Dearest Sue,

Kevin just started that med 3 days ago, did you get it from Mark's
Marine Pharmacy? That is where it originated from.

Clobazam/Frisium is in the benzo meds... FDA had decided that the USA
has enough of the benzo's so they will not approve it (yet).

So far Kevin is just tired but again he has been on it only 3 days at
2.5 mg in the AM only. Kevin is also dropping everything, and still
having head jerks and arm jerks at a rate of 15 per day. He just
dropped his meds on the kitchen floor this morning??!!

We are from Spokane and RAN to Seattle for a better dr. I fired
Kevin's old neuro after he declared Kevin cured (what parent would not
want to hear those words?) BUT Kevin had just had a series of head
drops and that stupid neuro even pointed it out during a VEEG!! Then
had the gall to tell me that those were not seizures because he can
not find them on the VEEG (He didn't push the silly button!!)

We really like Children's in Seattle and the whole staff has always
been looking out for Kevin... there have been sometimes that I have
gotten on the phone and yelled at them for pooh poohing me. They
learned right away that we are 4 hours away and when I call it is
usually urgent.

Missy