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Im new at this....   Message List  
Reply | Forward Message #222 of 894 |
RE: [Cent_Wa_Epilepsy_Support] Im new at this....

Hi Rachel,
 
This is Mineko from the Epilepsy Foundation Northwest.  I'm sorry to hear that you've been getting mixed information.
 
Anyone can have a seizure if the brain is stressed by infection fever, injury, lack or oxygen or poisoning.  Seizures that happen more than once for no apparent reason are defined as epilepsy.  Epilepsy and seizure disorder are the same.  People started the word "seizure disorder" because there was a lot of stigma attached to the word "epilepsy." 
 
Epilepsy is a neurological disorder that produces sudden, brief surges of electrical energy in the brain.  These episodes, called seizures, can be recorded through EEG.  Seizures may alter a person's awareness, movement or actions for a few seconds or minutes. 
 
Epilepsy Foundation website has many great articles about epilepsy: http://www.epilepsyfoundation.org/answerplace/index.cfm
 
Please let me know if there is any more questions.  My office hours are 11am-3:45pm, Mon-Thur.
 
Sincerely,

Mineko Sterling
Epilepsy Services Specialist
Epilepsy Foundation Northwest
3800 Aurora Ave. N, #370
Seattle, WA 98103
(206) 547-4551 ext. 105
(800) 752-3509 ext. 105
www.epilepsynw.org
 
-----Original Message-----
From: Cent_Wa_Epilepsy_Support@yahoogroups.com [mailto:Cent_Wa_Epilepsy_Support@yahoogroups.com]On Behalf Of rachelhay2005
Sent: Thursday, January 26, 2006 1:42 PM
To: Cent_Wa_Epilepsy_Support@yahoogroups.com
Subject: [Cent_Wa_Epilepsy_Support] Im new at this....

Hello,My name is Rachel.I have never used a chat room / post before.
I have a 15 year old son, diagnosed 1 1/2 years ago with seisures.
I am learning about everything all at once by being on the phone and
the internet, Nobody told me until 3 weeks ago that my son has
epilepsy - seisures and epilepsy are one in the same?
Then when I asked his doctor if trevor is epileptic he said he wasnt
sure?
I am so confused and feel like I am getting mixed information and we
are getting ready to go have a meeting with all his teachers on Feb
1st. I dont want to look like a idiot. How do you know what to do or
if your doing it right? Thank you for any answers as I need to help my
son but am frustrated at this point. Sincerely,Rachel





Thu Jan 26, 2006 11:32 pm

mineko_from_...
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Message #222 of 894 |
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Hello,My name is Rachel.I have never used a chat room / post before. I have a 15 year old son, diagnosed 1 1/2 years ago with seisures. I am learning about...
rachelhay2005
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Jan 26, 2006
9:42 pm

Hi Rachel, This is Mineko from the Epilepsy Foundation Northwest. I'm sorry to hear that you've been getting mixed information. Anyone can have a seizure if...
Mineko Sterling
mineko_from_...
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Jan 26, 2006
11:23 pm

Mineko, Thank you, thank you, I have tried to explain to the organization I am with that 2 or more unprovoked seizures is considered Epilepsy. They however,...
Larry
larrynorway3
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Feb 1, 2006
11:28 pm

Hello everybody, I asked Trevors doctor if Trevor has epilepry and he responded he wasnt sure - how are you sure? He has constant seisures - has had a EEG ....
Rachel Hay
rachelhay2005
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Feb 3, 2006
12:47 am

To quote Mineko "Seizures that happen more than once for no apparent reason are defined as epilepsy" That is how I always understood it also. Sue a message...
Mrmrssoso@...
sue_ownby
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Feb 3, 2006
3:54 am

Sue, I took the definition of Epilepsy out of a book by Dr. orrin Devinsky M.D. titled "A GUIDE to UNDERSTANDING and LIVING with EPILEPSY". He states: Epilepsy...
Larry
larrynorway3
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Feb 3, 2006
7:26 am

Rachel's the one who asked the question....but, yeah, I've read the guide and it is very good.... Sue In a message dated 2/2/2006 11:26:47 P.M. Pacific...
Mrmrssoso@...
sue_ownby
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Feb 4, 2006
5:24 pm

Thank you larry - and sue. Ill try to find one at the library. GO SEAHAWKS!!!! R. Mrmrssoso@... wrote: Rachel's the one who asked the question....but,...
Rachel Hay
rachelhay2005
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Feb 4, 2006
8:41 pm
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