My name is Becky and we live about 30 miles south of Roseburg. I am sorry to hear about your daughter. We have only just begun to delve into the hidden reasons behind our son's seizures. So far his have been strictly nocturnal which according to what I can find on my own would indicate a frontal lobe issue. We are all afraid to sleep now but we reassure our son that all will be fine and we just need to know what we are dealing with and find how to treat it so that he may continue on with a normal life. We pray that his seizures don't escalate any more than they have. We just don't know. There is no history of seizures on my husbands side and I am adopted so we have no family history on my part. We do know that his neurologist sent off some sort of genetic test but his follow up is not until the 3rd. At that time I fully intend to drill that guy. If I still find him less than informative or his answers don't fit than we will seek another opinion. He seems young and we have a real problem dealing with people who have less life experience than us. We never knew that seizures were so widespread. It seems as if 3/4 of those I speak to have someone in their family or know someone who has seizures. What a frightening epidemic. Why is it such a well kept secret? Our son has nothing to be ashamed of and neither does anyone else who deals with this. Thank you for your reply and for listening. I can't tell you how much it means to me to be able to communicate with another parent who understands.
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