Sue,

I live in Vancouver Washington. I am sure there are more support
groups around my area. I just have not yet found the time to look
into it. That is why I am so happy to find this group. I will
contact Mineko Sterling at Seattle EFA. I would really like to
receive as much research as I can. I find myself becoming depressed
when I read all the information on the internet. Maybe because I
still have sooo many questions about how this will affect Megan..


We originally were told that Megan had Rolandic Benign epilepsy.
That gave me hope that she would grow out of it soon. Now we are
just in the generic category of epilepsy. The Dr. also thought that
this came about because of trauma at birth... Her cord was wrapped
around her neck twice and had a delay on breathing for 4 min... Yet
the MRI and CT scan saw no scar... Now they say genetic... Yet
there is no know history...

Did you go through any of this? Have you ever been told why or
how?

Have you ever looked into anything other than medication? I went to
a candle party and met a woman that works at a chiropractic office
that has said they cured a man with epilepsy through chiropractic
sessions. This was because a nerve was bing pinched between his
spine???

I am also wondering if you aor anyone else has looked into anything
naturopathic.


Thanks!
Brenda



--- In Cent_Wa_Epilepsy_Support@yahoogroups.com, Mrmrssoso@... wrote:
>
>
> Hi Brenda!
>
> Good to hear from you. I hope the Keppra is going well. I had
not heard
> that bladder control was a side effect, but if it's in the
product literature,
> then it must be! Perhaps it's one of those things that goes away
as she
> gets used to it. My daughter doesn't seem to have much side
effect at all from
> the Keppra, which is such a blessing. She was increased a couple
of months
> ago, but we're taking her back down a little, and up on the
Zonegran instead,
> because we were seeing more "absence" type activity with her.
We'll have to
> see how it goes. Our children are pretty much guinea pigs until
we find the
> right combinations of the right drugs. It really is trial &
error!
>
> I SO know what you're talking about with the girl scout thing.
I'm not a
> very religious person, but I do know that there has been people
who have came
> into my life, and my daughters life, when we so desperately
needed them.
> Divine intervention? Perhaps! My daughter wanted to join girl
scouts this year,
> and guess what....now I'm a troop co-leader. If there a field
trip as
> school...I'm volunteering to be a chaperone. If she wants to
spend the night at a
> girlfriends house, I go too...just kidding about the last one!!
But I do
> have a talk with the parents and we try to avoid her triggers
(getting hot and
> playing too hard), how to get ahold of me, what to do if she has
one.
> Swimming is out of the question unless she has an educated adult
in the water with
> her, with their eyes on her (she's had 2 seizures in pools and
went under
> unnoticed for about 10 seconds both times).
>
> It's been the hardest thing in the world to let her "live her
life". I
> think I'm doing a pretty good job at it, but I know I limit her
(she has an
> invitation for a sleep over this weekend with a girlfriend whom
I've never met the
> parents, and it's across the street from the community pool).
Here we go
> again! I could see both sides of the liability issue. We don't
want them to
> be discriminated against,
>
> What city are you in? I'm in Yakima and was trained to mentor by
the fine
> folks at Seattle EFA. I'm trained to educate about epilepsy, but
haven't been
> requested to do so anywhere yet. I do get referrals from
Children's Village
> here in town, and often speak with parents of kids. I would
highly
> recommend it! Contact Mineko Sterling at Seattle EFA, and I'm
sure he'll be happy to
> set you up!
>
> Back to bed....I'm having one of those sleepless nights!
> Sue