Search the web
Sign In
New User? Sign Up
Cent_Wa_Epilepsy_Support · Central Washington Epilepsy Support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Message search is now enhanced, find messages faster. Take it for a spin.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
New to the group   Message List  
Reply | Forward Message #491 of 894 |
Re: New to the group

In the past, before my spells were as well controlled as they are
now, I've lost jobs due to my siezures. One job involved a 100 mile
daily commute, so once I had to do a med change and lost my driving
priveleges I couldn't get to work. I imagine that kind of
information comes up during the reference checks...of course they
can't ask medical questions while interviewing, but they do inquire
as to the reasons why the job ended.

Now that I've been siezure free for two years, some doctors might say
that I'm no longer an Epileptic, so explaining my condition at this
stage is kind of difficult. Basically I'm only dealing with the side
effects of the meds, and since that may affect my work performance I
feel like I need to be prepared to explain it since I don't want my
employer thinking I'm coming to work intoxicated.


--- In Cent_Wa_Epilepsy_Support@yahoogroups.com, Sherry
<hot.rod.wife@...> wrote:
>
> I feel for you. My step-son is on three different meds and has a
VNS and
> his seizures still aren't controlled! He pretty much has to tell a
> potential employer that he has seizures because it's a given that
he will
> have seizures while working. He's doing a volunteer job at the
YMCA once a
> week for two hours and I was talking with the volunteer coordinator
the
> other day - she said that he frequently has seizures there.
They're awesome
> at the Y - of course, they're all trained in first aid and they're
really
> not too bothered by his seizures. He does have a helmet from
Plument that
> he wears there and will wear if he ever gets a job. But he refused
to wear
> it any other time. Their website is
> http://www.plument.com/protectacapplus.htm - it's a lot lighter
helmet than
> the plastic type.
>
> DVR has contracted with NW Center to help him find a job - they
even create
> jobs for people, working in conjunction with local businesses - and
NW
> Center's having a heck of a time finding something that he can
safely do.
> He just wants a few hours a week to get him out of the house and
give him a
> little extra spending money. I'm sure he's aware that he'll never
be able to
> be a productive member of society.
>
> When Lars went to "Job Club" at the Harborview Neuro Rehab center,
the
> leader told the participants to *not* disclose their seizures
during the
> interview process if they're not going to interfere with the work.
> Afterwards, maybe yes, maybe no. There's no requirement to
disclose a
> disability if you can successfully do the job without it being a
> consideration.
>
> How would they find out about the seizures during a reference
check? I
> don't think a previous employer can disclose medical
information.....
>
> Sherry
>
> -----Original Message-----
> From: Cent_Wa_Epilepsy_Support@yahoogroups.com
> [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of Tom
> Sent: Tuesday, May 29, 2007 11:24 PM
> To: Cent_Wa_Epilepsy_Support@yahoogroups.com
> Subject: [Cent_Wa_Epilepsy_Support] New to the group
>
> I've been taking medications for siezures since 1983, and you'd
think that
> after this amount of time I would have overcome every obsticle. But
> unfortunately, the one I can never seem to conquer is ignorance. I
haven't
> had a siezure since 2004, but I know better than to tell anyone
what I take
> meds for because it will lead to difficulties finding a job,
holding onto a
> job, or just people acting like I'm too fragile to function in
society.
>
> I could use any advice anyone may have on how to disclose epilespy
to an
> employer when you're seeking employment, or possibly suggest
somewhere I
> could apply for a job and not have to worry about discrimination.
I've been
> applying for state jobs for the last year and even though I'm
qualified for
> the positions, I keep being turned down. I have a feeling that
once they
> start checking references and find out about my history of
siezures, they
> end up filling the positions with someone without a history of
siezures.
>
> I hope this doesn't sound too paranoid...it's been 20 years since
I've
> actually had an employer tell me I wasn't hired due to my
> seizures, and that was before the ADA.
>





Thu May 31, 2007 1:34 am

tomdaltonz
Offline Offline
Send Email Send Email

Forward
Message #491 of 894 |
Expand Messages Author Sort by Date

Hello my Name is Heidi, im 26, I was born with Epilepsy, I have myoclonic tonic nocturnal juvinelle epilepsy. I am trying to find info on 2 things... #1 trying...
ask me and I will tell
hwohrman23
Offline Send Email
Oct 26, 2006
9:30 pm

... an epilepsy foundation...
ask me and I will tell
hwohrman23
Offline Send Email
Oct 26, 2006
9:44 pm

Heidi: You can find some scholarship information here; Search for "epiepsy scholarship" in any search engine to get more (many are local and may not apply to...
Rachel Murillo
rocrachel
Offline Send Email
Oct 26, 2006
9:48 pm

Hi, Is anyone interested in coming to this conference? It is free of charge, and travel assistance is available for those with limited resources. Please ...
Mineko Sterling
mineko_from_...
Offline Send Email
Oct 27, 2006
8:28 pm

Sounds like you've already gotten some good advice. I just wanted to say "HI" and welcome to the list! I have a 12 year old daughter (Chelsi) with...
Mrmrssoso@...
sue_ownby
Offline Send Email
Oct 28, 2006
8:15 pm

Hi Sue, Thank you for the welcome. =) I honestly dont remember if the two came at the same time, mine were very spiratic, just like you described nothing for a...
Heidi
hwohrman23
Offline Send Email
Oct 30, 2006
4:15 pm

Thanks Heidi! Sorry it's taken so long to respond, but I've been a bit under the weather myself. Take care, Sue In a message dated 10/30/2006 8:33:34 A.M....
Mrmrssoso@...
sue_ownby
Offline Send Email
Nov 5, 2006
9:44 pm

Howdy, I was just approved to join the group and thought I'd introduce myself. I don't have epilepsy, but my 36 year old step-son does. He's had uncontrolled...
Sherry
sherdh
Offline Send Email
May 5, 2007
11:07 pm

Sherry: Your son's epilepsy sounds very much like my husband's. My husband is on Dilantin, Depakote, and Lyrica. Lyrica is the newest for him - replacing...
Rachel Murillo
rocrachel
Offline Send Email
May 6, 2007
3:22 pm

Thanks Rachel. I guess for some people the seizures can be embarrassing. Lars is allergic to so many of the seizure meds - dilantin, tegretol, lamictal. He...
Sherry
sherdh
Offline Send Email
May 6, 2007
4:18 pm

Sherry: I can understand - right now my husband hasn't had a seizure in about 3 weeks. But, durring the time I call the "dark ages", he would have several...
Rachel Murillo
rocrachel
Offline Send Email
May 6, 2007
10:48 pm

Yeah, Lars is considered DD because his disability started before he was 18. He's in "the system" which really helped for him to get the housing assistance he...
Sherry
sherdh
Offline Send Email
May 7, 2007
2:59 am

Welcome Sherry! I hope you find the support your looking for h ere. I started this group as a way for us to hook up between meetings, but it seems we're all...
SUE OWNBY
sue_ownby
Offline Send Email
May 6, 2007
8:44 pm

Wow, if Lars had only 1 or 2 seizures every month, he'd consider himself seizure free! A couple weeks ago, we were at DisneyWorld in Orlando. He had over 40...
Sherry
sherdh
Offline Send Email
May 6, 2007
10:04 pm

Rachel & Sherry, Today is the first day I've heard of Lyrica. Is it a new drug? We'll be looking at some different options for Chelsi. You've both also...
SUE OWNBY
sue_ownby
Offline Send Email
May 6, 2007
8:47 pm

Sue, Lyrica's been around for awhile. Lars has been on it for over a year now. It can cause some weight gain, but not as much as Depakote. Lars does have a...
Sherry
sherdh
Offline Send Email
May 6, 2007
9:59 pm

Thanks so much for the info. I've never seen a helmet like that. Someone needs to design something that doesn't look like a diaper! Hearing your story does...
SUE OWNBY
sue_ownby
Offline Send Email
May 7, 2007
3:56 am

ROFL! I never thought of it as looking like a diaper <g> If the white edging wasn't there, it'd look a lot better! Maybe we should write to them and suggest...
Sherry
sherdh
Offline Send Email
May 7, 2007
2:51 pm

Hi Rachel. I can identify with some of what you describe your husband going through, although my epilepsy is comparatively mild, at this point. I started...
Tony Diaz
adiaz7seattle
Offline Send Email
May 7, 2007
10:21 pm

There was a time that my daughter did have 3 grand mals in one week. The school wanted me to consider a helmet. At that time she was so short, she didn't...
SUE OWNBY
sue_ownby
Offline Send Email
May 9, 2007
1:20 am

I've been taking medications for siezures since 1983, and you'd think that after this amount of time I would have overcome every obsticle. But unfortunately,...
Tom
tomdaltonz
Offline Send Email
May 30, 2007
6:24 am

Tom: That is one of my husband's fears, as well. He was siezure free for many years and simply didn't disclose it. I'm pretty sure that your previous...
Rachel Murillo
rocrachel
Offline Send Email
May 30, 2007
3:50 pm

I feel for you. My step-son is on three different meds and has a VNS and his seizures still aren't controlled! He pretty much has to tell a potential...
Sherry
sherdh
Offline Send Email
May 30, 2007
4:42 pm

In the past, before my spells were as well controlled as they are now, I've lost jobs due to my siezures. One job involved a 100 mile daily commute, so once I...
Tom
tomdaltonz
Offline Send Email
May 31, 2007
1:35 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help