I am 32; I joined this group because my husband has epilepsy and I
wanted to see how others are dealing with their epilepsy. My
husband doesn't like to talk to other people about his epilepsy, so
I reach out to learn more whenever I can. His siezures are not
under control, and have significanly worsened over the last 3
years. We are not planning on having children because so much time,
energy, and money is devoted to taking care of him. He has seizures
every day - and no aura or warning - which makes him afraid to have
young children (especially babies) around.
There is a support group here in Seattle through the Epilepsy
Foundation. You can find more information here:
http://www.epilepsyfoundation.org/local/northwest/groups.cfm
There is a party tonight if you would like to go:
The Annual Epilepsy Foundation Northwest Holiday Party is this
Wednesday, December 20th starting at 6:30 pm
Please bring a plate of finger food and a "white elephant" gift
(inexpensive, gently used and/or humorous) to exchange.
Beverages will be provided.
Adults, teens, children, families, friends, professionals all
invited!!
Location: Lindaman Center, 315 W. Mission (SE corner of Mission and
Washington) Parking on the E. side of the building in the unpaved
lot. Use stairs in back or call to arrange for accessible entrance.
-Rachel
--- In Cent_Wa_Epilepsy_Support@yahoogroups.com, "lllynn01"
<LMEvans926@...> wrote:
>
> I just wondered how many people on this group actually have
Epilepsy
> themselves? I am looking to dialogue with adults who are dealing
with
> Epilepsy on a daily basis. I'm curious about things like, are
your
> seizures under control? How often do you typically have them? Do
you
> find yourself constantly wondering where and when your next
seizure
> will hit? What about families with young children? How do you
deal
> with the possibility of having a seizure when alone with your
kids?
> Pregnancy issues, etc. I live in the Seattle area and you'd think
> there would be some kind of support group locally, but I haven't
found
> any thus far. Thanks, in advance, for your input.
>
> Lynn
>