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Cent_Wa_Epilepsy_Support · Central Washington Epilepsy Support
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Messages 814 - 843 of 881   Oldest  |  < Older  |  Newer >  |  Newest
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814
Hi, My 5 year old son just started having seizures 2 weeks ago. He has several a day and has been to the hospital 4 times this week. He is on meds but they...
Kelly
kellybpdx
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Jun 8, 2009
2:33 am
815
Hello, First of all WELCOME Kelly! :) This is the nicest group you hope to never have to meet. lol I think I pretty much speak for everyone on here when I say...
caregiverjenna
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Jun 8, 2009
2:41 pm
816
Hi Everybody, My son was diagnosed with Myoclonic seazure desorder almost 4 months ago, he's been on Keppra and Topomax..right now he is on Depakote, nothing...
minelamujdza
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Jun 9, 2009
3:07 pm
817
HI: My daughter was diagnosed with a seizure disorder at 4 1/2 months old. She's been on all of those meds, with no success. I'm not telling you this to...
savedbygrace77777
savedbygrace...
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Jun 9, 2009
6:40 pm
818
Welcome to this group! I hope you get the answers to your questions. How old is your son? You mentioned that he was diagnosed 4 mos. ago. Is this is first...
paula@...
thalmannmom
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Jun 9, 2009
7:04 pm
819
My son turned 3 in March this year, he doesn't have any side efects on Depakote what so ever, in fact as soon as he started taking depakote by itselfe about a...
minelamujdza
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Jun 9, 2009
7:54 pm
820
Oh, he's a little guy!!! I just love that age group! Age three is such a time of wonder and discovery, I'm glad that his current meds don't sedate him like the...
paula@...
thalmannmom
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Jun 9, 2009
8:10 pm
821
I talk to a lot of peope about seazures and I can't help but wonder.. Is there anybody that was seazure free for 2 or more years and is taken off of the...
minelamujdza
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Jun 10, 2009
6:20 pm
822
Yes, I've heard of lots of cases where people are able to get off of the seizure meds after a couple of years being seizure free.  Don't loose hope. ...
Diana Trahan
savedbygrace...
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Jun 10, 2009
6:41 pm
823
Hope is an important part of this, isn't it? In our case, so far, we've not experienced success off of medications. Our 13 year old son was completely weaned...
paula@...
thalmannmom
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Jun 10, 2009
8:12 pm
824
Oh, one more thing I forgot to mention. When we first weaned him completely off the meds, he was okay for something like 2 months and then they came back with...
paula@...
thalmannmom
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Jun 10, 2009
8:17 pm
825
i was seizer free for eight years  i was even able to get my licences  but i am currenttly back on my med and have been seziure free for 8 months  so it...
barbie kaneaster
bkk1073
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Jun 10, 2009
11:36 pm
826
... Thank you all!!!:))...
minelamujdza
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Jun 11, 2009
3:59 am
827
... Hi, and welcome. My son has Generalized Myoclonic seazures and he was first put on Keppra. We had the same problems on it as you do, so we put him on...
minelamujdza
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Jun 11, 2009
8:40 pm
828
Our son will be 14 in July. He has done wonderfully on Keppra. He has been seizure free for 9 months. When the Doctor upped his dosage from 1500 mg. to 2000...
becca541smith@...
maid2bear
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Jun 13, 2009
4:47 am
829
Before I forget, here's an address those on the list from the Pac NW (Washington/Oregon/Idaho) might be interested in:...
Mari S
wabookworm
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Jun 14, 2009
4:31 am
830
Mari, A loud assent to everything you wrote! Lars has seen Dr. Holmes since 2002. His seizures have been *very* difficult to treat and finally after several ...
Sherry
sherdh
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Jun 14, 2009
3:55 pm
831
I live in Portland and am new to this group. My 5 year old son just started having seizures 3 weeks ago. He is now on 3 meds and still having seizures plus...
Kelly
kellybpdx
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Jun 15, 2009
4:59 am
832
Kelly -  who is your neurologist? It sounds very much like your kid is on too many or the wrong meds. My son had HORRIBLE behavioral side-effects from...
lisa kline
lisakline11
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Jun 15, 2009
5:09 am
833
Hi Kelly, I'm so glad you posted. My 13 year old son was 6 when he started taking anti-seizure meds, and I remember all the unanswered questions and ...
paula@...
thalmannmom
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Jun 15, 2009
5:45 am
834
Personally, I think if the side effects of a medication are causing that much problem and the seizures aren't in any better control, it's time to try something...
Sherry
sherdh
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Jun 15, 2009
3:15 pm
835
Hi, my husband is 42 and has recently been diagnosed, 3 months ago. We went to the doctor with what was then a seizure a year. I wasn't even willing to call...
tinecnn
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Jun 19, 2009
11:23 pm
836
I had my 6 month visit with Dr. Sloop on Friday, and I get to reduce down to Trileptal ONCE a day. That's down from 6 Keppra/day (3/3) and 6 Trileptal/day...
wabookworm
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Jun 22, 2009
6:05 am
837
That is great news! Good luck with your reduction schedule; take it slow so your body can adjust gradually! Best wishes and I look forward to your post a year...
paula@...
thalmannmom
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Jun 22, 2009
4:43 pm
838
That is AWESOME news!! Here's to many more seizure-free days! Thanks, Sue ... From: wabookworm<mailto:wabookworm@...> To:...
SUE OWNBY
sue_ownby
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Jun 23, 2009
12:08 am
839
... That is GREAT news!!! News like that make my day, then I know that one day my son will be seazure free...ohh I dream about that day, it has been hard 4...
minelamujdza
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Jun 23, 2009
1:33 am
840
Does anybody have a toddler with myoclonic seazures that has controlled seazures with medications and what are the medicatios he/she is taking? I know that...
minelamujdza
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Jun 23, 2009
3:53 am
841
... complex partial seizures. He is 9. It seems to me that his seizures are increasing and getting stronger and longer now that he is on meds. Of course I...
marciadetert
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Jun 28, 2009
12:49 am
842
I would like to share my Nanny that is a full time caregiver for my ten year old with Epilepsy. He goes to school but missed 40+ days and we never know if he...
marciadetert
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Jun 28, 2009
12:58 am
843
Hi, We had the same problem with Keppra. My son has Myoclonic seazures and first meds they pot him on was Keppra, he got worse, like you said his seazures...
minelamujdza
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Jun 28, 2009
3:59 pm
Messages 814 - 843 of 881   Oldest  |  < Older  |  Newer >  |  Newest
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