Hi Joellen, I am not the epileptic in my family, by 9 year old daughter is, but she has been experiencing seizures since she was 6. Can we help in any way? ...
I've got a 14 y.o. daughter with seizures....so I'm the Mom, but there's lots of people on here willing to chat! I understand how important to find people...
Thank you Sue. It's just real hard to find people. Most people my age can drive and are out having fun right now. But since I don't drive I'm just sitting at...
My step-son is 37 and has had uncontrolled seizures since he was 12. He moved to our area 6 years ago and we're working with a neuro at Harborview Regional...
Don't you have any friends who can take you out with them? What about public transportation? Where do you live? There should be accessible transportation...
Hello, i understand what ur going through my daughter will be 5 in may and was born with epilepsy...She is now on her second med which is Lamictal and it seems...
I just wanted to introduce myself. I am new to this group and new to epilepsy. My 2 year old daughter was just diagnosed this past february. We thought she...
Hello and welcome. My daughter was diagnosised at age 2 also and she is now 5 still with seizures. if you have any questions please feel free to ask. candice ...
... Hi Candance! Thanks for the message. I hope this is how you reply here. I have a lot of questions but just not sure what to ask since it is all so new. I...
Hi everyone. My Brother has had Epilepsy since he was 12 (1983) and although he's an American Citizen, he's been living in Guatemala, because that's were he...
Hi, everone again. My brother hasn't been able to control his seizures thru medicine, and we are really looking forward to have the opportunity to look into...
Edgar, My step-son had VNS placement at Harborview Regional Epilepsy Center in Seattle, WA. He wasn't eligible for other types of seizure surgery because they...
We're in Washington State and my step-son has been on Social Security for a really long time. Here's a website that explains the type of benefits available. ...
Edgar, If you're looking into surgery make sure you ask lots of questions before hand. I had a right frontal craintomy at Penn and the neurosurgeon (Gordon...
i am wondering if any one knows anything abput getting help form the state. My daughter is 5 years old and has complex partial epilepsy. i am a single parent...
Check with your local DSHS office Department of Developmental Disabilities. If your daughter is eligible, you could get paid by the state for taking care of...
Hi there, I am new to the group as well, in fact in June we just moved back to the area so my daughter would have the extra support of her family and I too...
Welcome! We have several new people who have joined our group, so I thought perhaps we could do a little roll call? I'll start, since I started this list...
// I feel ... Oh yeah, Candy...I can relate! People with epilepsy are truly guinea pigs on meds. You never know which combination of what drugs is going to...
I'm Becky living in Bellingham. I have 3 children, a 5-year old daughter, a 3-year old son, and a 5 month old daughter Madalynn who has been having seizures...
//I'm trying not to read too much about seizures because the more I do the more worried I become// I can certainly empathize with you on that one! I, on the...
I guess then Madalynn does have the grand mal she does the jerking with her legs and arms. Her eyes go off to one side and she's unresponsive. I thought that...
My step-son is the one with epilepsy. He’s 37 years old, was diagnosed when he was 12 and they’ve been uncontrolled ever since. He’s currently on 3000 ...
Becky ~ I don't blame you for not wanting to know....just make sure you know "enough" to always have her best interests at heart. Things pretty much changed...
I know what's he's going through. I'm 29 and I started having seizures when I was 5 years old and still have them. I even had a right frontal craintomy in...
Hello, I have two children a 14-year old son, Keith and an 11-year old daughter, Christel. Christel was diagnosed March 07, at age 10, with petit mal seizures....
I joined this group a while ago but I don't often participate in the discussions. I do enjoy reading and learning from everyones experiences. My daughter is...
I'm heading to Children's Hospital in Seattle for a support group on May 10 from 10am - 12pm. It's the first one that I'll attend so I don't know how many...
