I'm glad you have such wonderful doctors. I'm fairly new to Epilepsy, so I probably should have kept my big mouth shut. I've only been diagnosed since May of 2006. When I read everyone's stories, I find it hard to feel sorry for myself because I've had a total of three Tonic-Clonic seizures that we know of, but multiple simple partial aura seizures. I haven't had anything since going on meds a year and a half ago. Reading stories like Lars' makes me feel pretty humbled and lucky. I freak out about the thought of having ANY seizures, as I am home alone with my children much of the time, so I can't imagine what it must be like to live with so many seizures. I would be totally paralyzed with fear and unable to function. I really admire anyone with this affliction who lives a "normal" life while dealing with seizures. I know I couldn't handle it. I literally have panic attacks even thinking about having a seizure and sometimes I have to take Ativan just to calm down. It's pathetic, really. =) Best of luck with Lars, I hope this new treatment works out. Take care.
Howdy y'all. Hope your summer was good! Have any of you had any experience with Felbatol (felbamate)? Lars seizures have gotten really bad - very frequent...
I don't know anything about the drug. I also don't know anything about his neuro, but I've started seeing David Vossler, he's at Valley in Renton now, was...
Lynn, Dr. Holmes is with the Regional Epilepsy Center at Harborview/UW and is a researcher and associate professor as well as an excellent, personable ...
Sherry, I'm glad you have such wonderful doctors. I'm fairly new to Epilepsy, so I probably should have kept my big mouth shut. I've only been diagnosed...
Lynn, Oh, I fully understand the fear! He can be talking with you and down he goes right in the middle of a sentence! There have been more times that we've...
Hi Sue, I do not know if you were sending it to all of us in the support group or just Sherry, but this is Eric. Thanks any way Eric eda4665@... ... ...
I am so sorry I just saw this... My son was on felbatol and it helped greatly with his TC's. You do have to weigh the pro's and con's.. Con: side effects.......
Missy, Not a problem - better late than never <g>. Lars seems to be doing pretty well. He's up to 2400 mg a day now, labs are fine and his seizures are ...
Dear Parents: We are starting a new support group for parents and caregivers. The group will meet every other month on Saturdays from 10am till noon. Our...
Mineko, I would love to come but it is a 5 hour drive heh heh. We just found out today THE day 7 years ago that Kevin had his first seizure... That Kevin is...
Missy, It's great news that Kevin is going to DC to attend Kids Speak Up!! I am sure he will be a perfect advocate! I won't be joining you, but Alta from...
Mineko, Oh my gosh, thank you for posting this link. I am new to this group and have never heard of the Epilepsy Foundation Northwest before. My 12 year old...
Thank you so much for these links. They are wonderful! I mentioned the camp to my son ... he's 12 ... and he wants to go. No hesitation at all on his part....
Felbamate. Sherry ... From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of SUE OWNBY Sent: Wednesday,...