This is Sam, Josh’s
mom. He is now 20 and was “diagnosed” with epilepsy at the age of
19. I found out he has been having absent seizures his whole life and didn’t
know it. he is having a really hard time and I agree that if talks to someone
else that has seizure too it will help him a lot but I can’t get him to
do it. he has so many up and downs with his moods and most of the time says he doesn’t
have a reason to be happy or care. I’m really worried but know there isn’t
anything I can do. Any suggestions on how I can get him to talk to someone that
is having seizures? I tried to get him to check out the web page but he wouldn’t
and as far as I know there isn’t a support group close by, we live in
Tenino and he doesn’t drive.
Thanks,
Sam loving Josh
(probably too much and be overly protective, can’t help it L)
From:Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of Trina & Philip Knighten Sent: Monday, March 06, 2006 8:00
PM To:Cent_Wa_Epilepsy_Support@yahoogroups.com Subject: RE:
[Cent_Wa_Epilepsy_Support] Keppra
I myself take Keppra (2000 mg. a day) and I know the
side effect of being tired is very bad to begin with but then does get better
after about a couple weeks. I have been actually trying to get past that
myself. It's hard. Sorry to hear about the breakthroughs, that's what got me on
Keppra. Good luck and hey make sure he talks to someone else who is in the same
position he is, it's very hard to have seizures and discuss your feelings with
other people that don't truly know what you're talking about. It honestly
helps. Trina
From: "mysomevan14" <mysomevan14@...>
Reply-To: Cent_Wa_Epilepsy_Support@yahoogroups.com
To: Cent_Wa_Epilepsy_Support@yahoogroups.com
Subject: [Cent_Wa_Epilepsy_Support] Keppra
Date: Tue, 07 Mar 2006 00:03:20 -0000
Hi, I posted messages about my son Evan starting to
have seizures again after 3+ years of being seizure free. He has been
on Gabapentin most of that time and we were ready to totally take him
off (we had tried before when he was around 9).
So anyway... we've increased his dosage to the max
effective level and things seems to be going OK and then another
seizure after a week and half! Yesterday, his neurologist
suggested Keppra. We are starting him out low: 1/2 tab in the morning and
1/2 before bed. This morning after about a half hour after his
dose, he didn't want to eat and was almost acting 'drunk. Of course, my
son kept insisting he was fine while practically nodding
off. He's 14 and is tired of us worrying about him (No, there's no
chance he's drinking or anything...) I was wondering if anyone has had this effect.
Does this last or will it go away over time? We
have to keep increasing his dose and I'm already worried about
his school work as it is!
Hi, I posted messages about my son Evan starting to have seizures again after 3+ years of being seizure free. He has been on Gabapentin most of that time and...
My 11 year old daughter takes Keppra. 750mg 2x's per day. She's had absolutely no side effects from it....that's just been our experience. She also takes...
I myself take Keppra (2000 mg. a day) and I know the side effect of being tired is very bad to begin with but then does get better after about a couple weeks....
Good advice Trina. Wish I could convince my son of that. I tried get him to read some of what was on the web, he did but didn't really take it in because he...
Thanks Trina, Sue and Sam. I really appreciate hearing your experience. It's good to know that the sleepinessmight go away. We were also warned about ...
He could email me if he would like. That's why I am on this website. I'm 33 and have been looking for other people to talk to about how they deal with their...
Hi I may have asked this before and having a "duh" moment, but are there any EP groups in the Bremerton/Kitsap County area anyone knows of? If not that, EP's...
Hi, This is Sam, Josh's mom. He is now 20 and was "diagnosed" with epilepsy at the age of 19. I found out he has been having absent seizures his whole life and...
Hi, I don't know about the "drunk" effect but I was taking it for migraines and it changed my moods dramatically. So much I decided I would rather have ...
Well our Keppra journey did not last very long... We were doing 1/2 pill morning and night with her Trileptal then we upped the dose to a whole pill morning...
Oh my gosh!! It is truly amazing how a drug can have such a different effect on different children. WOW! What a marked and horrible difference. Thank ...
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