Hi there, I am new to the group as well, in fact in June we just moved back to the area so my daughter would have the extra support of her family and I too...
Welcome! We have several new people who have joined our group, so I thought perhaps we could do a little roll call? I'll start, since I started this list...
// I feel ... Oh yeah, Candy...I can relate! People with epilepsy are truly guinea pigs on meds. You never know which combination of what drugs is going to...
I'm Becky living in Bellingham. I have 3 children, a 5-year old daughter, a 3-year old son, and a 5 month old daughter Madalynn who has been having seizures...
//I'm trying not to read too much about seizures because the more I do the more worried I become// I can certainly empathize with you on that one! I, on the...
I guess then Madalynn does have the grand mal she does the jerking with her legs and arms. Her eyes go off to one side and she's unresponsive. I thought that...
My step-son is the one with epilepsy. He’s 37 years old, was diagnosed when he was 12 and they’ve been uncontrolled ever since. He’s currently on 3000 ...
Becky ~ I don't blame you for not wanting to know....just make sure you know "enough" to always have her best interests at heart. Things pretty much changed...
I know what's he's going through. I'm 29 and I started having seizures when I was 5 years old and still have them. I even had a right frontal craintomy in...
Hello, I have two children a 14-year old son, Keith and an 11-year old daughter, Christel. Christel was diagnosed March 07, at age 10, with petit mal seizures....
I joined this group a while ago but I don't often participate in the discussions. I do enjoy reading and learning from everyones experiences. My daughter is...
I'm heading to Children's Hospital in Seattle for a support group on May 10 from 10am - 12pm. It's the first one that I'll attend so I don't know how many...
Hi Becky, We don't have a support group for kids, but we have a summer camp for kids with epilepsy and their siblings. It'd be a great place for your daughter...
Hi Becky, The group on 5/10 is for parents of children with epilepsy. However, childcare will be provided, and the kids will have an opportunity to play with...
In answer to the "roll call"... My name is Lynn and I don't often respond to messages on this list, because most people on it seem to be a parent, spouse, or...
I also joined this group a while ago, but rarely post. I am Missy and I am from Spokane. We do however, go to Seattle for Dr. visits as I fired the neuro here....
Hi! My name is Bonnie and our family lives in Monmouth, OR. Our seventeen year old daughter, Blair, was diagnosed at one year old with Lennox-Gastaut syndrome....
I so know how you feel, Louisa! We have a lot of the same problems. Keeping our children safe and "letting them live their life" is extremely difficult! As...
Hello there, I am Candice and my daughter Emily was diagnosed with complex partial epilepsy when she was two. She is now 5 and we are still dealing with on...
... perhaps we could do a little roll call? ... actually intended to be a way for a small group of us Yakima people to communicate, since our monthly meetings...
If I had a dollar for every time Chelsi's seizures changed, I'd be a rich woman! Every time I think I have it figured out, something changes. Sucks, too! Sue...
If LGS didn't have an eeg signature, I would swear my daughter had it. One of the questions I already had on the list for our first visit to Swedish in June...
I guess I missed "Zully's" response? I'm not sure who that is. Lynn In a message dated 4/7/2008 8:41:24 P.M. Pacific Daylight Time, s_042620@... writes: ...
Sue, It was recommended by the school district to have Blair tested for autism when she was five. Between the seizures and unusual behavior in nursery school,...
Firstly, let me just start by saying I am sorry to hear you daughter had to suffer another seizure. It is most difficult because the seizures didn't start...
Hi All: My name is Diana and my husband is Glyn. We have an beautiful 11 year old daughter (Claire) who was diagnosed with epilepsy at the age of 4 months...
Diana ~ thank you for telling us your story, as sad as it is. I'm so sorry that Claire and your family have had to go through this. I will pray for success,...
Sleepovers have been very interesting! Chelsi either has someone over or she goes somewhere every weekend. I live in total fear of getting "the call"....
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