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Hi Jean
Sorry to hear of your difficulty especially at such an early age. It is such a lot of loss. I am 54 and was dx in 1988 with 1B upgraded to to 2B or 3A after lymphangiogram. At that time many years ago they did not know as much about cervical cancer and my treatment was very massive doses of external radation plus 2 sessions of internal radation with cessium.They were not too optomistic about my long term prognosis but here I am 18 years later Granted I have damage from the radiation but I still have a good quality of life.
It is so much to deal with and my heart goes out to you. A great shock especially at 28--the issue of not being able to bear children--sometimes alteration to your sexuality and sometimes sexual function. It can get all wrapped up there and seem totally overwhelming. And there's the deep fear that maybe I may die sooner than I though--concsious or not. It used to get me at 3am.
I am not sure what I can say to you to be of help. First of all remember to breathe--take deep breathes--remember to relax the body deeply--a tense body does not allow the immunne system to function as well. I remember after treatment there was a time of clarity when I knew what I wanted in my life and what I didn't. I made a lot of changes and found ways to bring joy into my life everyday. I do believe this gives your body the message to live and thrive. They know so much more about psychoneuroimmunotherapy now. Allow your self to experience yoiur feelings --of loss,sadness, anger--but at the same time finding ways to bring joy into your life. I saw a therapist who helped me a great deal. I also went to a number of credited alternative practicioners and did many many different treatments. I also learned a lot of things which I could do to help myself and still practice---looked at nutrion and exercise,meditation, imagery and others. There is a lot out there and each person has to find what is right for them.
If you want to contact me off group with more specific questions or comments you are welcome.to do so.
Take care of You!
with love--BA
----- Original Message -----From: labgirl2076Sent: Monday, May 09, 2005 11:14 PMSubject: [Cervical-Cancer] New to this community!Hello everyone!
I was diagnosed with squamous cell cervical cancer stage 1B on July 1,
2004...immediately following the purchase of my first home. It was
one of the worst days of my life. I'm 28 and single with no children.
I was scheduled for a radical hysterectomy but when a positive lymph
node was found, my uterus and cervix were left in place to protect my
bladder and bowel during the internal radiation I was to have.
Subsequently, I was bumped up to stage 3B. I then had external
radiation and chemotherapy (Cisplatin) and 2 rounds of internal
radiation.
I'm now on hormone replacement as my doctor removed my ovaries because
ovarian cancer runs in my family. So I'm infertile.
I'm here because I'm struggling with almost everything in my life. I
really, really want to find someone like me who understands. I am
having a hard time finding support groups in RL.
Any one out there?
Thanks.
Jenn S., 28
Cortland NY
Squamous cell cervical cancer 1B 07/01/04
BSO & lymphadenectomy, upgraded to 3B, 08/02/04
25 external rads
5 Cisplatin
2 internal rads (tandem & ovid insertion a.k.a brachytherapy)
Dancing with NED
Nerve damage due to Cisplatin
Upcoming: 2nd post-treatment Pap - May 17, 2005
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