Hi, My 5 year old son just started having seizures 2 weeks ago. He has several a day and has been to the hospital 4 times this week. He is on meds but they...
Hello, First of all WELCOME Kelly! :) This is the nicest group you hope to never have to meet. lol I think I pretty much speak for everyone on here when I say...
Hi Everybody, My son was diagnosed with Myoclonic seazure desorder almost 4 months ago, he's been on Keppra and Topomax..right now he is on Depakote, nothing...
HI: My daughter was diagnosed with a seizure disorder at 4 1/2 months old. She's been on all of those meds, with no success. I'm not telling you this to...
Welcome to this group! I hope you get the answers to your questions. How old is your son? You mentioned that he was diagnosed 4 mos. ago. Is this is first...
My son turned 3 in March this year, he doesn't have any side efects on Depakote what so ever, in fact as soon as he started taking depakote by itselfe about a...
Oh, he's a little guy!!! I just love that age group! Age three is such a time of wonder and discovery, I'm glad that his current meds don't sedate him like the...
I talk to a lot of peope about seazures and I can't help but wonder.. Is there anybody that was seazure free for 2 or more years and is taken off of the...
Yes, I've heard of lots of cases where people are able to get off of the seizure meds after a couple of years being seizure free. Don't loose hope. ...
Hope is an important part of this, isn't it? In our case, so far, we've not experienced success off of medications. Our 13 year old son was completely weaned...
Oh, one more thing I forgot to mention. When we first weaned him completely off the meds, he was okay for something like 2 months and then they came back with...
i was seizer free for eight years i was even able to get my licences but i am currenttly back on my med and have been seziure free for 8 months so it...
... Hi, and welcome. My son has Generalized Myoclonic seazures and he was first put on Keppra. We had the same problems on it as you do, so we put him on...
Our son will be 14 in July. He has done wonderfully on Keppra. He has been seizure free for 9 months. When the Doctor upped his dosage from 1500 mg. to 2000...
Mari, A loud assent to everything you wrote! Lars has seen Dr. Holmes since 2002. His seizures have been *very* difficult to treat and finally after several ...
I live in Portland and am new to this group. My 5 year old son just started having seizures 3 weeks ago. He is now on 3 meds and still having seizures plus...
Kelly -Â who is your neurologist? It sounds very much like your kid is on too many or the wrong meds. My son had HORRIBLE behavioral side-effects from...
Hi Kelly, I'm so glad you posted. My 13 year old son was 6 when he started taking anti-seizure meds, and I remember all the unanswered questions and ...
Personally, I think if the side effects of a medication are causing that much problem and the seizures aren't in any better control, it's time to try something...
Hi, my husband is 42 and has recently been diagnosed, 3 months ago. We went to the doctor with what was then a seizure a year. I wasn't even willing to call...
I had my 6 month visit with Dr. Sloop on Friday, and I get to reduce down to Trileptal ONCE a day. That's down from 6 Keppra/day (3/3) and 6 Trileptal/day...
That is great news! Good luck with your reduction schedule; take it slow so your body can adjust gradually! Best wishes and I look forward to your post a year...
... That is GREAT news!!! News like that make my day, then I know that one day my son will be seazure free...ohh I dream about that day, it has been hard 4...
Does anybody have a toddler with myoclonic seazures that has controlled seazures with medications and what are the medicatios he/she is taking? I know that...
... complex partial seizures. He is 9. It seems to me that his seizures are increasing and getting stronger and longer now that he is on meds. Of course I...
I would like to share my Nanny that is a full time caregiver for my ten year old with Epilepsy. He goes to school but missed 40+ days and we never know if he...
Hi, We had the same problem with Keppra. My son has Myoclonic seazures and first meds they pot him on was Keppra, he got worse, like you said his seazures...