Hi Sue, Yes, he's in the doctor's plaza there on 11th/12th Sts. He's R. Richard Sloop. As far as meds, the only one I'm still on is Trileptal, and that may be...
I appreciate the info, Missy! Wish I could say that Chelsi was doing great, but she's not. She hasn't had a tonic-clonic since the day we came home from...
Hi Everyone, I'm sending this from my husband's computer, so I'm keeping my fingers crossed that it goes through! I took the plunge and signed my 12 year old...
Sue: I'm sorry to hear about Chelsi. Claire has been have quite a few more seizures too, since Thursday. She had at least 7 or 8 yesterday. I just can't...
OMG Sue, The first few drops are horrifying, Kevin with a combo of absences, and jerks, and drops has a total of 15 seizures a day. The VNS is stopping about...
Hello Paula, I would love to send Kevin but I am from Spokane, and he can NOT stay that far away from ME (heh heh). Kevin is also a cub scout (he just turned...
Thanks for your care and concern. Dr. Sotero is raising her new drug Clobazam (she also takes Keppra and Zonegran). I asked he nurse "isn't he concerned that...
That's a great way to put it. IT SUCKS!! I just pray to God this won't become the "norm". I'm a wreck having to face this in the first place. Strong on the...
Hi Sue: I know exactly how you feel. Everytime Claire has a seizure I get a little more depressed. In fact, the last 6 days have not been good for her and...
Hi Paula We took took the plunge and signed Drew up. He will be turning 10 the beginning of Sept. He's never been to camp. He's excited about meeting other...
Yeah! DeAnna, I was so happy to see your post. The more I think about Camp Discovery, the more I'm glad my son is signed up to go. Oh, I'll be a nervous wreck...
Hi Missy, Thanks for your message! I totally hear you about the stress factor! In August of last year, my son's seizures were just awful ... it was really...
Hi again Missy! I need to learn to read all my messages before responding! I just sent a msg to you as well as another member about camp, and now I found...
At least we know we're not alone! Chelsi had a drop seizure at her 2nd day of dance class list night. She seems to be getting a little more depressed as time...
Hello all! I'm new to this list and am looking forward to gleaning lots of wisdom from this loop. I've got a 15-year-old daughter who was diagnosed with...
Hi Amy, We live in the Portland area. My son, who is almost 13, has experienced seizures since he was six. I'm not familiar with Dr. Huffman. I would not...
Thanks for the referral, Paula. I was really trying to avoid going to OHSU, but maybe I should consider it. Do you know of any support groups in the Portland...
Hi Amy: Welcome to the circle. Although I'm not from your area so I can't give you any doctor referrals, I just wanted to say hi and let you know that you and...
Amy - see if you can get hold of the "Comparative Guide to Nutritional Supplements" by Lyle MacWilliam,BSc,MSc,FP where they have tested 1500+ brands. This is...
Hi Amy, I'm in Yakima and take my 14 y.o. daughter Chelsi to Swedish, so I can't help much with Portland Docs! I know how disheartening it is to face another...
how is everyone doing with it? I have not heard anything good about Keppra but Dr. Sotero wants to put Joey on it and he is 7 and I am really concerned,...
I have had eplilepsy since birth, but it didnt rear its ugly head until I was about 10, here is my thoughts on being medication young Steer clear of tegratol,...
Hi Jenna, Gosh, I try to keep my posts positive in nature, but in this case my response will be otherwise. This is just my opinion, but I do NOT like Keppra....
My step-son has been on Keppra for some time now and he hasn't had any problems - he's 37 years old though and I don't know if Keppra has different issues for...
Hi Jenna, Chelsi (14) takes 1500 mg of Keppra twice a day, 250 mg of Zonagran and 1 1/2 tablets of Clobazam. I didn't notice any side effects when she started...
Chelsi never tried Dilantin. Topamax didn't stop her seizures, and she's never tried phenobarbital. It's amazing to me how the different drugs affect people...
thanks for all the input everyone! I really appreciate it! I just have that yucky gut feeling that Keppra may not be the right thing for him. The first sign...
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