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Cent_Wa_Epilepsy_Support · Central Washington Epilepsy Support
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Reply | Forward Message #352 of 894 |
i have been looking everywhere a support group people that understand what this is like. my daughter is 5 and in march we just found out she has epilepsy i was so angry but hopeful that she could never have another one or that we dont have this in our family so she had a good chance of growing out of it i was so wrong in denial i guess been through so many tests and have to go evey month to check her white cell count because its low but noone seems to know why and that bothers me ive looked up so many people in the family i for some reson or another lost contact with even called my dead beat dad i havent spoken to in 11 years and cant figure out why this happened then my mom saw a cousin that we dont talk to much and guess what there were all the ansers i guess that my daughters great great grandmother had epilepsey and now my baby does it just took that long to show up im trying to learn as much as i can but im so sick of doctors saying the brain is a complecated thing. my baby cant talk very well any more she studders and sometimes she cant even make a sound when shes trying to say a word and they tell me its normal i  know its not she never had that problem before march why now. and her eye has now turned in and so it looks as if she has lazy eye howerver that just happened in march as well.  any info anyone has would be great. we are just looking for support from people who understand . amanda
 



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Thu Jul 20, 2006 5:12 pm

mandasue2000
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Message #352 of 894 |
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i have been looking everywhere a support group people that understand what this is like. my daughter is 5 and in march we just found out she has epilepsy i was...
amanda sawyer
mandasue2000
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Jul 20, 2006
5:12 pm

Amanda, My heart goes out to you...I'll give you all the support I can. I have a 12 year old daughter with epilepsy....we were cruising along with our...
Mrmrssoso@...
sue_ownby
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Jul 22, 2006
4:32 pm

sue, thankyou so much for your support we are in morton wa, my daughter sees doctor phillips at mary bridge childrens hospital in tacoma i really like him...
amanda sawyer
mandasue2000
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Jul 23, 2006
3:41 am

I've never gotten diastate...fortunately her seizures have lasted longer than 5 minutes, but I know I should have some! My daughter didn't respond well to...
Mrmrssoso@...
sue_ownby
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Jul 25, 2006
4:13 am
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