hey does he "see" people who aren't there? I did that alot. i also
whent insane on a med. i came at my brother with a knife!! it scared
everybody but after we fixed it we all though it was funny.

Deborah

--- In Cent_Wa_Epilepsy_Support@yahoogroups.com, Sherry
<hot.rod.wife@...> wrote:
>
> There may not be a "cure" but with the proper meds, hopefully the
seizures
> can be better controlled. My step-son told me a few years back
that it
> wouldn't get any better than it was. Well, at that time, he was
having a
> really nasty time with seizures and I said "I won't give up
trying"! It's
> been 5 years of trying different meds and with the last increase in
his
> felbatol, we're hoping they'll be even better than they were!
>
> He's leading an almost normal life now, so much better (and
happier!) than
> one could ever hope. He's out of the dark hole he was in and I'm
convinced
> that even though he might have not been having an evident seizure
his brain
> was so scrambled that his thoughts were confused and murky and he
was living
> in a fantasy world, not knowing what was real and what wasn't, not
being
> able to function normally even mentally.
>
> There's still some mental difficulties and I wouldn't trust him to
live
> alone, but they're so much better than they were! We're
fortunately he's in
> an excellent adult family home.
>
> Sherry
>
> -----Original Message-----
> From: Cent_Wa_Epilepsy_Support@yahoogroups.com
> [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of
Deborah
> Sent: Thursday, June 26, 2008 11:23 PM
> To: Cent_Wa_Epilepsy_Support@yahoogroups.com
> Subject: [Cent_Wa_Epilepsy_Support] Re: Roll Call for our List!
>
> hey there isn't a cure all for this. one thing that helps is to just
> be patceint. also to let them try and be normal.
> Deborah
>
> --- In Cent_Wa_Epilepsy_Support@yahoogroups.com, Sherry
> <hot.rod.wife@> wrote:
> >
> > Do you find that the VNS at least shortens the seizures or makes
them
> > milder? That was the main effect that we found with Lars - they
weren't
> > immediately aborted but they were much shorter some of the
time....
> >
> > However, when he goes into a "cluster" nothing helps! We have a
> hard time
> > getting him to take his Ativan because he's so out of it and I
think
> that by
> > the time he's aware enough to take the Ativan that he's coming out
> of the
> > cluster anyway! The Ativan does help keep him from getting more
for
> a few
> > hours.
> >
> > Thank God the clusters are much milder and less frequent on the
> felbatol!
> >
> > Sherry
>