Howdy y'all. Hope your summer was good! Have any of you had any experience with Felbatol (felbamate)? Lars seizures have gotten really bad - very frequent...
I don't know anything about the drug. I also don't know anything about his neuro, but I've started seeing David Vossler, he's at Valley in Renton now, was...
Lynn, Dr. Holmes is with the Regional Epilepsy Center at Harborview/UW and is a researcher and associate professor as well as an excellent, personable ...
Sherry, I'm glad you have such wonderful doctors. I'm fairly new to Epilepsy, so I probably should have kept my big mouth shut. I've only been diagnosed...
Lynn, Oh, I fully understand the fear! He can be talking with you and down he goes right in the middle of a sentence! There have been more times that we've...
Hi Sue, I do not know if you were sending it to all of us in the support group or just Sherry, but this is Eric. Thanks any way Eric eda4665@... ... ...
Epilepsy and Nutrition I thought that you would like to have a look at the article entitled Epilepsy and Nutrition that I have done as part of my degree. ...
Caroline - What a wonderful article! My 13 y.o. daughter takes a multi-vitamin, B2, CoQ10, E, C and carnitine. I think I'll talk to her doc about adding a...
Interesting! Sue ... From: Jewl Wall<mailto:wallja99@...> To: seizurealertdogs@yahoogroups.com<mailto:seizurealertdogs@yahoogroups.com> Sent: Monday,...
I am so sorry I just saw this... My son was on felbatol and it helped greatly with his TC's. You do have to weigh the pro's and con's.. Con: side effects.......
Missy, Not a problem - better late than never <g>. Lars seems to be doing pretty well. He's up to 2400 mg a day now, labs are fine and his seizures are ...
Dear Parents: We are starting a new support group for parents and caregivers. The group will meet every other month on Saturdays from 10am till noon. Our...
Just a quick note to say hello and introduce myself. I am your neighbor to the south -- we live in Oregon. My son, now age 12, has had seizures since he was...
Felbamate. Sherry ... From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of SUE OWNBY Sent: Wednesday,...
Mineko, I would love to come but it is a 5 hour drive heh heh. We just found out today THE day 7 years ago that Kevin had his first seizure... That Kevin is...
Paula, I so look forward to talking to you in the future. I have a 13 y.o. daughter with seizures. I don't have much time to chat now, but I wanted to...
Hi Paula - Welcome to the group!. We live in Oregon also - Monmouth. Our seventeen year old daughter, Blair, had her VNS surgery six years ago. She is also on...
Sue, Why is the wait so long? Does she have to go through Children's? My step-son (he is an adult, though) goes to HarborView Regional Epilepsy Center. They...
Hi Sue and Bonnie, Thanks for the welcome messages! It will be nice to have and give cyber support from this group. Sue ... I'd be happy to answer all of...
She has her regular neuro there which we can get into anytime we wish...but we've been waiting for a specialist in mitochondrial disorders for this whole time....
Oh ~ school. That's been a little stressful. Chelsi is slightly developmentally delayed. She get's help in reading and math in special ed and in mainstream...
T/C’s??? Is that Tonic-Clonic? Boy, Lars would be *so* happy to have only two seizures of any kind per month! I can honestly say I've witnessed thousands...
Hi Sue, I really feel for you. It's so hard to watch anyone experience a seizure, and doubly so when it's your own child. That must have been really hard...
Paula, I can so relate to you email. Especially the word "despair". I do feel like that at times. If I hear a "thunk" at the other end of the house, I come...
Hi there, I am new to the group and have a 4 almost 5 yr old girl that was diagnosed with complex partial epilepsy when she was two. It has been hard trying to...
Lars has been through so many meds that didn't work for him or gave him serious side effects. Hang in there! *Something's* bound to work. I don't know if you...
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