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sue, thankyou so much for your support we are in morton wa, my daughter sees doctor phillips at mary bridge childrens hospital in tacoma i really like him however i have a hard time getting heard by him and that is frustrating. im so soory about your daughter. it must be so hard for you it is for me just to watch and feel so helpless my daughter also has the grad mals does your daughter have diastate to take for emergancies? my daughter is also taking trileptol and that medicane seems to work so much better for her then the topamax did i hope the best for you and your daughter. thankyou for the support
Mrmrssoso@... wrote:
Amanda,My heart goes out to you...I'll give you all the support I can. I have a 12 year old daughter with epilepsy....we were cruising along with our summer (the last seizure she had was 4 months ago...and then 10 months before that), and then she had a grand mal in the garage yesterday and bonked her head so hard she has a big goose egg on it. Everytime she has a seizure, I pray it's her last one...it never is... We've been at this since she was 10 months old. At one point, she was having 3 grand mals in one week. She has a mild learning disability, but other than that, she's a happy and healthy girl.Where are you located, and is your daughter seeing a specialists?SueYakimaIn a message dated 7/20/2006 10:15:28 A.M. Pacific Standard Time, mandasue2000@... writes:i have been looking everywhere a support group people that understand what this is like. my daughter is 5 and in march we just found out she has epilepsy i was so angry but hopeful that she could never have another one or that we dont have this in our family so she had a good chance of growing out of it i was so wrong in denial i guess been through so many tests and have to go evey month to check her white cell count because its low but noone seems to know why and that bothers me ive looked up so many people in the family i for some reson or another lost contact with even called my dead beat dad i havent spoken to in 11 years and cant figure out why this happened then my mom saw a cousin that we dont talk to much and guess what there were all the ansers i guess that my daughters great great grandmother had epilepsey and now my baby does it just took that long to show up im trying to learn as much as i can but im so sick of doctors saying the brain is a complecated thing. my baby cant talk very well any more she studders and sometimes she cant even make a sound when shes trying to say a word and they tell me its normal i know its not she never had that problem before march why now. and her eye has now turned in and so it looks as if she has lazy eye howerver that just happened in march as well. any info anyone has would be great. we are just looking for support from people who understand . amanda
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