RE: [Cent_Wa_Epilepsy_Support] Re: Roll Call for our List!
Well, not people, but he did have quite an active imagination <g> Celontin
set him back mentally - he said he had to learn to walk and talk again (but
then he does have a habit of exaggerating a bit) I wasn't with him at the
time but it sounds like he had a terrible psychological reaction to it.
hey does he "see" people who aren't there? I did that alot. i also
whent insane on a med. i came at my brother with a knife!! it scared
everybody but after we fixed it we all though it was funny.
Hello! My name is Jessica and I was just added to this group not to long ago. I have posted a couple of times. My daughter Sierra who is two and a half was...
Hi Jess: My name is Diana. I'm a brand new member to the group also. I know where you're coming from. My daughter, Claire (11 years old) has the same...
Are you a woman with epilepsy? Do you have a wife, a daughter, a sister, a mother, or a female friend with epilepsy? Whatever your connection with women with...
... I was just reading through the messages and realized you sent me a post. Thank you so much. I can't imagine how hard it must be for you to be dealing...
... I was just reading posts again and didn't realize Claire was unable to talk completely. I can't imagine what you must go through on a daily basis. It...
Yes Sue. Claire has the VNS implant. It hasn't worked as well as we had hoped. God Bless!! In Jesus' Name, Diana ... From: SUE OWNBY <s_042620@...> To:...
When Lars had his placed, we were told 1/3 of the patients had great control, 1/3 had some control and 1/3 had no control. His seizures were so out-of-control,...
Hi Sherry: Claire can't speak, but I can tell when she's getting ready to go into a seizure. We use the magnet, but, that doesn't seem to stop them at all. ...
Do you find that the VNS at least shortens the seizures or makes them milder? That was the main effect that we found with Lars - they weren't immediately...
Sherry: It seems as though when we first had the VNS implanted, we were getting good results, but as time went on, it seems as though it quit working ~ The...
I'm assuming that the VNS is being checked regularly by the neuro? Has it been "upped" at all? Illness can certainly affect the seizures. Stress affects them...
Oh yes, her neuro checks it. He has adjusted it many times, with no different results. I believe Claire is allergic to Lamictal also, because, when we reached...
hey there isn't a cure all for this. one thing that helps is to just be patceint. also to let them try and be normal. Deborah ... hard time ... that by ... of...
There may not be a "cure" but with the proper meds, hopefully the seizures can be better controlled. My step-son told me a few years back that it wouldn't get...
hey does he "see" people who aren't there? I did that alot. i also whent insane on a med. i came at my brother with a knife!! it scared everybody but after we...
Well, not people, but he did have quite an active imagination <g> Celontin set him back mentally - he said he had to learn to walk and talk again (but then he...
My girl is allergic to Lamictal. We've tried it twice and both times she became so ataxic (dizzy-no balance) she couldn't even sit up, let alone walk. It's...
Forgot to mention one plus from the VNS surgery .... Blissfully, my son does experience a positive side effect since his VNS .... his mood is much more jovial....
Hi Paula: I want you to know that my thoughts and prayers are with you and your family. I pray that you will continue to see better and better results from...
I'm on Lamictal and it makes me like a nut. I told my neurologist and he says it's not he meds, so I guess he wants me to remain a nut. ... From: SUE OWNBY...
Claire's neurologist tried to tell me that it wasn't the Lamictal also. But I told him I wanted her off of the med because everytime she took it, she would...
Paula - it's so amazing to me, the diversity of the seizures. We have just about every type/severity represented on this list! I'm glad to see it grow. I've...
... Cent_Wa_Epilepsy_Support@yahoogroups.com<mailto:Cent_Wa_Epilepsy_Suppo rt@yahoogroups.com> ... List! ... and he says it's not he meds, so I guess he wants...
Hi Jess: Claire was able to speak, walk and function up until the major seizure in 1999. It's only since then, because of the brain damage that the seizure...
... seizure in 1999. It's only since then, because of the brain damage that the seizure caused, that she is totally disabled. She's made some progress and is...
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