My apologies...facebook tricked me into sending an invite to all of my emails. How embarrasing... Sue ... From: Susan Lizotte-Ownby<mailto:s_042620@...> ...
Hi Hang in there and try checking into HEAD START programs families with special needs often get priority though income is sometimes a factor for some of the...
I'm about to start a new drug, Vimpat 50mg tabs, in conjunction with Neurontin and Lamictal. Has anyone had any experience with this med? Please let me know...
Hi Karen: My daughter, who is 13 just started on Vimpat about 3 weeks ago. I haven't noticed any significant side effects. She was a little sleepier for a...
Hi Karen: My daughter, who is 13 just started on Vimpat about 3 weeks ago. I haven't noticed any significant side effects. She was a little sleepier for a...
My son is 3 and he is currently taking Depakote for his Myoclonic seazures, today his doctor added Clonazepam which I will begine tonight,does anybody have...
It is my understanding that this is a temporary med, acting as a bridge until other meds get up to a therapuetic range. My son was on it for 3 days, in...
Hi everybody, I am thinking to take my son who has myoclonic seazures to epilepsy specialist, does anybody know a good doctor in Seattle area. I was thinking...
Hello - I take my 15 y.o. daughter Chelsi to Dr. Marcio Sotero at Swedish Neurosciences Center at Swedish Hospital, Cherry Hill Campus. He is a Pediatric...
Great!! Thanks so much, I actualy heard about him and I was hoping somebody is seeing him and can tell me something about Dr. Sotero, I will deffinitly make...
I totally agree...Dr. Sotero is the best! My son sees him, and the thing I love most about him is that he does not make me feel stupid when I ask my myriad of...
She's only had it one month. She's had 1 seizure with it, and it was very minor, so our fingers are crossed. VNS's work better the longer they are in, so...
My son was transported to Seattle Children's Hospital from Portland for intractable seizures. Throughout his stay he say numerous nuerologists and finally...
Hi everyone, we too were thinking about getting a second opinion for our 8 year old daughter but weren't sure who we should take her to. Today must be my...
Just FYI, Chelsi also saw Dr. Sonateo at Children's in Seattle. Both Sotero at Swedish and Sonateo at Children's are excellent and have similar styles (in...
I just made an appt. with Dr. Sotero at Swedish, I am super excited even though we have to wait 3 months to see him, it is very hard to get it. My only concern...
Hmmm...I wonder why. Congrats on getting an excellent doctor! That's half the battle. Good luck. Sue ... From: minelamujdza<mailto:minelamujdza@...> ...
Well, our son had gone for a year without any seizures, The Keppra seemed to work. His doctor was talking with us about weening him off in October. Then this...
My son, who also is 14, has a similar seizure pattern to your child. Like your son, he went for almost a year and then had a nocturnal seizure. He would not...
we think it might have more to do with school starting up again and a change in his sleep pattern. We now have a 6 month old daughter as well and instead of...
Oh my gosh, you have a lot on your plate between working nights, having a baby in the house, and a teenage boy! Whew! Sleep deprivation is a huge trigger for...
Paula, Becca and all, Since my 15 y.o. daughter Chelsi just had her VNS implanted about 6 weeks ago, I was inspired by your comments about it! I also share...
Hi folks - Matt here - Western WA dad of an 11-year-old girl whose abscence seizures are medically controlled. Just piping up to address the not-breathing...
Thank you all for your input. I just keep my chin up. Our son says we are paranoid, every time we hear a loud noise, we just about jump through the roof....
Hi, everybody. I am so happy!!! My son has been seizure free for 2 weeks..his seizures stoped 3 days before our vacation to Hawaii, we came back last night and...
That's fantastic! I'm glad it is going well. Seize and enjoy! What do you tribute this good span too? ... From: MinelaM<mailto:minelamujdza@...> To:...
Clonazepam did the trick, as soon as he started taking clonazepam he got better and every time neuro up the dose better and better, finally he started taking 3...
Very cool! ... From: MinelaM<mailto:minelamujdza@...> To: Cent_Wa_Epilepsy_Support@yahoogroups.com<mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com> Sent:...
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