Subject: [Cent_Wa_Epilepsy_Support] Parent Support Group in Seattle
Dear Parents:
We are starting a new support group for parents and caregivers. The group will meet every other month on Saturdays from 10am till noon. Our first meeting took place this Saturday, 11 people attended. We had non-stop, lively conversations for the full two hours!
The next meeting will be on March 8th. The topic is "Navigating within the school system." A parent advocate from Washington PAVE will be there to speak and answer questions. The presentation will be followed by a discussion and plenty of time for networking.
Please let me know if anyone would like to join the group mailing list and receive e-mail reminders for the support group meetings.
Seattle Parent-Caregiver Support Group Seattle,WA 10:00 a.m. - 12:00 p.m. Saturday, March 8, 2008
Second Saturday of January, March, May, July and September.
A brief (30-40 min) educational presentation will be followed by a Q&A session, a discussion and plenty of networking opportunities. Come learn a few things and meet people who know where you are coming from.
The exact meeting location will be provided via e-mail. Please contact msterling@epilepsynw.org to subscribe to the Parent-Caregiver Support Group e-mail list.
3/8/08 "How to Navigate within the School System" Speaker: Vanessa Lawis, Washington PAVE
Howdy y'all. Hope your summer was good! Have any of you had any experience with Felbatol (felbamate)? Lars seizures have gotten really bad - very frequent...
I don't know anything about the drug. I also don't know anything about his neuro, but I've started seeing David Vossler, he's at Valley in Renton now, was...
Lynn, Dr. Holmes is with the Regional Epilepsy Center at Harborview/UW and is a researcher and associate professor as well as an excellent, personable ...
Sherry, I'm glad you have such wonderful doctors. I'm fairly new to Epilepsy, so I probably should have kept my big mouth shut. I've only been diagnosed...
Lynn, Oh, I fully understand the fear! He can be talking with you and down he goes right in the middle of a sentence! There have been more times that we've...
Hi Sue, I do not know if you were sending it to all of us in the support group or just Sherry, but this is Eric. Thanks any way Eric eda4665@... ... ...
I am so sorry I just saw this... My son was on felbatol and it helped greatly with his TC's. You do have to weigh the pro's and con's.. Con: side effects.......
Missy, Not a problem - better late than never <g>. Lars seems to be doing pretty well. He's up to 2400 mg a day now, labs are fine and his seizures are ...
Dear Parents: We are starting a new support group for parents and caregivers. The group will meet every other month on Saturdays from 10am till noon. Our...
Mineko, I would love to come but it is a 5 hour drive heh heh. We just found out today THE day 7 years ago that Kevin had his first seizure... That Kevin is...
Missy, It's great news that Kevin is going to DC to attend Kids Speak Up!! I am sure he will be a perfect advocate! I won't be joining you, but Alta from...
Mineko, Oh my gosh, thank you for posting this link. I am new to this group and have never heard of the Epilepsy Foundation Northwest before. My 12 year old...
Thank you so much for these links. They are wonderful! I mentioned the camp to my son ... he's 12 ... and he wants to go. No hesitation at all on his part....
Felbamate. Sherry ... From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of SUE OWNBY Sent: Wednesday,...
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