Hi Candy, My name is Carol. I am so sorry I did not
get to this email earlier for you. Candy, believe me,
I know how alone you feel because I have been in your
shoes. We as mothers feel so hopeless sometimes. I'm
sure it is very difficult to see your child go through
a seizure, and more than once in a week. My daughter
is now 29...her seizures didn't start until she was
19. So we have been through 10 years of hell....tried
different medications for years. However, just about
two years ago Juli had a Vegas Nerve Stimulator
implanted in her for the seizures. Candy, this has
been a miracle..........she has not had a seizure in
15 months. She still also takes medication, but the
doses have been lessened. We are now working towards
driving....which is scarry. I put my trust in God to
watch over my daughter. Candy, your little one is so
young. My heart reaches out to you in how you feel.
I know that when we see the seizures it just breaks
our heart and yet all we can do is be there for them
when they come out of the seizure. As you know, when
our kids suffer a seizure it seems like eternity. I
too, use to feel all alone in the world going through
this. I could not find any support groups in my area.
Candy, you are not alone...I'm here any time you would
like to talk. My heart goes out to you. Stay as
strong as you can....I know there were many times when
I cried my eyes out all alone in my bedroom. Hang in
there. Contact me anytime you would like. I really
do care about you and your child. God Bless

--- Mrmrssoso@... wrote:

>
> Hi Candy,
>
> Our group hasn't been very active as of late, but
> we're here for you! I
> have a 12 year old daughter who's had seizures since
> she was 10 months old.
> She's had as many as 3 grand mals in one week, to
> just recently going 10 months
> without one. It's been a hell of a ride. I
> remember feeling so alone in the
> beginning...but you just stick it out becaue you
> have to. Please tell us
> about your daughter and we'll help any way we can!
>
>
> Sue
> Yakima
>
> In a message dated 5/1/2006 12:56:44 P.M. Pacific
> Standard Time,
> candy_lou81@... writes:
>
> Hi there, I have a three year old daughter who was
> diagnosed a year
> ago with complex partial epilepsy. She has been on
> several different
> types of dosages of tegretol. She is currently
> taking a time release.
> It so far seems to be working. The drugs will work
> for awhile then she
> will start having seizures again. I hope to be able
> to talk to others
> who are understanding to what I am going through as
> a parent of a
> young child with epilepsy.
>
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>
>
>


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