Search the web
Sign In
New User? Sign Up
Cent_Wa_Epilepsy_Support · Central Washington Epilepsy Support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
curious   Message List  
Reply | Forward Message #428 of 894 |
Re: curious

I am 32; I joined this group because my husband has epilepsy and I
wanted to see how others are dealing with their epilepsy. My
husband doesn't like to talk to other people about his epilepsy, so
I reach out to learn more whenever I can. His siezures are not
under control, and have significanly worsened over the last 3
years. We are not planning on having children because so much time,
energy, and money is devoted to taking care of him. He has seizures
every day - and no aura or warning - which makes him afraid to have
young children (especially babies) around.

There is a support group here in Seattle through the Epilepsy
Foundation. You can find more information here:
http://www.epilepsyfoundation.org/local/northwest/groups.cfm

There is a party tonight if you would like to go:

The Annual Epilepsy Foundation Northwest Holiday Party is this
Wednesday, December 20th starting at 6:30 pm
Please bring a plate of finger food and a "white elephant" gift
(inexpensive, gently used and/or humorous) to exchange.
Beverages will be provided.
Adults, teens, children, families, friends, professionals all
invited!!
Location: Lindaman Center, 315 W. Mission (SE corner of Mission and
Washington) Parking on the E. side of the building in the unpaved
lot. Use stairs in back or call to arrange for accessible entrance.


-Rachel

--- In Cent_Wa_Epilepsy_Support@yahoogroups.com, "lllynn01"
<LMEvans926@...> wrote:
>
> I just wondered how many people on this group actually have
Epilepsy
> themselves? I am looking to dialogue with adults who are dealing
with
> Epilepsy on a daily basis. I'm curious about things like, are
your
> seizures under control? How often do you typically have them? Do
you
> find yourself constantly wondering where and when your next
seizure
> will hit? What about families with young children? How do you
deal
> with the possibility of having a seizure when alone with your
kids?
> Pregnancy issues, etc. I live in the Seattle area and you'd think
> there would be some kind of support group locally, but I haven't
found
> any thus far. Thanks, in advance, for your input.
>
> Lynn
>





Wed Dec 20, 2006 5:00 pm

rocrachel
Offline Offline
Send Email Send Email

Forward
Message #428 of 894 |
Expand Messages Author Sort by Date

I just wondered how many people on this group actually have Epilepsy themselves? I am looking to dialogue with adults who are dealing with Epilepsy on a daily...
lllynn01
Offline Send Email
Dec 20, 2006
3:52 am

Hello My name is Heidi im 26, I have was born with Epilepsy, however it did not make its grand appearance until I was 10. The kind of epilepsy I have I only...
Heidi
hwohrman23
Offline Send Email
Dec 20, 2006
4:12 pm

I am 32; I joined this group because my husband has epilepsy and I wanted to see how others are dealing with their epilepsy. My husband doesn't like to talk...
Rachel Murillo
rocrachel
Offline Send Email
Dec 20, 2006
5:03 pm

Heidi, I tried to reply to your email directly, but it bounced back, saying you do not have a yahoo account, which you obviously do. Let me know what...
LMEvans926@...
lllynn01
Offline Send Email
Dec 20, 2006
5:56 pm

weird! were tou able to read my original post? LMEvans926@... wrote: Heidi, I tried to reply to your email directly, but it bounced back, saying you do not...
Heidi
hwohrman23
Offline Send Email
Dec 20, 2006
6:01 pm

Heidi, I tried to reply to your email directly, but it bounced back, saying you do not have a yahoo account, which you obviously do. Let me know what...
ask me and I will tell
hwohrman23
Offline Send Email
Dec 20, 2006
6:08 pm

Heidi, I tried to reply to your email directly, but it bounced back, saying you do not have a yahoo account, which you obviously do. Let me know what...
ask me and I will tell
hwohrman23
Offline Send Email
Dec 20, 2006
6:22 pm

Thanks for the information. I'll check out the site. Today is my youngest son's birthday, he's 4, so we already have plans this evening. I actually live...
LMEvans926@...
lllynn01
Offline Send Email
Dec 20, 2006
5:59 pm

I know Puyallup! (and I don't know much about the Seattle area - I've only been here 6 months). Have a great birthday-day with your son! Rachel ...
Rachel Murillo
rocrachel
Offline Send Email
Dec 20, 2006
6:31 pm

Hi Everyone, This is Mineko from the Epilepsy Foundation Northwest. I'm e-mailing you because I have information about our education and support groups. ...
Mineko Sterling
mineko_from_...
Offline Send Email
Dec 20, 2006
6:38 pm

Are there going to be any support groups for caregivers in the near future? I have had some interest in it again. Joe G Mineko Sterling...
joe galant
galantjoe
Offline Send Email
Dec 27, 2006
2:36 am

Could you please let me know if a support group meets in Portland, OR. You mention Portland in this email, but no dates or times or places are listed. I see ...
Carol Maple
carecare88
Offline Send Email
Dec 27, 2006
4:40 pm

Hi Carol, Yes, there is a monthly support group in Portland. Sorry for the confusion; the schedules for 2007 support group meetings in Portland and Vancouver,...
Mineko Sterling
mineko_from_...
Offline Send Email
Dec 27, 2006
7:28 pm

Hi Joe, We are not planning to facilitate support group meetings for caregivers, but we will be organizing NETWORKING MEETINGS for children with epilepsy and ...
Mineko Sterling
mineko_from_...
Offline Send Email
Dec 27, 2006
7:39 pm

The groups that you are holding are great if you can make it during the day but what if you work and dont have the luxury of getting off for these meetings. It...
joe galant
galantjoe
Offline Send Email
Jan 5, 2007
3:58 am

Hi Joe, The networking group for families (children with epilepsy, their siblings, parents and caregivers) will meet on Saturday afternoons. Would it be a ...
Mineko Sterling
mineko_from_...
Offline Send Email
Jan 5, 2007
7:06 pm

Hi, I am e-mailing you about our upcoming educational seminar on children and adolescents with seizures. This free seminar will provide the opportunity to...
Mineko Sterling
mineko_from_...
Offline Send Email
Mar 20, 2007
11:03 pm

Hi Ann - This is Sue, the list owner. I have a 12 year old daughter with epilepsy There are several adults on this list with epilepsy, but it's been ...
Mrmrssoso@...
sue_ownby
Offline Send Email
Dec 20, 2006
9:15 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help