Uh oh - not another one! This spam hit all the groups I moderate (different senders)! I shall refrain commenting on what I really think about spammers Sherry...
I'm in Yakima. I was ORIGINALLY diagnosed way back in 1972, when I was 12. I'd been under doctors' care until 1996. A NEUROLOGIST, yes, a neuro, in Spokane...
hey there isn't a cure all for this. one thing that helps is to just be patceint. also to let them try and be normal. Deborah ... hard time ... that by ... of...
There may not be a "cure" but with the proper meds, hopefully the seizures can be better controlled. My step-son told me a few years back that it wouldn't get...
hey does he "see" people who aren't there? I did that alot. i also whent insane on a med. i came at my brother with a knife!! it scared everybody but after we...
Thanks for the history! Is Dr. Sloop a neuro here in Yakima? When Chelsi was diagnosed, I just made a bee-line for Childen's in Seattle. We just recently...
Well, not people, but he did have quite an active imagination <g> Celontin set him back mentally - he said he had to learn to walk and talk again (but then he...
Dearest Sue, Kevin just started that med 3 days ago, did you get it from Mark's Marine Pharmacy? That is where it originated from. Clobazam/Frisium is in the...
... USA ... at ... not ... you travel 4 HOURS!!!! just to see a doctor for Kevin? That's love there. I have a hard enough time just getting across the water to...
Hello Missy! Glad to hear someone else is on the same drug! Chelsi's had good luck with it so far. Can't really tell that she's having any symptoms. She's...
Sue, We initially was to see Dr. Sotero, but ended up with Saneto. Kevin was in dire straits and it was scary having an idiot neuro tell us that Kevin was...
When Kevin started there we were initially to see Sotero, but heard that Senato and Sotero were "joined at the brain", they think alike. I thought that Sotero...
Due to the many requests we have had in the past to send the Seizure Trigger List we have decided to update our website 2betrhealth.com and include this list...
Hi Sue, Yes, he's in the doctor's plaza there on 11th/12th Sts. He's R. Richard Sloop. As far as meds, the only one I'm still on is Trileptal, and that may be...
I appreciate the info, Missy! Wish I could say that Chelsi was doing great, but she's not. She hasn't had a tonic-clonic since the day we came home from...
Hi Everyone, I'm sending this from my husband's computer, so I'm keeping my fingers crossed that it goes through! I took the plunge and signed my 12 year old...
Sue: I'm sorry to hear about Chelsi. Claire has been have quite a few more seizures too, since Thursday. She had at least 7 or 8 yesterday. I just can't...
OMG Sue, The first few drops are horrifying, Kevin with a combo of absences, and jerks, and drops has a total of 15 seizures a day. The VNS is stopping about...
Hello Paula, I would love to send Kevin but I am from Spokane, and he can NOT stay that far away from ME (heh heh). Kevin is also a cub scout (he just turned...
Thanks for your care and concern. Dr. Sotero is raising her new drug Clobazam (she also takes Keppra and Zonegran). I asked he nurse "isn't he concerned that...
That's a great way to put it. IT SUCKS!! I just pray to God this won't become the "norm". I'm a wreck having to face this in the first place. Strong on the...
Hi Sue: I know exactly how you feel. Everytime Claire has a seizure I get a little more depressed. In fact, the last 6 days have not been good for her and...
Hi Paula We took took the plunge and signed Drew up. He will be turning 10 the beginning of Sept. He's never been to camp. He's excited about meeting other...
Yeah! DeAnna, I was so happy to see your post. The more I think about Camp Discovery, the more I'm glad my son is signed up to go. Oh, I'll be a nervous wreck...
Hi Missy, Thanks for your message! I totally hear you about the stress factor! In August of last year, my son's seizures were just awful ... it was really...
Hi again Missy! I need to learn to read all my messages before responding! I just sent a msg to you as well as another member about camp, and now I found...
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