Yeah, I initially called the repeated electrical jolts petit mals, too: one of my neurologists told me that this is older terminology and can be confusing. (He...
Mineko, Thank you, thank you, I have tried to explain to the organization I am with that 2 or more unprovoked seizures is considered Epilepsy. They however,...
Small world...I actually live in Lower Naches! Chelsi does have an IEP. It was pretty much forced on her in Kindergarten. I'm not a fan of the "system"....
Tony, I'm no Doctor, but I'm surprised to read that you are on 2 of the oldest seizure medications that have been around forever. There are many newer ...
Hi Anthony, May want to sign your posts so we know who we're writing back eh? <grin> Yea, they can hamper things a bit I admit if what you are describing are...
HI, I'm on Phenobarbital l, Dilantin as well as Depakene. The first 2 drugs are old, but I take them because it controls my Epilepsy. I have been seizure free...
Thanks for the comment, Sue. I do see a neurologist--I've seen several, over the past decade, as a matter of fact. Unfortunately, most of the neurologists I've...
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Feb 2, 2006 7:10 pm
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Hello everybody, I asked Trevors doctor if Trevor has epilepry and he responded he wasnt sure - how are you sure? He has constant seisures - has had a EEG ....
Yeah - being from a small town like Yakima, I'm always leery because we don't have a whole lot of doctors to choose from. Over on the"wet" side, you are ...
To quote Mineko "Seizures that happen more than once for no apparent reason are defined as epilepsy" That is how I always understood it also. Sue a message...
Sue, I took the definition of Epilepsy out of a book by Dr. orrin Devinsky M.D. titled "A GUIDE to UNDERSTANDING and LIVING with EPILEPSY". He states: Epilepsy...
Hello again, I was just trying with no luck to sign up for the walk for epilepsy on June 17th.Thought I would check my email - i must say talking with all of...
Rachel's the one who asked the question....but, yeah, I've read the guide and it is very good.... Sue In a message dated 2/2/2006 11:26:47 P.M. Pacific...
Thank you larry - and sue. Ill try to find one at the library. GO SEAHAWKS!!!! R. Mrmrssoso@... wrote: Rachel's the one who asked the question....but,...
I've never been in the bank, but know many who go there. An IEP is essential for kids like our...just be sure they are doing what's best for your son and not...
Here is an e-mail from Josh, a long-time volunteer at the epilepsy foundation. Despite frequent seizures (2-3 a day), he keeps very active and is committed to...
I have the remaining copies of my book, Epilepsy – A Holistic Approach (ISBN 1 879817 09 6) on special offer. It is a 143 page book packed with practical...
Hi, I am a new member to this group. My 14yr old son Evan started having seizures again after more than three years. He has been taking Gabapentin the whole...
Hi, I just found this but I'm so glad I did! It really is nice to know that there are others people out there. My son has had epilepsy since birth only we just...
Hello. I'm not sure I have any words of wisdom but I do understand how you feel as a mom. My son is 15, and Saturday morning I heard my door open and trevor...
Hello Joshs mom, I am Trevors mom. He is 15. I gotta spout off with frustration today with stupidity of others (as you talk about school etc.)People who dont...
So good to hear from you Trevors Mom. I'm Sam. I wish there was a pamphlet maybe we should make one :-) Be as abrubt and rude as you like I completely ...
So good to hear from you Trevors Mom. I'm Sam. I wish there was a pamphlet maybe we should make one :-) Be as abrubt and rude as you like I completely ...
Hey Sam, Nice talking to you. Yea Trevor has been lacking in grades for the last couple of years too and were working on that with the school and IEPs etc now....
Hi Josh & Trevor's mom...this is Chelsi's mom (Sue). Chelsi will be 12 in a couple of weeks. She's a cute little girly girl and has had epilepsy since she...
Hi Sue, Its nice hearing from you again. Trevors seisures are no way near what Chelseas are, I dont know how you get through it. I am not sure when trevors...
I guess we just do what we do because we have to. I arm myself with all of the information that I can, and just take it a day at a time. That doesn't mean...