Does anyone have any advice on how to keep the pharmacy from switching meds? I take Oxcarbazepine, which is "generic" for Trileptal. I've been using it for...
Tom, Oh my gosh, this is NOT bs!!! I totally hear you regarding generic vs. name brand Trileptal. My soon to be 15 year old son has taken Trileptal for years...
We too have had that happen wth my daughters prescriptions. I hve heard a lot lately about generic versus name brand. It seems name brand is the way to go if...
Hi Katheryn, Yes, I do love seizure tracker! A 7 day veeg? Wow, I didn't even know they had those. Chelsi had a 24 hour one, and like your daughter, she's...
Sue, That sounds like my daughter, she never has one while hooked up and then about a week later she does. She was diagnosed almost 5 years ago with complex...
We are back home, with nothing to report. As is the usual she didn't have a seizure while we were there, after no meds and sleep deprivation for four nights....
Hi Kathy, That is so disappointing! We've had several changes since I last posted. Chelsi's Dr. at Swedish sort of ran our of tricks in his bag and was only...
Hi, Sue. I'm very interested in the results of these test too. I've never had a seizure show on an EEG & have wondered if there is a greater explanation. ...
I'll know more on 9/1 when Chelsi has her follow up, but YES, she lit up like a Christmas Tree and had 2 grand mals the first night we were there. They got...
Alot has happened since my last post about my daughter's EEG stay in July. She had a seizure the end of september and then just had another one last tuesday....
My Dearest Katheryn, My son is not a candidate for brain surgery BUT Dr. Ojemann is the greatest. He has replaced my son's VNS 2 times now and is wonderful. If...
Hello Katheryn, Thanks so much for getting us up to date. Brain surgery is terrifying...but just focus on the expected outcome...NO MORE SEIZURES!! If you're...
Dear Katheryn, Oh, does my heart goes out to... My son, who is now 6, had a left frontal lobectomy last year by Dr. Ojemann. For us there was really no other...
I just wanted to thank all of you for the words of encouragement. To know that some of you have had first hand experience with Dr Ojemann is helpful too....
I have been dealing with seizures for 7-8 years ever since my father passed away, I have been put on many different medications...one after another, I'm...
Hey there, I was wondering how old you are? What the docs have told you? My son is 11 years old and we are going thru lots of tests for epilepsy surgery. The...
I'm 34 years old, my father passed away 7 years ago and even though I have tried to grief I just don't seem to be able to accept the fact that he is gone and I...
Hi Happymeri, I am 39 years old and my dad (papa) passed away 5 years ago in March and I still miss miss dearly and feel the same emotions you are. He had...
Thanks for the advise.. I take depression medication but at times I'm not sure how much it really helps since..just when I think I'm feeling better I have a...
I see a lot of information of succesfull surgeries but I have really been thinking about having surgery since I continue to have seizures even after taking...
There are plenty of people that can provide you with their experience before and after having surgery. May I share your email address with others who can...
has anyone had any sucess with IUD-mirena(releases hormones) to help with seizure control. I take a handfull of seizures medication but continue to have...
not sure if I should be upset or happy, but my employer put me on medical leave to be evaluated to make sure It's safe for me to do my job. I work at a doctors...
Hi everybody: I'm new to the group here. I'm 33 yo, live in Seattle, and have juvenile myoclonic epilepsy and am wanting to have a child (starting probably...
Both doctors are highly respected in the community. I have know several women in your situation that have seen both doctors and have been pleased with the...
