Hi Edie! Call 1-800-972-5163 or email  Melanie Johnson RN MSN Carol Vaughn @ cvaughn@...   Someone will help you there. They have information...
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sammykjquam
May 3, 2009 2:43 pm
Hi- I'm Karen from Spokane. I have simple partial/complex partial seizures from the right temp. lobe and recently I've been experiencing something I think may...
793
Sherry
sherdh
May 3, 2009 3:11 pm
Yes, hallucinations *can* be part of partial seizures. From the Epilepsy Foundation website: "Partial seizures are the most common type of seizure experienced...
794
sammykjquam
May 4, 2009 2:14 pm
-- Tania- The general rule is to call 911 with any seizure lasting more than 5 mins because we aren't getting enough oxygen and could ultimately cause...
795
Sherry
sherdh
May 4, 2009 2:50 pm
We took our step-son in a couple of times because of intractable seizures. Usually by the time we'd get him to the ER, his seizure would be over, the ER doc...
796
SUE OWNBY
sue_ownby
May 5, 2009 3:26 am
Hi Tania, I'm not a doctor, just a Mom...but if that was my child, I would pack her into the car and take her to emergency at OHSU in Portland. Doesn't sound...
797
kanani_vl
May 5, 2009 7:54 am
I am new to this forum. My 12 year old step-daughter was recently diagnosed with Epilepsy. In the last 2 months she has has had 6 generalized seizures. She is...
798
zoida27
May 6, 2009 2:13 am
... Hi Karen, My name is Zo & I live in Vancouver. I have many types of uncontrolled seizures that have got mildly better with multiple anti-epileptic meds....
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SUE OWNBY
sue_ownby
May 6, 2009 2:48 am
Hi Kanani, I have a 15 y.o. daughter with epilepsy since she was 10 months old. She currently takes 2000 mg keppra 2 x's per day, 20 mg. Clobozam 2 x's per...
800
lisa kline
lisakline11
May 9, 2009 8:55 pm
this email is for Tania, who had questions about Dr. Goins in Eugene. we live in Eugene and have a child with complex partial seizures. i would be glad to...
801
martinsophie71
May 19, 2009 10:46 pm
Hello, my name is Sophie and I just joined this group. Background: My husband is 37 years old and has had grand mal seizures for the past 20 years or so. He...
802
Sherry
sherdh
May 20, 2009 4:21 pm
How hard! My step-son was 12 when he started having seizures 26 years ago. No known cause. He's had grand mal and complex partials. I had to learn that he...
803
cari_foster96
May 21, 2009 2:51 pm
Hi Kanani, I too am new to the group. My daughter is 11 and diagnosed with epilepsy last June, 2008. She is taking Zonisomide so not sure about Keppra. She...
804
cari_foster96
May 21, 2009 3:07 pm
My daughter too has ADHD and now we realize was having seizure activity in school last year which is why she was having such trouble. Different meds will...
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cari_foster96
May 21, 2009 3:11 pm
Hi, I just uploaded a file called Epilepsy. It is a document sent to me from my brother-in-law with interesting information about vitamins and seizures. Maybe...
806
Sophie Martin
martinsophie71
May 21, 2009 4:55 pm
Thank you for responding, Sherry. My husband has said he feels cornered too, and so it sounds like it's the same sort of thing as your son. How often does your...
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Sherry
sherdh
May 21, 2009 5:48 pm
A few days a month. A 180 from when he was having a few seizure-free days a month! They tend to cluster. He’ll have several in one day for a couple days and...
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Sophie Martin
martinsophie71
May 21, 2009 6:12 pm
A few days a month does sound a lot better! That is a good suggestion, I will try approaching him from the side or rear, gently talking to him. Thank you for...
809
Sherry
sherdh
May 21, 2009 6:49 pm
Well it certainly can make me cranky <rbg> All these meds have some sort of nasty effect on the person taking them, esp when a large dose is given and multiple...
810
Maraika
healthnfreedom2
May 23, 2009 10:15 am
Hi Cari. I would love to see the file you downloaded on Vitamins and Seizures. Could you give me the link too please. This subject is a speciality of mine and...
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lisa kline
lisakline11
May 27, 2009 4:25 am
Hi My son just started Keppra, his first meds after being diagnosed with complex partial seizures. He is 9. It seems to me that his seizures are increasing and...
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you wish you knew
candy_lou81
May 27, 2009 7:16 pm
Hi Lisa, My daughter is 6 and has had complex partial seizures since she was two. She has been on Keppra for the last year but she takes it has a secondary...
813
lisa kline
lisakline11
May 28, 2009 4:31 am
Candice thanks for the info, it is really helpful. I will look up Lamictal and talk to his doc. thanks again,Lisa ... From: you wish you knew...
814
Kelly
kellybpdx
Jun 8, 2009 2:33 am
Hi, My 5 year old son just started having seizures 2 weeks ago. He has several a day and has been to the hospital 4 times this week. He is on meds but they...
815
caregiverjenna
Jun 8, 2009 2:41 pm
Hello, First of all WELCOME Kelly! :) This is the nicest group you hope to never have to meet. lol I think I pretty much speak for everyone on here when I say...
816
minelamujdza
Jun 9, 2009 3:07 pm
Hi Everybody, My son was diagnosed with Myoclonic seazure desorder almost 4 months ago, he's been on Keppra and Topomax..right now he is on Depakote, nothing...
817
savedbygrace77777
savedbygrace...
Jun 9, 2009 6:40 pm
HI: My daughter was diagnosed with a seizure disorder at 4 1/2 months old. She's been on all of those meds, with no success. I'm not telling you this to...
818
paula@...
thalmannmom
Jun 9, 2009 7:04 pm
Welcome to this group! I hope you get the answers to your questions. How old is your son? You mentioned that he was diagnosed 4 mos. ago. Is this is first...
819
minelamujdza
Jun 9, 2009 7:54 pm
My son turned 3 in March this year, he doesn't have any side efects on Depakote what so ever, in fact as soon as he started taking depakote by itselfe about a...
820
paula@...
thalmannmom
Jun 9, 2009 8:10 pm
Oh, he's a little guy!!! I just love that age group! Age three is such a time of wonder and discovery, I'm glad that his current meds don't sedate him like the...
