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Cent_Wa_Epilepsy_Support · Central Washington Epilepsy Support
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All new to me...   Message List  
Reply | Forward Message #346 of 891 |
Re: All new to me...

Candice,

Thank you for your words of wisdom! We started on Keppra on Friday
night. We have to slowly work into the full dose. I guess we are
on the road of finding the correct medication for Megan.

I do have a question for you. Have you ever looked into the Diet
that they have on the internet? Also have you ever taken your
daughter to a naturopath? My ex-husband took a sample of my
daughter's hair and sent it into a lab. The results came back with
high Aluminum and Copper. This naturopath felt that if we did a
aluminum detoxify it may help? When I asked her regular Dr. She
did not agree with anything like that... She said "it is not FDA
approved" Do you have any feeling about this?
Thanks,
Brenda

----- Original Message -----
From: candy_lou81
To: Cent_Wa_Epilepsy_Support@yahoogroups.com
Sent: Wednesday, July 12, 2006 4:57 PM
Subject: [Cent_Wa_Epilepsy_Support] Re: All new to me...

Hi;
I completely understand what you are going thru. My daughter was
2 1/2 when she was diagnosed with complex partial epilepsy. It took
me a long time to accept it. She was put on Tegretol suspension 3x a
day. But she kept having seizures so her doctors kept upping the
dose. She then moved on to the chewable tabs. The meds made her very
tired she would take four hour naps. She didn't act like a normal
toddler because of the meds. She is know 3 1/2 and is on Carbotrol
time release. She has been on it for almost 5 mos. and has not had a
seizure since starting it. She still gets sleepy. From what i
understand the seizure meds are very hard on the systems and can
make
them feel bad. One med will work for awhile and then not work so on
to the next med. It is very frustrating and hard to watch your child
go thru this. The beginning is rough but it will let up once your
daughters body gets used to the meds. My daughter is seen at
Childrens Hospoital in Seattle. They are great. I love her
neurologist, Dr. Bouldin. He listens to you as the parent and lets
you have a say in there care. If you have and questions please feel
free to email me. I have been through it all. My thoughts and
prayers
are with you and your family!!!!!
Take care.
Candice and Emily







Mon Jul 17, 2006 5:54 pm

troop1099bre
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Forward
Message #346 of 891 |
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Hello to you all, Well, I had time to try and imagine why my 10 year old daughter out of the blue had 2 seizure. My thoughts have traveled from the very ...
troop1099bre
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Jul 12, 2006
7:45 pm

Hi; I completely understand what you are going thru. My daughter was 2 1/2 when she was diagnosed with complex partial epilepsy. It took me a long time to...
candy_lou81
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Jul 12, 2006
11:59 pm

Candice, Thank you for your words of wisdom! We started on Keppra on Friday night. We have to slowly work into the full dose. I guess we are on the road of...
troop1099bre
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Jul 17, 2006
6:04 pm

Brenda; No I havent tried anything else other than the meds. I have done alot of research on the diet. I may try it in the future. Emily's meds are working so...
candice Ply
candy_lou81
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Jul 17, 2006
7:56 pm

Brenda & Candice, It's great to talk to another Mom(s)! First a little history: My daughter, Chelsi, is 12. She's had epilepsy since she was 10 months...
Mrmrssoso@...
sue_ownby
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Jul 14, 2006
4:02 am

Sue, I also have realized that this is not the end of the world. There are things out there in this world that are so worse! I have not made it to the...
troop1099bre
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Jul 17, 2006
6:39 pm

Hi Brenda! Good to hear from you. I hope the Keppra is going well. I had not heard that bladder control was a side effect, but if it's in the product...
Mrmrssoso@...
sue_ownby
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Jul 18, 2006
9:25 am

Sue, I live in Vancouver Washington. I am sure there are more support groups around my area. I just have not yet found the time to look into it. That is why...
troop1099bre
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Jul 19, 2006
3:49 pm

Hello again! I think Portland has an EFA also...but Mineko will send you in the right direction. I too freaked myself out by reading everything on the ...
Mrmrssoso@...
sue_ownby
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Jul 20, 2006
2:46 am
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