----- Original Message -----

From: Paula Thalmann

To: Cent_Wa_Epilepsy_Support@yahoogroups.com

Sent: Friday, January 18, 2008 8:24 AM

Subject: Re: [Cent_Wa_Epilepsy_Support] New Member

Hi Sue and Bonnie,

 

Thanks for the welcome messages!  It will be nice to have and give cyber support from this group.  Sue ... I'd be happy to answer all of your questions re: our VNS journey! Bonnie ... we've used lorazepam (Ativan) as well for when my son has what I refer to as breakthrough storms.  My hubby and I were just talking about the Ketogenic diet.  While we don't follow it, I do notice that his diet/exercise does influence his seizure activity.   I guess that makes sense for everybody, though.  :-)

 

Time to go start school.  Oh, that's another thing.  This is our second year that we homeschool our son.  He's always done very well academically; however, he was missing so much school due to seizure related activity or doctor appointments or whatever.  He had attended private school prior to that, and the school was very, very supportive.  All last year and now this year, they continue to maintain close contact with us.  Last year, I actually homeschooled all three of our kids.  My son has a twin sister and a younger sister.  It was a fantastic year and I'm so thankful that we had that year all together.  This year, my girls are back at our old private school and are doing great, too.

 

Have a great weekend,

Paula

 

 

----- Original Message -----

From: Bonnie Shonholtz

To: cent_wa_epilepsy_support@yahoogroups.com

Sent: Thursday, January 17, 2008 11:10 PM

Subject: RE: [Cent_Wa_Epilepsy_Support] New Member

Hi Paula -
 
Welcome to the group!. We live in Oregon also - Monmouth. Our seventeen year old daughter, Blair, had her VNS surgery six years ago.  She is also on depakote, lorazepam, zonagran, and diamox. We also did the Ketogenic diet when she was six and stayed with it for two years. We also had a couple of horrendous allergic reactions (erythema multiforme) to felbatol and lamictal. Blair is what I call "blissfully" develpmentally delayed and is a happy camper 99% of the time.
 
Bonnie

Subject: [Cent_Wa_Epilepsy_Support] New Member

Just a quick note to say hello and introduce myself. I am your
neighbor to the south -- we live in Oregon. My son, now age 12, has
had seizures since he was six. He's endured the gauntlet of symptoms,
diagnostic testing, horrific bout of Steven's Johnson Syndrome (toxic
reaction of Motrin), and of course anti-seizure medications. In
October, he had VNS surgery, and we are hopeful that it will help
control his seizure activity. He presently is experiencing only
nocturnal seizures ... whoever thought I'd be thankful for JUST
nocturnal seizures. His current mix of meds includes daily dosages of
Trileptal, Neurontin, and Tranxene. He's such a great kid and a real
trooper. He always faces each day with a positive attitude; he's an
all around good egg.

Anyway, I'm looking forward to the dialog exchanges on this board. Are
there others participating who have young children facing similar
challenges? It will be great to gain additional insight from others.

Paula

---

Climb to the top of the charts!  Play the word scramble challenge with star power. Play now!