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just chating   Message List  
Reply | Forward Message #578 of 894 |
RE: [Cent_Wa_Epilepsy_Support] just chating

My step-son is 37 and has had uncontrolled seizures since he was 12. He
moved to our area 6 years ago and we're working with a neuro at Harborview
Regional Epilepsy Center in Seattle and he's getting better control... but
it's all relative. At least he doesn't have full-blown grand mals any more
and the complex partials are more like simple partials. Since he started on
felbatol (along with the Keppra and Lyrica), he's having a lot less falls
but he still has a lot of clusters. He is going a few days between seizures
now. And rare is the day when he has only one.

Sherry



-----Original message-----
From: Cent_Wa_Epilepsy_Support@yahoogroups.com
[mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of Joellen Bley
Sent: Saturday, March 15, 2008 6:30 PM
To: Cent_Wa_Epilepsy_Support@yahoogroups.com
Subject: Re: [Cent_Wa_Epilepsy_Support] just chating

Hi, I just signed up to try to meet people around my age with Epilepsy that
are experiencing the same things as me.




Sun Mar 16, 2008 4:21 am

sherdh
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Message #578 of 894 |
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Hi, I'm Jgirl. I'm 29 and have had Epilepsy for over 24 years. Are there any individuals that experience seizures? ...
Joellen Bley
joellenlb
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Mar 15, 2008
3:25 am

Hi Joellen, I am not the epileptic in my family, by 9 year old daughter is, but she has been experiencing seizures since she was 6. Can we help in any way? ...
intoxicatrix
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Mar 15, 2008
3:46 pm

Hi, I just signed up to try to meet people around my age with Epilepsy that are experiencing the same things as me. ... From: Intoxicatrix...
Joellen Bley
joellenlb
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Mar 16, 2008
1:29 am

My step-son is 37 and has had uncontrolled seizures since he was 12. He moved to our area 6 years ago and we're working with a neuro at Harborview Regional...
Sherry
sherdh
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Mar 16, 2008
4:21 am

I've got a 14 y.o. daughter with seizures....so I'm the Mom, but there's lots of people on here willing to chat! I understand how important to find people...
SUE OWNBY
sue_ownby
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Mar 16, 2008
1:55 am

Thank you Sue. It's just real hard to find people. Most people my age can drive and are out having fun right now. But since I don't drive I'm just sitting at...
Joellen Bley
joellenlb
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Mar 16, 2008
2:57 am

Don't you have any friends who can take you out with them? What about public transportation? Where do you live? There should be accessible transportation...
Sherry
sherdh
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Mar 16, 2008
4:21 am
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