Hello to all, this is my first time on a message board but I am
deperatly seeking others living with epilepsy. I have a great support
system in my family but know one understands because they have never
had seizures. I have had epilepsy for 10 years and haven't had that
many but I have had two in the last year, my last one being January
15th. These things scare the crap out of me and I panic alot after I
have one. I just need some other people who know what I'm talking
about to talk to.
Hello to all, this is my first time on a message board but I am deperatly seeking others living with epilepsy. I have a great support system in my family but...
Hello, I got your email and wanted to right back. I personally do not have epilepsy,my son does. On the other hand of that I try to talk to people about what...
Rachel, I sent you an e-mail a few minutes ago but I'm not sure I sent it to the right spot could you e-mail me back and tell me if I did or didn't? From:...
Hi Rachel, thanks for responding. I was on Tegretol for about 7 years without any problems and then last year I had another seizure and was at the limit for...
Hey Trina, Trevor takes Pheyntek twice a day now. He has partial seisures where he goesa blank for 3 - 4 minutes at a time. He never remembers things...
Hi Rachel, My names Sue, I live in Yakima and have an 11 year old daughter with epilepsy. She's had seizures since she was 10 months old. Today, she's in ...
Thank you for writing,I have a sister that lives in Naches. Im really not sure when Trevors seisures started. He has been taking pheyntek for 1 1/2 years....
Hello, My name is Tommy. Bremerton, WA. TBI Spring '98 No driving for about a year in part to seizure concerns. Last spring they showed up seriously. No...
Maybe that's my problem, I haven't/don't want to except that I have them. WOW a year, I thought six months sucked. Never had contact with somebody else who...
Hi Trina, Pretty late but... I'm 47. Kind of seizures? The ones dx'd were gran-mal or the other word for them. I know there were the ones where there was a...
Hello Tommy,From Spokane. As you probably have read I do not have seisures, my son does. But I have enjoyed hearing from others on how to treat my son, things...
Rachel, Toney, Tommy and Everyone Else! Of course you are welcome to join our list. I, too, am surprised that there aren't any other support groups in...
Small world...I actually live in Lower Naches! Chelsi does have an IEP. It was pretty much forced on her in Kindergarten. I'm not a fan of the "system"....
Hello again, I was just trying with no luck to sign up for the walk for epilepsy on June 17th.Thought I would check my email - i must say talking with all of...
I've never been in the bank, but know many who go there. An IEP is essential for kids like our...just be sure they are doing what's best for your son and not...
Hi, I just found this but I'm so glad I did! It really is nice to know that there are others people out there. My son has had epilepsy since birth only we just...
Hello Joshs mom, I am Trevors mom. He is 15. I gotta spout off with frustration today with stupidity of others (as you talk about school etc.)People who dont...
So good to hear from you Trevors Mom. I'm Sam. I wish there was a pamphlet maybe we should make one :-) Be as abrubt and rude as you like I completely ...
So good to hear from you Trevors Mom. I'm Sam. I wish there was a pamphlet maybe we should make one :-) Be as abrubt and rude as you like I completely ...
Hey Sam, Nice talking to you. Yea Trevor has been lacking in grades for the last couple of years too and were working on that with the school and IEPs etc now....
Hi, I understand about the "man thing" too. My boyfriend isn't being mean but says things like ya we gotta tighten that boys screws down. Well no we don't he...
Sam - the definition of "Epilepsy" is just the umbrella term for anyone who has more than one of any type of seizure. "Epilepsy" and "Seizure Disorder" mean...
Hi, Guess I'm a strange fella. Maybe just not with it? To me "seizure disorder" sounds terrible-an "oh no" kind of thing. Strangely when doc told me...
Hello Bethanne, Head injury [TBI] spring '98. [primarily left temporal and above] Probably had seizures of one type or another since then though undiagnosed....
Good luck Tommy. _____ From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com] On Behalf Of TotemWood Tommy Sent:...
Why thank you, I think over all? I have had pretty good luck... :) Start out in adult care home and now live somewhat independently in my own little mobile...
Do you work? I only ask because my son is 20 and all he really wants is to get a job and its been really hard so far. Just wondering what kind of work people...
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