Howdy, I was just approved to join the group and thought I'd introduce myself. I don't have epilepsy, but my 36 year old step-son does. He's had uncontrolled...
Sherry: Your son's epilepsy sounds very much like my husband's. My husband is on Dilantin, Depakote, and Lyrica. Lyrica is the newest for him - replacing...
Thanks Rachel. I guess for some people the seizures can be embarrassing. Lars is allergic to so many of the seizure meds - dilantin, tegretol, lamictal. He...
Welcome Sherry! I hope you find the support your looking for h ere. I started this group as a way for us to hook up between meetings, but it seems we're all...
Rachel & Sherry, Today is the first day I've heard of Lyrica. Is it a new drug? We'll be looking at some different options for Chelsi. You've both also...
Sue, Lyrica's been around for awhile. Lars has been on it for over a year now. It can cause some weight gain, but not as much as Depakote. Lars does have a...
Wow, if Lars had only 1 or 2 seizures every month, he'd consider himself seizure free! A couple weeks ago, we were at DisneyWorld in Orlando. He had over 40...
Sherry: I can understand - right now my husband hasn't had a seizure in about 3 weeks. But, durring the time I call the "dark ages", he would have several...
Yeah, Lars is considered DD because his disability started before he was 18. He's in "the system" which really helped for him to get the housing assistance he...
Thanks so much for the info. I've never seen a helmet like that. Someone needs to design something that doesn't look like a diaper! Hearing your story does...
ROFL! I never thought of it as looking like a diaper <g> If the white edging wasn't there, it'd look a lot better! Maybe we should write to them and suggest...
Hi Rachel. I can identify with some of what you describe your husband going through, although my epilepsy is comparatively mild, at this point. I started...
There was a time that my daughter did have 3 grand mals in one week. The school wanted me to consider a helmet. At that time she was so short, she didn't...
Hi. Just a hint. Keep a daily Diary to help pinpoint Triggers. Check to see what foods eaten/drunk, OTCs taken etc. Check label of foods as many have toxic...
I've been taking medications for siezures since 1983, and you'd think that after this amount of time I would have overcome every obsticle. But unfortunately,...
Tom: That is one of my husband's fears, as well. He was siezure free for many years and simply didn't disclose it. I'm pretty sure that your previous...
I feel for you. My step-son is on three different meds and has a VNS and his seizures still aren't controlled! He pretty much has to tell a potential...
In the past, before my spells were as well controlled as they are now, I've lost jobs due to my siezures. One job involved a 100 mile daily commute, so once I...
Hi Tom. Here is a link to a good site for information. This is a something everyone may want to read, as it really condenses the information and makes it easy...
hey yall im new to the group. im Jennifer and im 26 yrs.old ive had grandmal epilepsy since 5yrs.old im now on sonisamide 500mg total daily. 200mg morning...
Hello everyone, I am new here and will enjoy being here. I was a pedestrian walking with a female friend on the shoulder and was struck by a car. The car kept...
Welcome to the newbies! We've had several people join lately. Thanks for your patience in getting approved because our list has been hammered with spam in...
I don't know about leaving a child/teenager alone, but I do know how I feel about being alone myself. By the way, my seizures also follow my menstrual cycle,...
Thanks so much for your reply, Lynn. Lots of good advice in there! As long as Chelsi is having seizures, we'll probably always make sure she has someone with...
Howdy y'all. Hope your summer was good! Have any of you had any experience with Felbatol (felbamate)? Lars seizures have gotten really bad - very frequent...
I don't know anything about the drug. I also don't know anything about his neuro, but I've started seeing David Vossler, he's at Valley in Renton now, was...
Lynn, Dr. Holmes is with the Regional Epilepsy Center at Harborview/UW and is a researcher and associate professor as well as an excellent, personable ...
Sherry, I'm glad you have such wonderful doctors. I'm fairly new to Epilepsy, so I probably should have kept my big mouth shut. I've only been diagnosed...
Lynn, Oh, I fully understand the fear! He can be talking with you and down he goes right in the middle of a sentence! There have been more times that we've...
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