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Hi everyone   Message List  
Reply | Forward Message #398 of 894 |
Re: [Cent_Wa_Epilepsy_Support] Hi everyone

Hi everyone,
I don't have epilepsy, but my husband does.  He was diagnosed 3 years ago when we were trying to find out where his seizures were coming from.  In the meantime during the numerous MRI's, we found that he also had a condition called Chiari Malformation.  He had decompression surgery in August 2005, developed Meningitis 2 weeks later.  During the surgery for the infection, the doctors broke off a 5 inch catheter in his spine which resulted in another surgery 1 week later!!
To say the least it's been a rough year for him.  He takes Keppra and Lamictal for his seizures.  He has two neuro's for his epilepsy, one in Everett and one at Harborview in Seattle.  He's just had a Dense Array EEG in September and we are awaiting the results of that.  It's nice to find a local support group for this  :)
 
Connie
Arlington
 
-------------- Original message --------------
From: Mrmrssoso@...

Hello again!
 
I see you found the list.  Welcome!  It's been a little quiet here lately, but hopefully you'll find someone to talk to.  I don't have epilepsy, but my 12 year old daughter does.  She took Lamictal before but got so dizzy, she couldn't walk.  So much for that one!
 
I hope you have a good doctor!  Where do you live?
 
Sue
Yakima
 
In a message dated 10/14/2006 9:32:04 A.M. Pacific Standard Time, emily_strelis@yahoo.com writes:

Hello there! I'd like to say that this is a great way to feel better about my epilepsy: knowing
that there are others out there like me. I had my first seizure in June of this year, and
another one two weeks ago, at work. Then another one this past thursday. Is it normal to
feel extremely depressed after an episode? And is it normal to be exhausted afterwards?
I'm on Lamictal and have been for about 5 weeks now. I'm almost through the starter pack.
I feel horrible every time I take it...I know that I need it but does that get better?
Thanks for letting me bend your ears.

 
 



Sun Oct 15, 2006 2:33 am

connie11612004
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Message #398 of 894 |
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Hello there! I'd like to say that this is a great way to feel better about my epilepsy: knowing that there are others out there like me. I had my first seizure...
emily_strelis
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Oct 14, 2006
4:31 pm

Hello again! I see you found the list. Welcome! It's been a little quiet here lately, but hopefully you'll find someone to talk to. I don't have epilepsy,...
Mrmrssoso@...
sue_ownby
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Oct 15, 2006
12:19 am

Hi Sue, Thanks for your response! So the Lamictal really can have side effects...I thought I was going crazy. I'm still taking it but it's making me...
Emily Strelis
emily_strelis
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Oct 15, 2006
6:15 am

Hi everyone, I don't have epilepsy, but my husband does. He was diagnosed 3 years ago when we were trying to find out where his seizures were coming from. In...
CTrav625@...
connie11612004
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Oct 15, 2006
3:01 am

Hi Emily, I don't have seizures but my 20 year old son does and before he was diagnosed I know that he was really depressed. He was having them at night so we...
Justin & Sam
justsams2
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Oct 15, 2006
6:33 pm

Hi Emily, We tried Lamictal twice. Granted - my daughter was only 4 at the time, and 8 the second time. Can't really tell you if she had less seizures with...
Mrmrssoso@...
sue_ownby
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Oct 18, 2006
4:20 am

Hi Sam & Everyone, Since my daughter (Chelsi) is 12, I think we're just starting the "I feel different because I have seizures" thing. I don't know how to...
Mrmrssoso@...
sue_ownby
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Oct 18, 2006
4:27 am

Hello... My name is Lynn. I'm new to this site. I was reading your post and I understand how you feel...at least I think I do. I was finally diagnosed in...
lllynn01
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Nov 15, 2006
10:29 pm

Hi Lynn. This is Blain, in Yakima, WA. I have Epilepsy. I read one of your emails that came too me on my email address, but I could not reply back from that....
shurmigel
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Dec 21, 2006
8:05 am
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