Interesting! Sue ... From: Jewl Wall<mailto:wallja99@...> To: seizurealertdogs@yahoogroups.com<mailto:seizurealertdogs@yahoogroups.com> Sent: Monday,...
I am so sorry I just saw this... My son was on felbatol and it helped greatly with his TC's. You do have to weigh the pro's and con's.. Con: side effects.......
Missy, Not a problem - better late than never <g>. Lars seems to be doing pretty well. He's up to 2400 mg a day now, labs are fine and his seizures are ...
Dear Parents: We are starting a new support group for parents and caregivers. The group will meet every other month on Saturdays from 10am till noon. Our...
Just a quick note to say hello and introduce myself. I am your neighbor to the south -- we live in Oregon. My son, now age 12, has had seizures since he was...
Felbamate. Sherry ... From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of SUE OWNBY Sent: Wednesday,...
Mineko, I would love to come but it is a 5 hour drive heh heh. We just found out today THE day 7 years ago that Kevin had his first seizure... That Kevin is...
Paula, I so look forward to talking to you in the future. I have a 13 y.o. daughter with seizures. I don't have much time to chat now, but I wanted to...
Hi Paula - Welcome to the group!. We live in Oregon also - Monmouth. Our seventeen year old daughter, Blair, had her VNS surgery six years ago. She is also on...
Sue, Why is the wait so long? Does she have to go through Children's? My step-son (he is an adult, though) goes to HarborView Regional Epilepsy Center. They...
Hi Sue and Bonnie, Thanks for the welcome messages! It will be nice to have and give cyber support from this group. Sue ... I'd be happy to answer all of...
She has her regular neuro there which we can get into anytime we wish...but we've been waiting for a specialist in mitochondrial disorders for this whole time....
Oh ~ school. That's been a little stressful. Chelsi is slightly developmentally delayed. She get's help in reading and math in special ed and in mainstream...
T/C’s??? Is that Tonic-Clonic? Boy, Lars would be *so* happy to have only two seizures of any kind per month! I can honestly say I've witnessed thousands...
Hi Sue, I really feel for you. It's so hard to watch anyone experience a seizure, and doubly so when it's your own child. That must have been really hard...
Paula, I can so relate to you email. Especially the word "despair". I do feel like that at times. If I hear a "thunk" at the other end of the house, I come...
Hi there, I am new to the group and have a 4 almost 5 yr old girl that was diagnosed with complex partial epilepsy when she was two. It has been hard trying to...
Lars has been through so many meds that didn't work for him or gave him serious side effects. Hang in there! *Something's* bound to work. I don't know if you...
Hi Candace, I too and new to this group. You are sooooo not alone. I hear completely what you are saying, especially regarding the stomach aches. Those...
Cough and Cold Medications in Children Less Than Two Years of Age January 17, 2008 Audience: Consumers, pediatric and primary care healthcare professionals ...
Oh, I can definitely relate! My 13 y.o. daughter has not been controlled since she was 10 months old. She's been on at least 8 different medications, and I...
Paula, Thank you so much for the reply. My daughter is also taking an acid reflux med and it really only seems to do a little. I started realizing that the...
Has she ever had long term monitoring, where she stayed in the hospital for a few days? They'll hook her up for a continuous EEG plus she'll be on video....
Hi Candace, Boy, there certainly are many similarities in our children's cases. My son's seizure activities also did not show up on the first couple EEG's....
... that ... through ... working ... she ... yes i can relate my daughter was 11 when she had her first one and she is also dianosed with complex partial we...
I have never even heard of a spect scan. It irritates me that these options for diagnosis aren't even mentioned. Chelsi's had 24 hour telem, which showed...
Hey Sue! It takes a village, right? Sharing experiences, treatment plans, etc. might make it an easier journey for another patient. We are fortunate in that...
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