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living with epilepsy   Message List  
Reply | Forward Message #230 of 894 |
Tommy's intro:

Hello,

        My name is Tommy.  Bremerton, WA.
        TBI Spring '98
        No driving for about a year in part to seizure concerns.
        Last spring they showed up seriously.  No drive.
        September I drove for part of a day before they again showed up. Meds increased.
        I am finally accepting I do have epilepsy.  That is one reason I am looking for groups like this.
        In my case, not driving is my biggest concern I guess-and expense of treatment.
        I do my best to live independently post-bonk.  Not driving makes it more important to plan, and planning is something I "don't do" post-bonk.

        I love the Puget Sound region however.  :)

        Though not central Washington, I hope that I may find a place here?

        Best to you all,

         Tommy...


"7 years old going on 70..."
Gratitude is the Attitude :)
<tommy@...>
Personal homepage: http://www.totemwood.com/
Survivors of Traumatic Brain Injury email list: http://groups.yahoo.com/group/SoTBI/


Tue Jan 31, 2006 6:28 am

totemwood2001
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Message #230 of 894 |
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Thank you for writing,I have a sister that lives in Naches. Im really not sure when Trevors seisures started. He has been taking pheyntek for 1 1/2 years....
Rachel Hay
rachelhay2005
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Jan 31, 2006
4:36 am

Hello, My name is Tommy. Bremerton, WA. TBI Spring '98 No driving for about a year in part to seizure concerns. Last spring they showed up seriously. No...
TotemWood Tommy
totemwood2001
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Jan 31, 2006
6:57 am

Maybe that's my problem, I haven't/don't want to except that I have them. WOW a year, I thought six months sucked. Never had contact with somebody else who...
Trina & Philip Knighten
tknightenmom
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Jan 31, 2006
8:19 pm

Hi Trina, Pretty late but... I'm 47. Kind of seizures? The ones dx'd were gran-mal or the other word for them. I know there were the ones where there was a...
TotemWood Tommy
totemwood2001
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Feb 1, 2006
7:32 am

Hello Tommy,From Spokane. As you probably have read I do not have seisures, my son does. But I have enjoyed hearing from others on how to treat my son, things...
Rachel Hay
rachelhay2005
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Jan 31, 2006
11:10 pm

Rachel, Toney, Tommy and Everyone Else! Of course you are welcome to join our list. I, too, am surprised that there aren't any other support groups in...
Mrmrssoso@...
sue_ownby
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Feb 1, 2006
2:47 am

Thanks, Sue! -----Original Message----- From: Mrmrssoso@... Sent: Jan 31, 2006 6:47 PM To: Cent_Wa_Epilepsy_Support@yahoogroups.com Subject: Re:...
Tony Diaz
adiaz7seattle
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Feb 1, 2006
2:46 pm

Small world...I actually live in Lower Naches! Chelsi does have an IEP. It was pretty much forced on her in Kindergarten. I'm not a fan of the "system"....
Mrmrssoso@...
sue_ownby
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Feb 2, 2006
3:34 am

Hello again, I was just trying with no luck to sign up for the walk for epilepsy on June 17th.Thought I would check my email - i must say talking with all of...
Rachel Hay
rachelhay2005
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Feb 3, 2006
8:33 pm

I've never been in the bank, but know many who go there. An IEP is essential for kids like our...just be sure they are doing what's best for your son and not...
Mrmrssoso@...
sue_ownby
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Feb 4, 2006
9:09 pm

Hi, I just found this but I'm so glad I did! It really is nice to know that there are others people out there. My son has had epilepsy since birth only we just...
justsams2
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Feb 19, 2006
10:29 pm

Hello Joshs mom, I am Trevors mom. He is 15. I gotta spout off with frustration today with stupidity of others (as you talk about school etc.)People who dont...
Rachel Hay
rachelhay2005
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Feb 20, 2006
10:34 pm

So good to hear from you Trevors Mom. I'm Sam. I wish there was a pamphlet maybe we should make one :-) Be as abrubt and rude as you like I completely ...
Justin & Sam
justsams2
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Feb 20, 2006
11:54 pm

So good to hear from you Trevors Mom. I'm Sam. I wish there was a pamphlet maybe we should make one :-) Be as abrubt and rude as you like I completely ...
Justin & Sam
justsams2
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Feb 20, 2006
11:54 pm

Hey Sam, Nice talking to you. Yea Trevor has been lacking in grades for the last couple of years too and were working on that with the school and IEPs etc now....
Rachel Hay
rachelhay2005
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Feb 21, 2006
1:19 am

Hi, I understand about the "man thing" too. My boyfriend isn't being mean but says things like ya we gotta tighten that boys screws down. Well no we don't he...
Justin & Sam
justsams2
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Feb 21, 2006
2:41 pm

Sam - the definition of "Epilepsy" is just the umbrella term for anyone who has more than one of any type of seizure. "Epilepsy" and "Seizure Disorder" mean...
Mrmrssoso@...
sue_ownby
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Feb 21, 2006
4:56 pm

Hi, Guess I'm a strange fella. Maybe just not with it? To me "seizure disorder" sounds terrible-an "oh no" kind of thing. Strangely when doc told me...
TotemWood Tommy
totemwood2001
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Feb 21, 2006
7:56 pm

Hello Tommy, 2-21-06 My name is Bethanne Brenchley. I have had epilepsy for 35 yrs. I...
bethanne brenchley
praisel1
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Feb 21, 2006
8:12 pm

Hello Bethanne, Head injury [TBI] spring '98. [primarily left temporal and above] Probably had seizures of one type or another since then though undiagnosed....
TotemWood Tommy
totemwood2001
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Feb 22, 2006
2:53 am

Good luck Tommy. _____ From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of TotemWood Tommy Sent:...
Justin & Sam
justsams2
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Feb 22, 2006
3:59 am

Why thank you, I think over all? I have had pretty good luck... :) Start out in adult care home and now live somewhat independently in my own little mobile...
TotemWood Tommy
totemwood2001
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Feb 22, 2006
5:28 am

Do you work? I only ask because my son is 20 and all he really wants is to get a job and its been really hard so far. Just wondering what kind of work people...
Justin & Sam
justsams2
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Feb 22, 2006
2:34 pm

Hi, Walk the Talk? Seems to me that folks with disABILITIES must "walk the talk." It's simply a practical thing-especially if one has memory problems. Afraid...
TotemWood Tommy
totemwood2001
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Feb 23, 2006
5:43 pm

Thanks. Unfortunately he leads people to believe he can do more than he really can and then when he can't follow through, like in a work situation; he gets...
Justin & Sam
justsams2
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Feb 24, 2006
2:52 am

Hi Sam, Forgive me if I'm a bit of a "grump" tonight, but have thought a bit about this. Look, I don't like dishonest people or "B.S." artists. They come in...
TotemWood Tommy
totemwood2001
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Feb 24, 2006
6:35 am

I completely agree with everything you have said and he has done the inventory and knows what he wants, getting it been rough. I think I gave you a...
Justin & Sam
justsams2
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Feb 24, 2006
2:41 pm

HI Tommy!! 2-22-06 How are you today? I am so tired but I should boince back...
bethanne brenchley
praisel1
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Feb 22, 2006
11:22 pm

Hi Bethanne, :) A couple errands to do today, but weather is back to winter gloom and not so bad...<g> Ah moving-bummer usually! Good luck with it! :) ...
TotemWood Tommy
totemwood2001
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Feb 23, 2006
4:40 pm

Hi Tommy, This is Josh's Mom, Sam. Josh is 20 and I'm trying to get him on SSDI, and helpful hints? Sounds like you got it goin' on, keep up the keepin' up. I...
Justin & Sam
justsams2
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Feb 24, 2006
2:49 am
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