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Reply | Forward Message #514 of 891 |
New Member

Just a quick note to say hello and introduce myself. I am your
neighbor to the south -- we live in Oregon. My son, now age 12, has
had seizures since he was six. He's endured the gauntlet of symptoms,
diagnostic testing, horrific bout of Steven's Johnson Syndrome (toxic
reaction of Motrin), and of course anti-seizure medications. In
October, he had VNS surgery, and we are hopeful that it will help
control his seizure activity. He presently is experiencing only
nocturnal seizures ... whoever thought I'd be thankful for JUST
nocturnal seizures. His current mix of meds includes daily dosages of
Trileptal, Neurontin, and Tranxene. He's such a great kid and a real
trooper. He always faces each day with a positive attitude; he's an
all around good egg.

Anyway, I'm looking forward to the dialog exchanges on this board. Are
there others participating who have young children facing similar
challenges? It will be great to gain additional insight from others.

Paula




Thu Jan 17, 2008 4:31 am

thalmannmom
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Message #514 of 891 |
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Hi, I am new to this group. I was just wondering how this group came about and what kinds of things do you talk about? I have a 29 year old daughter who was...
carecare88
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Mar 13, 2006
7:21 pm

Hey, My son is 20 and I found out he has had epilepsy his whole life but only got "diagnosed" when he was 19. I am curious so sorry if I ask a lot of ...
Justin & Sam
justsams2
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Mar 14, 2006
1:23 am

Just a quick note to say hello and introduce myself. I am your neighbor to the south -- we live in Oregon. My son, now age 12, has had seizures since he was...
thalmannmom
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Jan 17, 2008
4:31 am

Hi Paula - Welcome to the group!. We live in Oregon also - Monmouth. Our seventeen year old daughter, Blair, had her VNS surgery six years ago. She is also on...
Bonnie Shonholtz
blairinspira...
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Jan 18, 2008
7:11 am

Paula, I so look forward to talking to you in the future. I have a 13 y.o. daughter with seizures. I don't have much time to chat now, but I wanted to...
SUE OWNBY
sue_ownby
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Jan 18, 2008
4:54 am

Sue, Why is the wait so long? Does she have to go through Children's? My step-son (he is an adult, though) goes to HarborView Regional Epilepsy Center. They...
Sherry
sherdh
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Jan 18, 2008
4:23 pm

Hi Sue and Bonnie, Thanks for the welcome messages! It will be nice to have and give cyber support from this group. Sue ... I'd be happy to answer all of...
Paula Thalmann
thalmannmom
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Jan 18, 2008
4:25 pm

She has her regular neuro there which we can get into anytime we wish...but we've been waiting for a specialist in mitochondrial disorders for this whole time....
SUE OWNBY
sue_ownby
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Jan 19, 2008
12:58 am

T/C’s??? Is that Tonic-Clonic? Boy, Lars would be *so* happy to have only two seizures of any kind per month! I can honestly say I've witnessed thousands...
Sherry
sherdh
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Jan 19, 2008
9:33 pm

Oh ~ school. That's been a little stressful. Chelsi is slightly developmentally delayed. She get's help in reading and math in special ed and in mainstream...
SUE OWNBY
sue_ownby
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Jan 19, 2008
1:00 am

Hi Sue, I really feel for you. It's so hard to watch anyone experience a seizure, and doubly so when it's your own child. That must have been really hard...
Paula Thalmann
thalmannmom
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Jan 19, 2008
10:44 pm

Ahweey, Yes - Tonic Clonic. I can't imagine the road that you've traveled with Lars! We can always only hope that they decrease, so matter what the...
SUE OWNBY
sue_ownby
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Jan 20, 2008
3:11 am

Paula, I can so relate to you email. Especially the word "despair". I do feel like that at times. If I hear a "thunk" at the other end of the house, I come...
SUE OWNBY
sue_ownby
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Jan 20, 2008
3:22 am

Hi All: My name is Diana and my husband is Glyn. We have an beautiful 11 year old daughter (Claire) who was diagnosed with epilepsy at the age of 4 months...
savedbygrace77777
savedbygrace...
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Apr 8, 2008
5:30 pm

Diana ~ thank you for telling us your story, as sad as it is. I'm so sorry that Claire and your family have had to go through this. I will pray for success,...
SUE OWNBY
sue_ownby
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Apr 9, 2008
1:58 am

Sue-Thanks for your prayers and compassion. God Bless!! In Jesus' Name, Diana ... From: SUE OWNBY <s_042620@...> To:...
Diana Trahan
savedbygrace...
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Apr 9, 2008
11:26 am

... so sorry that Claire and your family have had to go through this. ... age ... quite ... Feb. ... not ... nor ... sockets. ... getting ... now ... by ... ...
savedbygrace77777
savedbygrace...
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Apr 9, 2008
11:35 am

Hi, my husband is 42 and has recently been diagnosed, 3 months ago. We went to the doctor with what was then a seizure a year. I wasn't even willing to call...
tinecnn
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Jun 19, 2009
11:23 pm
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