--- In Cent_Wa_Epilepsy_Support@yahoogroups.com, "ask me and I will
tell" <hwohrman23@...> wrote:
>
> Hello my Name is Heidi, im 26, I was born with Epilepsy,
> I have myoclonic tonic nocturnal juvinelle epilepsy.
>
> I am trying to find info on 2 things...
> #1 trying to get scholarship money for college (for myself)through
an epilepsy foundation
> #2 the effects of topomax or any other antiseizure drug prenatal or
> during pregnancy
>
> Thanks in advance!
> =)
>
Hello my Name is Heidi, im 26, I was born with Epilepsy, I have myoclonic tonic nocturnal juvinelle epilepsy. I am trying to find info on 2 things... #1 trying...
Heidi: You can find some scholarship information here; Search for "epiepsy scholarship" in any search engine to get more (many are local and may not apply to...
Hi, Is anyone interested in coming to this conference? It is free of charge, and travel assistance is available for those with limited resources. Please ...
Hi Sue, Thank you for the welcome. =) I honestly dont remember if the two came at the same time, mine were very spiratic, just like you described nothing for a...
Thanks Heidi! Sorry it's taken so long to respond, but I've been a bit under the weather myself. Take care, Sue In a message dated 10/30/2006 8:33:34 A.M....
Howdy, I was just approved to join the group and thought I'd introduce myself. I don't have epilepsy, but my 36 year old step-son does. He's had uncontrolled...
Sherry: Your son's epilepsy sounds very much like my husband's. My husband is on Dilantin, Depakote, and Lyrica. Lyrica is the newest for him - replacing...
Thanks Rachel. I guess for some people the seizures can be embarrassing. Lars is allergic to so many of the seizure meds - dilantin, tegretol, lamictal. He...
Sherry: I can understand - right now my husband hasn't had a seizure in about 3 weeks. But, durring the time I call the "dark ages", he would have several...
Yeah, Lars is considered DD because his disability started before he was 18. He's in "the system" which really helped for him to get the housing assistance he...
Welcome Sherry! I hope you find the support your looking for h ere. I started this group as a way for us to hook up between meetings, but it seems we're all...
Wow, if Lars had only 1 or 2 seizures every month, he'd consider himself seizure free! A couple weeks ago, we were at DisneyWorld in Orlando. He had over 40...
Rachel & Sherry, Today is the first day I've heard of Lyrica. Is it a new drug? We'll be looking at some different options for Chelsi. You've both also...
Sue, Lyrica's been around for awhile. Lars has been on it for over a year now. It can cause some weight gain, but not as much as Depakote. Lars does have a...
Thanks so much for the info. I've never seen a helmet like that. Someone needs to design something that doesn't look like a diaper! Hearing your story does...
ROFL! I never thought of it as looking like a diaper <g> If the white edging wasn't there, it'd look a lot better! Maybe we should write to them and suggest...
Hi Rachel. I can identify with some of what you describe your husband going through, although my epilepsy is comparatively mild, at this point. I started...
There was a time that my daughter did have 3 grand mals in one week. The school wanted me to consider a helmet. At that time she was so short, she didn't...
I've been taking medications for siezures since 1983, and you'd think that after this amount of time I would have overcome every obsticle. But unfortunately,...
Tom: That is one of my husband's fears, as well. He was siezure free for many years and simply didn't disclose it. I'm pretty sure that your previous...
I feel for you. My step-son is on three different meds and has a VNS and his seizures still aren't controlled! He pretty much has to tell a potential...
In the past, before my spells were as well controlled as they are now, I've lost jobs due to my siezures. One job involved a 100 mile daily commute, so once I...
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