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Im new at this....   Message List  
Reply | Forward Message #221 of 892 |
Hello,My name is Rachel.I have never used a chat room / post before.
I have a 15 year old son, diagnosed 1 1/2 years ago with seisures.
I am learning about everything all at once by being on the phone and
the internet, Nobody told me until 3 weeks ago that my son has
epilepsy - seisures and epilepsy are one in the same?
Then when I asked his doctor if trevor is epileptic he said he wasnt
sure?
I am so confused and feel like I am getting mixed information and we
are getting ready to go have a meeting with all his teachers on Feb
1st. I dont want to look like a idiot. How do you know what to do or
if your doing it right? Thank you for any answers as I need to help my
son but am frustrated at this point. Sincerely,Rachel






Thu Jan 26, 2006 9:42 pm

rachelhay2005
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Message #221 of 892 |
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Hello,My name is Rachel.I have never used a chat room / post before. I have a 15 year old son, diagnosed 1 1/2 years ago with seisures. I am learning about...
rachelhay2005
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Jan 26, 2006
9:42 pm

Hi Rachel, This is Mineko from the Epilepsy Foundation Northwest. I'm sorry to hear that you've been getting mixed information. Anyone can have a seizure if...
Mineko Sterling
mineko_from_...
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Jan 26, 2006
11:23 pm

Mineko, Thank you, thank you, I have tried to explain to the organization I am with that 2 or more unprovoked seizures is considered Epilepsy. They however,...
Larry
larrynorway3
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Feb 1, 2006
11:28 pm

Hello everybody, I asked Trevors doctor if Trevor has epilepry and he responded he wasnt sure - how are you sure? He has constant seisures - has had a EEG ....
Rachel Hay
rachelhay2005
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Feb 3, 2006
12:47 am

To quote Mineko "Seizures that happen more than once for no apparent reason are defined as epilepsy" That is how I always understood it also. Sue a message...
Mrmrssoso@...
sue_ownby
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Feb 3, 2006
3:54 am

Sue, I took the definition of Epilepsy out of a book by Dr. orrin Devinsky M.D. titled "A GUIDE to UNDERSTANDING and LIVING with EPILEPSY". He states: Epilepsy...
Larry
larrynorway3
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Feb 3, 2006
7:26 am

Rachel's the one who asked the question....but, yeah, I've read the guide and it is very good.... Sue In a message dated 2/2/2006 11:26:47 P.M. Pacific...
Mrmrssoso@...
sue_ownby
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Feb 4, 2006
5:24 pm

Thank you larry - and sue. Ill try to find one at the library. GO SEAHAWKS!!!! R. Mrmrssoso@... wrote: Rachel's the one who asked the question....but,...
Rachel Hay
rachelhay2005
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Feb 4, 2006
8:41 pm
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