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Brenda;
No I havent tried anything else other than the meds. I have done alot of research on the diet. I may try it in the future. Emily's meds are working so far, with little side effects for once. She goes in to see her neurologist on the 28th of this month, so will see how that goes. I am going to have him referre us to a pediatric phycologist because I know that theses seizure meds can be rough on them and my daughter is not quites old enough to express to me in words how she feels and I guess the phycologist use other methods to find out how they are feeling. I would hate for her to be feel horrible and I not even knowing it. Well I hope you have luck with the meds. Let me know how it is going.
Take care!!!!
Candice
troop1099bre <brebrymeg@...> wrote:
troop1099bre <brebrymeg@...> wrote:
Candice,
Thank you for your words of wisdom! We started on Keppra on Friday
night. We have to slowly work into the full dose. I guess we are
on the road of finding the correct medication for Megan.
I do have a question for you. Have you ever looked into the Diet
that they have on the internet? Also have you ever taken your
daughter to a naturopath? My ex-husband took a sample of my
daughter's hair and sent it into a lab. The results came back with
high Aluminum and Copper. This naturopath felt that if we did a
aluminum detoxify it may help? When I asked her regular Dr. She
did not agree with anything like that... She said "it is not FDA
approved" Do you have any feeling about this?
Thanks,
Brenda
----- Original Message -----
From: candy_lou81
To: Cent_Wa_Epilepsy_Support@yahoogro ups.com
Sent: Wednesday, July 12, 2006 4:57 PM
Subject: [Cent_Wa_Epilepsy_Support] Re: All new to me...
Hi;
I completely understand what you are going thru. My daughter was
2 1/2 when she was diagnosed with complex partial epilepsy. It took
me a long time to accept it. She was put on Tegretol suspension 3x a
day. But she kept having seizures so her doctors kept upping the
dose. She then moved on to the chewable tabs. The meds made her very
tired she would take four hour naps. She didn't act like a normal
toddler because of the meds. She is know 3 1/2 and is on Carbotrol
time release. She has been on it for almost 5 mos. and has not had a
seizure since starting it. She still gets sleepy. From what i
understand the seizure meds are very hard on the systems and can
make
them feel bad. One med will work for awhile and then not work so on
to the next med. It is very frustrating and hard to watch your child
go thru this. The beginning is rough but it will let up once your
daughters body gets used to the meds. My daughter is seen at
Childrens Hospoital in Seattle. They are great. I love her
neurologist, Dr. Bouldin. He listens to you as the parent and lets
you have a say in there care. If you have and questions please feel
free to email me. I have been through it all. My thoughts and
prayers
are with you and your family!!!!!
Take care.
Candice and Emily
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