that no one in my family ever had it and, I never had any trauma to my back that would've caused it, and there doesn't have to be trauma for it to start. I've been trying to do research on it but am coming up dry everytime. No one seems to be very helpful.I'm only 21 years old, I've had the symptoms for several years. I'm getting to the point where I'm going to start demanding answers tests and whatever it takes to figure things out, I suggest you do the same, because after all we are the doctor's customers, and they are supposed to give us what we pay for ... help.I was actually on Depro-Provera for a couple of years in my teens, let me know if you find anything out involving that.
Hopefully you can get some answers from some of the people in the group. I just joined so I haven't started asking questions yet.Good Luck,-e
geelayne <ERVettek2000@...> wrote:I am new to this condition and don't really know what to make of all of
this yet. I am only 29 and they tell me I have spondylosis and cerical
DJD with oseophyte complex from C4-C7 already. I've been in around the
clock pain since Feb. when a minor injury turned into a bigger one and
then this was diagnosed last week. What I'm wondering is at what point
does the "acute" pain stop? No amount of PT, massage, yoga,
chiropractic adjustments seems to help this. I'm just on constant pain
meds, Ansaid, and muscle relaxers.
I have been an ER/Critical care Veterinary Nurse for the last 10 years,
my job and CPR on a large dog is actually what started all this
nonsense,I'm also wondering if I should start accepting that I may
never be allowed to do that kind of work again? No one is even telling
me when I can expect the pain to calm down. Should I go for a surgical
consult about this now (haven't felt three of my fingers in 8 weeks!)
It's so hard to find other people with this condition, much less those
near my age, that I'd just like to get an idea of what I can expect
with this.
Also, by the way, no member of my family has or has ever had
spondylosis of any kind. There is a very high suspicion that I have it
because of 7 years on Depo-Provera injections that I was told were
safe. I'm seeing my MD to request a bone density scan tomorrow and
already have already consulted an attorney about this being related to
the drug. Any info you guys can give me will be a great help.
Thanks to all
-Gwynne
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