Sue,

Why is the wait so long? Does she have to go through Children's? My
step-son (he is an adult, though) goes to HarborView Regional Epilepsy
Center. They have specialists in pediatric neurology.
http://pcs.hmc.washington.edu/Epilepsy/AboutUs/index.htm

The only delay for his VNS placement was waiting on the state to approve
Medicaid coverage of the procedure! His VNS has helped, but he still has
way too many seizures. Besides the VNS, Lars is on Keppra, Lyrica and
Felbatol. He's just starting to ramp up on the felbatol and we've
definitely seen some changes there. However, it's a very scary drug and he
needs regular blood monitoring because of the potential of aplastic anemia
and acute liver failure.

We've been extremely happy with the care and concern that his neuro has for
him. The doc will do just about anything he can to help Lars get the
services he needs! "Nurse Lynne" is absolutely awesome!

Do take a look into the clinic.

Sherry

-----Original message-----
From: Cent_Wa_Epilepsy_Support@yahoogroups.com
[mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of SUE OWNBY
Sent: Thursday, January 17, 2008 8:54 PM
To: Cent_Wa_Epilepsy_Support@yahoogroups.com
Subject: Re: [Cent_Wa_Epilepsy_Support] New Member

Paula,
 
I so look forward to talking to you in the future.  I have a 13 y.o.
daughter with seizures.  I don't have much time to chat now, but I wanted to
welcome you to the group!  I especially am interested in hearing about the
VNS.  We've been on a waiting list for over a year to get into a doctor at
Children's hospital in Seattle to talk about it!
 
Best wishes,
Sue