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Cent_Wa_Epilepsy_Support · Central Washington Epilepsy Support
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Need answers in Oregon   Message List  
Reply | Forward Message #749 of 894 |
Re: [Cent_Wa_Epilepsy_Support] Need answers in Oregon

  My name is Becky and we live about 30 miles south of Roseburg. I am sorry to hear about your daughter. We have only just begun to delve into the hidden reasons behind our son's seizures. So far his have been strictly nocturnal which according to what I can find on my own would indicate a frontal lobe issue. We are all afraid to sleep now but we reassure our son that all will be fine and we just need to know what we are dealing with and find how to treat it so that he may continue on with a normal life. We pray that his seizures don't escalate any more than they have. We just don't know. There is no history of seizures on my husbands side and I am adopted so we have no family history on my part. We do know that his neurologist sent off some sort of genetic test but his follow up is not until the 3rd. At that time I fully intend to drill that guy. If I still find him less than informative or his answers don't fit than we will seek another opinion. He seems young and we have a real problem dealing with people who have less life experience than us. We never knew that seizures were so widespread. It seems as if 3/4 of those I speak to have someone in their family or know someone who has seizures. What a frightening epidemic. Why is it such a well kept secret? Our son has nothing to be ashamed of and neither does anyone else who deals with this. Thank you for your reply and for listening. I can't tell you how much it means to me to be able to communicate with another parent who understands.




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Fri Sep 26, 2008 3:47 am

maid2bear
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Message #749 of 894 |
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A year and a half ago our son said his leg hit the wall, got all stiff and he couldn't catch his breath. He had a strange rash at the time so we reported this...
maid2bear
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Sep 25, 2008
10:18 pm

Hi! and sorry about your delima. Well my daughter who is 5 and has epilepsy, sees a neuro named Pohowalla out of Portland, he comes to Salem about once a...
tellted2
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Sep 26, 2008
12:36 am

Hi! and sorry about your delima. Well my daughter who is 5 and has epilepsy, sees a neuro named Pohowalla out of Portland, he comes to Salem about once a...
tellted
tellted2
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Sep 26, 2008
12:41 am

Maid2bear, (sorry - I don't know your name!) Where are you located? Let's start with that. Different cities have different doctors. They range from...
SUE OWNBY
sue_ownby
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Sep 26, 2008
1:40 am

Thank you for your reply. We live about 30 miles south of Roseburg and my name is Becky. We want to see what the nuerologist has to say on the 3rd, but I ...
becca541smith@...
maid2bear
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Sep 26, 2008
3:26 am

My name is Becky and we live about 30 miles south of Roseburg. I am sorry to hear about your daughter. We have only just begun to delve into the hidden ...
becca541smith@...
maid2bear
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Sep 26, 2008
3:46 am

Well, first off, let me send a cyber hug your way, and share that the journey all of the parents on this board take along side our children is a challenging...
paula@...
thalmannmom
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Sep 26, 2008
6:19 am

Our daughter is eighteen and has been having tonic/clonic seizures since she was four months old. I'm sorry your family is going through this very frightening...
Bonnie Shonholtz
blairinspira...
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Sep 26, 2008
1:18 pm
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