The message I got was that LA would not be managing the service, but would be in control of the funding. As with any service that has gone out for tender there is a re-tendering for the contract every 3 yrs, not sure about nationally but it is here.
Carers services here have only been running for 4.5 yrs and already there has been 2 different organisation who have had the contract. It seems crazy to me to start a service then give it to someone else and they have to start from scratch and create the service again.
Wasting money left right and centre not to mention wasting time. Come to think of it Nottingham Cares services are going out for tender...(I receive their newsletters) so this could indicate something is going on in other places..
Subject: Re: [Carersforumuk] Carers Services going out to Tender
That's the way things are going, all services going out to tender but still 'managed' by local authorities. Just another way of cutting costs and diluting responsibility & accountability.
From: Pamela Pinder <pamshouse@blueyonder.co.uk> Subject: [Carersforumuk] Carers Services going out to Tender To: Carersforumuk@yahoogroups.com Date: Sunday, 31 May, 2009, 5:05 PM
About 6 - 9 months ago I read that eventually social services will no longer be providing carers services. I have also recently heard that the services in Devon are going out to tender and that all carer workers will transfer under Tupe (their current contract with their present employer). Most of the carer workers are employed by social services, one or two by MH charities, which this may not affect. Which seems to back up what I briefly read before.
Has anyone heard of this happening where you live?
57 is next year Rob! My brother is 3 yrs younger than me and he is into running marathon's mostly the half marathon locally, but did London about 4-5 yrs ago.
Yes there are a lot of cars on the road Rob and I have been told that it's harder to drive these days than it was with less cars around. Most of my driving is done when at work, outside of this I do not drive much.
Subject: Re: [Carersforumuk] May.....soon be June !
Happy Birthday for Tuesday Pam (57 not out ?)
I feel young enough inside, it's just trying to get the body to keep up with the mind ! Already I'm contemplating doing the 2010 Paris Marathon, next April - for two reasons, one is I never been to Paris before, and two - I never run a full marathon before.
As for driving - too many cars on the road for it to be a pleasure any more and the cost of parking is astronomical. I hire a car if needs must.
--- On Sun, 31/5/09, Pamela Pinder <pamshouse@blueyonder.co.uk> wrote:
From: Pamela Pinder <pamshouse@blueyonder.co.uk> Subject: Re: [Carersforumuk] May.....soon be June ! To: Carersforumuk@yahoogroups.com Date: Sunday, 31 May, 2009, 4:45 PM
Tell me about it Rob, I am another year older on Tuesday and Monday is the three year anniversary of when I passed my driving test. It doesn't seem like three years ago I was telling everyone I had passed!
My husband is due to retire next year, he is 8 yrs older than me. And all we seem to be hearing people say is that it's time to start winding down. It's beginning to depress me, as if our next step is a nursing home! What about how old you feel inside, rather than people thinking they are giving wise advice and putting a damper on things!
That's five twelths of the year gone already, this year is going extremely quick. What with the recession, MPs expenses, Obamamania etc. - it seem's the world is getting smaller and spinning faster !
I feel young enough inside, it's just trying to get the body to keep up with the mind ! Already I'm contemplating doing the 2010 Paris Marathon, next April - for two reasons, one is I never been to Paris before, and two - I never run a full marathon before.
As for driving - too many cars on the road for it to be a pleasure any more and the cost of parking is astronomical. I hire a car if needs must.
--- On Sun, 31/5/09, Pamela Pinder <pamshouse@...> wrote:
From: Pamela Pinder <pamshouse@...> Subject: Re: [Carersforumuk] May.....soon be June ! To: Carersforumuk@yahoogroups.com Date: Sunday, 31 May, 2009, 4:45 PM
Tell me about it Rob, I am another year older on Tuesday and Monday is the three year anniversary of when I passed my driving test. It doesn't seem like three years ago I was telling everyone I had passed!
My husband is due to retire next year, he is 8 yrs older than me. And all we seem to be hearing people say is that it's time to start winding down. It's beginning to depress me, as if our next step is a nursing home! What about how old you feel inside, rather than people thinking they are giving wise advice and putting a damper on things!
That's five twelths of the year gone already, this year is going extremely quick. What with the recession, MPs expenses, Obamamania etc. - it seem's the world is getting smaller and spinning faster !
That's the way things are going, all services going out to tender but still 'managed' by local authorities. Just another way of cutting costs and diluting responsibility & accountability.
--- On Sun, 31/5/09, Pamela Pinder <pamshouse@...> wrote:
From: Pamela Pinder <pamshouse@...> Subject: [Carersforumuk] Carers Services going out to Tender To: Carersforumuk@yahoogroups.com Date: Sunday, 31 May, 2009, 5:05 PM
About 6 - 9 months ago I read that eventually social services will no longer be providing carers services. I have also recently heard that the services in Devon are going out to tender and that all carer workers will transfer under Tupe (their current contract with their present employer). Most of the carer workers are employed by social services, one or two by MH charities, which this may not affect. Which seems to back up what I briefly read before.
Has anyone heard of this happening where you live?
About 6 - 9 months ago I read that eventually social services will no longer be providing carers services. I have also recently heard that the services in Devon are going out to tender and that all carer workers will transfer under Tupe (their current contract with their present employer). Most of the carer workers are employed by social services, one or two by MH charities, which this may not affect. Which seems to back up what I briefly read before.
Has anyone heard of this happening where you live?
Tell me about it Rob, I am another year older on Tuesday and Monday is the three year anniversary of when I passed my driving test. It doesn't seem like three years ago I was telling everyone I had passed!
My husband is due to retire next year, he is 8 yrs older than me. And all we seem to be hearing people say is that it's time to start winding down. It's beginning to depress me, as if our next step is a nursing home! What about how old you feel inside, rather than people thinking they are giving wise advice and putting a damper on things!
That's five twelths of the year gone already, this year is going extremely quick. What with the recession, MPs expenses, Obamamania etc. - it seem's the world is getting smaller and spinning faster !
That's five twelths of the year gone already, this year is going extremely
quick. What with the recession, MPs expenses, Obamamania etc. - it seem's the
world is getting smaller and spinning faster !
:-)
Issue 17 of the NHS Centre for Involvement newsletter is now available on our website.
To access the current issue of the newsletter, please visit: www.nhscentreforinvolvement.nhs.uk/newsletters/.
If you are reading this and you are not registered with Centre but would like to be, please visit www.nhscentreforinvolvement.nhs.uk/register/ or call Gill on 02476 150645. If you have any questions, please email nci@....
Alternatively, you can contact the Centre via post at the following address: NHS Centre for Involvement 7 Vanguard Centre University of Warwick Coventry, CV4 7AL.
To avoid continually typing in your login details for the Centre's website, you can instruct Internet Explorer to save your name
and password. In the main browser menu, click ''Tools'' then ''Internet Options''. Click on the ''Content'' tab and under Personal information click the ''AutoComplete'' button. Make sure the boxes ''User names and passwords on forms'' and ''Prompt me to save passwords'' is checked. Next time you log into the site, you will be asked if you would like to save this information, and on subsequent visits, the log-in and password details will be automatically filled in as you start typing. Some networks may have disabled this feature for security reasons. If in doubt, please contact your network admin.
--- On Fri, 29/5/09, Pamela Pinder <pamshouse@...> wrote:
From: Pamela Pinder <pamshouse@...> Subject: Re: [Carersforumuk] Thousands of patient details lost To: Carersforumuk@yahoogroups.com Date: Friday, 29 May, 2009, 7:30 PM
Hardly unbelievable Rob this isn't the first time personal details and information has been lost. Not so long ago people benefits details were lost in the post and more besides.
NEXT PANORAMA - "A VERY DANGEROUS DOCTOR" - MONDAY 8.30PM ON BBC ONE
Hello there,
Not a day goes by without new revelations about MPs' expenses. Our reporter Shelley Jofre has now stood down from her fictional role as MP, but not before revealing all the ways in which our parliamentarians can access funds without breaking the rules.
In Is your MP working for you?, Shelley investigated the numerous ways MPs can make money through the system begging the question, could expenses just be the tip of the iceberg?
If you missed the programme you can watch it on the BBC iPlayer.
For more on Shelley's life as a Panorama MP go to the Panorama
website.
A full list of MPs' expenses claims, along with their responses and the latest on what they will be repaying, can be found at BBC News Online.
PAKISTAN BOMBING
Another story never far from the headlines is the escalating tensions in Pakistan between the army and the Taliban.
The country has tightened security with the capital Islamabad on red alert following a series of attacks across the country.
More than 200 people were injured and at least 24 killed in Wednesday's bomb attacks which targeted buildings belonging to the police and security services in Lahore.
Peshawar was also hit when two bombs exploded in a market killing 70 people. Shortly afterwards, a suicide bomber killed four soldiers at a military checkpoint on the outskirts of the city.
The Pakistani Taliban have warned of more
attacks in response to army operations in the Swat valley.
Panorama has been following developments in the country and at the end of last year sent reporter Jane Corbin to the border between Pakistan and Afghanistan to investigate the threat of civil war.
If you missed Britain's Terror Heartland you can watch it on the Panorama website where you can also find more information about the programme.
For an indepth look at the latest news from Pakistan go to BBC News Online.
BACK IN THE NEWS
The government's decision to back a new generation of coal-fired power stations came with the condition that they would limit CO2 emissions in line with the UK's commitment to cut emissions by 80% by 2050.
This week saw the
first attempt to test carbon capture technology on a working coal-fired power plant in the UK at Longannet power station in Fife.
In Comeback Coal, Panorama visited a German plant which was testing the carbon capture technology. The programme investigated the UK's commitment to greenhouse gas reduction alongside a change in policy which has seen a resurgence in opencast mining.
For more on the project on the coal-fired power station in Fife, visit BBC News Online.
"A VERY DANGEROUS DOCTOR"
That's what Dr David Southall's been branded. Last week he failed in his appeal to have the decision to strike him off the medical register overturned.
He is best known for
accusing a man of mudering his children after watching a TV documentary, but has himself been the victim of false accusations.
In Monday's programme, Panorama's Vivian White challenges Dr Southall to answer his critics and looks into evidence that might support his claims of victimisation.
"A Very Dangerous Doctor" is on BBC One, Monday 1 June at 8.30pm.
That's all from us for this week but you can keep up to date with Panorama on our website.
And remember you can e-mail us anytime at panorama@...
Hardly unbelievable Rob this isn't the first time personal details and information has been lost. Not so long ago people benefits details were lost in the post and more besides.
Moscow, Russia and Budapest, Hungary, 29 May 2009. At a roundtable event held yesterday in Moscow under the auspices of the Russian Ombudsman, NGOs advocated for a root and branch reform of legislation concerning guardianship for adults with disabilities, in line with the United Nations Convention on the Rights of Persons with Disabilities.
The roundtable discussion, co-organised by the Mental Disability Advocacy Center (MDAC) and the NGO Independent Psychiatric Association of Russia, was attended by parliamentarians, representatives of the Ministry of Health and local guardianship authorities, psychiatrists and human rights and disability NGOs. Opening the event, Russian Federal Ombudsman Vladimir Lukin emphasised the importance of guardianship reform, pointing out that the plight of people deprived of their legal capacity attracts too little public attention. The Ombudsman acknowledged that people under guardianship enjoy the worst level of rights protection among all vulnerable people. He pointed to the inadequacy of current guardianship legislation and the lack of effective supervision, highlighting as an example a provision in the law which establishes an independent advocacy service for patients in psychiatric institutions, a provision which has never been implemented. In addressing an often taboo topic, the Ombudsman expressed his particular concern about the increase of guardianship orders purely for the financial gain of others.
Roundtable participants discussed key problems posed by the current system of guardianship, including weak procedural safeguards in court proceedings on legal capacity, inadequate regulation of the responsibilities of guardians and guardianship authorities, as well as the near impossibility of restoring a person's legal capacity. Participants acknowledged that there is a lack of alternatives to plenary guardianship, and that this is one of the key shortcomings of the system. Lawyers, psychiatrists and human rights activists working in the field stressed that very often guardianship fails to serve its ostensible purpose of protecting the rights and interests of persons with disabilities.
The participants agreed that the law on legal capacity and guardianship is in need of a root and branch reform. They mapped out the main directions such reform should take, in line with Article 12 of the United Nations Convention on the Rights of Persons with Disabilities, a treaty which Russia took an active role in negotiating, and which it signed in September 2008. Representatives of mental disability NGOs also emphasised the Convention provision which obliges policy-makers to actively seek input from disabled people's organisations in particular and civil society in general, and to create a platform which allows all stakeholders to participate in developing and monitoring laws and policies.
MDAC hopes that the interest expressed by the Ombudsman and the Russian authorities at yesterday's roundtable will be an important step in initiating both a public debate about the current guardianship system and governmental action towards its reform. Since its inception in 2002 MDAC has been framing legal capacity and guardianship issues as a human rights concern and in 2008 it produced a report on guardianship law and practice in Russia. In strategic litigation by MDAC, the European Court of Human Rights in 2008 and the Russian Constitutional Court in 2009 both criticised the existing legislation. Yesterday's roundtable event forms part of a project on disability rights advocacy in Russia which MDAC is implementing with financial support from the Swedish Helsinki Committee and the UK's Foreign and Commonwealth Office.
For more information please contact Yuri Marchenko, tel: +36 1 413 2730 (in Hungary) or Dmitri Bartenev, tel: +7 905 222 8915 (in Russia), or email mdac@....
Donate securely
The Mental Disability Advocacy Center (MDAC) advances the human rights of children and adults with actual or perceived intellectual or psycho-social (mental health) disabilities. Focusing on Europe and Central Asia, we use a combination of law and advocacy to promote equality and social integration. MDAC has participatory status with the Council of Europe.
MDAC's vision is for a world that values emotional, mental and learning differences, and where people respect each other's autonomy and dignity.
Mental Disability Advocacy Center Rákóczi út 27/B, 1088 Budapest, Hungary Tel: + 36 1 413 27 30, fax: +36 1 4 13 27 39 Email: mdac@..., web: www.mdac.info
Skillnet Group CIC has been commissioned by Kent County Council to be part of the East Kent Brokerage Pilots.
We have funding for one year to provide a generic brokerage service in the districts of Shepway and Swale. This service will be available to everyone eligible for Kent Adult Social Care Services.
We will be working closely with Enterprising Opportunities in Swale as they will also be recruiting a Broker under the same scheme.
Brokers support people who have an individual budget to plan and direct their own support and have the life they choose.
We are looking for people who are excellent â€community-connectors’ to become part of our Brokerage Team. These are people who support others to make links within their own communities.
We have two posts available:
·Part-time Broker in Swale(18.5 hours each week)
·Full-time Broker in Shepway (37 hours each week)
These posts are open to job share and are based on flexible working hours.
The posts will be fixed term for 12 months, with the possibility of renewal. Starting salary is ÂŁ20,334 per annum, pro rata.
You will receive an excellent training package and the chance for personal development.
We are looking for people who are:
ĂĽExcellent at supporting people to make connections within their local communities. You will need to be knowledgeable about the local area and good at networking. You will need to be good at researching different types of support that is available to people.
ĂĽAble to support people in a person-centred way, listen to people and find out what is important to them in order to develop their support plan accordingly.
ĂĽSupport people to involve others who are important in their lives to ensure that they are able to develop natural support systems.
ĂĽCreative and flexible in your approach so that you can find the best options for people.
ĂĽAble to support people well and do not take over. This means showing that you understand that people need different types of support at different times.
ĂĽAble to work flexibly, use your own initiative, work as part of a team and in partnership with other organisations.
Please mark your envelope or e-mail: Brokerage Application.
We will need to receive your application by
12noon on Monday the 8th of June 2009
Interviews will be held on Thursday 18th June 2009.
These posts are exempt from the Rehabilitation of Offenders 1984 and you will be required to declare all past convictions, whether spent or not.
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Company No. 4567984 Incorporation date: 21/10/02 Incorporated in the United Kingdom Main Office: Second Floor, Maybrook House, Queen's Gardens, Dover, Kent, CT17 9AH
Fri 5 June 10.00am-1.00pm OR Tue 3 Nov 10.00am-1.00pm at High Peak CVS, Bingswood Trading Estate, Whaley Bridge
This course is for anyone interested in learning about computers, who currently has little or no “hands on” experience. The session will be for absolute beginners to unravel the mysteries of technology starting from plugging in and switching on, mouse and keyboards basics, navigating windows, using My Computer, Windows Explorer and creating new folders. Also, when things go wrong, how to put them right. So come prepared with your computer problems!
Free to High Peak voluntary and community groups without paid workers, ÂŁ20 to voluntary and community groups in the High Peak with paid workers, ÂŁ25 to voluntary and community groups outside the High Peak, ÂŁ35 all others
Thur 11 June 10.00am-1.00pm OR Thur 1 Oct 10.00am-1.00pm at High Peak CVS, Bingswood Trading Estate, Whaley Bridge
Short of cash? Would you like to know how to go about making grant applications – and be successful?
This is a FREE introductory session for those with little or no experience of making applications for grant funding.
The task of applying for grants can seem awesome. This session will provide you with a step-by-step process including where and how to find out who to apply to, how to make your cause look attractive to the funder, and inspire you with confidence to have a go!
The Arthur Rank Centre will launch a ÂŁ180,000 training project to strengthen churches in the countryside. The first part of the work will begin immediately and the first training modules will become available to churches in 2010 -
The Sustainable Communities Act, gives people the opportunity to come up with proposals to improve where they live.
High Peak Borough Council have recently invited local residents, groups and organisations to put forward proposals on improving the place where they live, giving local people the opportunity to improve their local neighbourhood.
As part of the Act, the Council wants to set up a representative panel to consider the proposals received and would like to invite you to be involved in this panel. The panel will assess the proposals to make sure that they meet the criteria set out in the Act and decide which if any of the proposals should be submitted by the Council to the Local Government Association (LGA).
The panel will meet on Monday 1 June 2009 starting at 2pm at High Peak CVS, Unit 1A, Bingswood Trading Est, Whaley Bridge, High Peak, SK23 7LY to discuss and consider the proposals submitted. This will be the only meeting of the panel for this year's round of proposals. The proposals received cover Planning, Highways and Climate Change issues.
Places are limited, so please contact Customer Services on 0845 129 77 77 or email kerryt@... asap if you would like to attend or if you are unable to attend the meeting but would still like to be involved.
Thur 28 May 1pm – 3.30pm at Derby Multi-faith Centre
You are invited to join this networking event, for faith based, statutory, voluntary and community groups working in the region to get to know one another, share best practice and find out more about the Community Development Foundation’s Faiths in Action programme. This event is free, including lunch. Please register by emailing james.moore@... or Tel: 01223 400341. Places offered on a first-come, first-served basis.
Making Regeneration Work
Derby and Derbyshire Launch Events, â€Making Regeneration Work – An Introduction to Ep2’
Ep2 is a new skills programme for people that work or live in disadvantaged areas in the East Midlands and who are committed to regeneration. It’s different because it is about empowering communities to carry out regeneration for themselves and is founded on the belief that every community, however disadvantaged, contains the seeds of its own transformation. The programme consists of a series of innovative tools and techniques designed to meet the situations that regeneration practitioners and others find themselves in every day.
The â€Making Regeneration Work – an Introduction to Ep2’ events provide the background and current policy context to the programme, a description of the Ep2 tools as well as an opportunity to use the tools in a choice of facilitated workshops. The event also includes a presentation on the â€Coaching for Regeneration’ programme of training and how the application and benefits of a coaching approach can be used to support community and local economic regeneration. The programme has been developed by a range of partners including the New Economics Foundation
The Ep2 programme is supported by emda and the next four events in Derby and Derbyshire are available free of charge. For further information and to book a place please go to the Programme Calendar at www.ep2online.org or email Steve Collins, Programme Manager at steve@...
New Discipline and Grievance Rules
Free briefings for VCS organisations in June 2009 5 June 2009 10.30am - 12.30pm at Derby CVS
A revised Acas Code of Practice has been introduced. As employers and managers we are expected to follow this guide and the good practice it lays out. If we don't, and end up at an Employment Tribunal, the employee's compensation could increase by up to 25 per cent if you have acted 'unreasonably'.
The sessions will cover: - Background to the changes - What is contained in the new legislation and the Acas Code of Practice - and how it will affect you - What is 'Fair and Reasonable'? - Unfair Dismissal including procedural issues - Penalties for non compliance with the Code - How to resolve disputes earlier and in the workplace - What you need to do next
Community buildings in the High Peak can now apply for a free energy audit from sustainable energy charity Marches Energy Agency. The funding is open to all community buildings, including village halls, community centres, churches and schools.
The audits will assess the possibilities for installing a range of green renewable energy technologies in each community building, including solar panels, ground source heat pumps and wood pellet boilers. They will also give recommendations for energy and cash saving measures such as insulation and low energy lighting.
A limited number of studies are being offered completely free of charge to community groups, on a first come, first served basis. Costs are covered by funding from Big Lottery’s Community Sustainable Energy Programme (CSEP), and by High Peak Borough Council.
Joe Bentley, of Marches Energy Agency, said “This is a fantastic opportunity for community groups to find out how they could best cut fuel bills, keep buildings warm and invest in a sustainable future”.
The studies are intended to be a stepping-stone towards an application to capital funding available under the Big Lottery’s Community Sustainable Energy Programme. The programme will cover up to 50% of the cost of purchasing and installing the renewable technologies recommended in the audits. Applications are most likely to succeed where community buildings face high energy costs, where a high level of building usage would offer an opportunity to raise the profile of renewable energy technologies, and where significant CO2 savings are likely to be made.
For further information or to register your interest in the free audits, contact Joe Bentley at Marches Energy Agency on 01743 277108 or email joe@...
Derbyshire Sexual Health Promotion Service (formerly CASH project) is on the move! From 1st June 2009 you can visit us at our new home: 1 Tennyson Avenue, Chesterfield, Derbyshire S40 4SN.
More details and other stories in their Newsletter.
Charities and Elections
The Charity Commission has updated its guidance on what charities need to know during the run-up to an election, national or local, or in this case, with an eye on the European elections taking place on 4th June. The guiding principle of charity law is that charities should be, and be seen to be, independent from party politics. Read the guidance at www.charitycommission.gov.uk/supportingcharities/elect.asp
Barnardo's Young Offenders Programme
The programme applies to young offenders aged from 16 to 25 years. It involves a flexible 10 week placement in a Barnardo's shop where the offender receives retail training and it is hoped this will help them develop new skills and enhance their levels of self-confidence.
They have the opportunity to do a Youth Achievement Award putting together evidence of four 15 hour challenges. If a serving prisoner, the first challenge is done in the prison environment looking at issues around jobsearch such as compiling a Curriculum Vitae and so on. The next three challenges can be tailored to the individual offender but might involve things such as operating a till, merchandising and so on. I am very keen to make sure that these three challenges fit in with the interests and aspirations of the individual offender as much as possible. I am also keen to look at ways that the offenders can be supported appropriately with putting together the portfolio.
Young Offenders Programme Coordinator Kate Davis-Holmes (07990 805613) is very keen to have views from others as to how the Programme can best meet the needs of offenders whilst ensuring a good quality experience for the Barnardo’s shops and the criminal justice agencies involved too. There are opportunities across the United Kingdom.
Gift Aid Time Limits Information Now Online
HM Revenue and Customs guide to the Gift Aid claim procedure has now been updated with the time limit changes from 1 April 2010. The general time limits for making repayment claims will be four years and those limits will apply equally to all charities. www.hmrc.gov.uk/charities/gift_aid/reclaim.htm#7
First Aid at Work Web Revamp
The Health and Safety Executive has re-launched its First Aid at Work website, with easier navigation, covering employer duties, a range of resources and the 'ask an expert' facility – www.hse.gov.uk/firstaid/index.htm
Supporting Students in Volunteering
Volunteering England has published 'Safeguarding student volunteering in the Further Education sector', with the aim to help colleges to support more vulnerable adults and students under the age of eighteen to volunteer. It highlights practical steps to safeguard students in volunteering both on and off campus. Info from Volunteering England.
Five Minute Guides
NCVO has a batch of new online Five Minute Guides (short intros/top tips) on multimedia, retaining new members, copywriting and strategic planning, currently linked from the front page, www.ncvo-vol.org.uk Otherwise, check the AskNCVO section, at www.ncvo-vol.org.uk/askncvo/
Charity Use of the Internet in 2008
The results of Virtual Promise 2008, the annual survey of how charities are using the internet, have been published by nfpSynergy. Some notable results are that 35 per cent of charities had redesigned their website in the last six months, almost half were using social networking, but only a fifth of respondents agreed that their charity was making the most of the internet, halved since 2005. Download pdf, 1.21MB.
Capacitybuilders ÂŁ3m Programme for Volunteering Support
Capacitybuilders is developing a new ÂŁ3m programme to boost the support available to people managing volunteers. The programme, to be launched in June, is part of a ÂŁ6.6m boost for volunteering announced by the Office of the Third Sector on 6th May.
The programme has three key strands including grant funded local projects to further increase the reach and quality of support for local people managing volunteers, work to raise the profile of volunteer management at a national level and bursaries to increase access to training relevant to the management and co-ordination of volunteers. To find out more about the programme, please visit Capacitybuilders website.
My name is Lucy Cohen and I am writing to you from a production company called Maverick Television.
We are making a one-hour documentary for the BBC and the Open University about mental health, filmed in the Nottingham area.
One of the aims of the documentary is to put the experience of service-users at its heart, in the hope of better understanding what it is like to live with mental health issues and to tackle the stigma that is often associated.
The final documentary will show the stories of a small number of people as filmed over a period of several months. The filming would be observational in nature, showing the highs and the lows and journeys that these individuals may go on over this period.
We are interested in the National Service-User Directorate and other service-user groups as they show the help that is available outside of traditional mental health care and in particular, the effectiveness of peer support.
If you live in Nottinghamshire and would like to be involved in anyway, I would very much like to hear from you. There is no obligation to be filmed in any way, but perhaps you would like to share your story or let us know what you would like to see in a documentary. Such insights would be invaluable for our research and all conversations would be confidential.
Full Time Deputy Director Post - Secondment Opportunity for someone in the Public Sector
Are you striving for a change and unsure about what to do?
Have you ever experienced the dynamics of working in the Third Sector?
Well this maybe the position you have been waiting for.
Being an employee of the Public Sector gives you the opportunity to explore your training and development needs, including that of being seconded from one department to another. Or choose to go into the Private Sector.
During the time when Government is working much more closely with the Third Sector, and supporting the development of enterprises, particularly those which are community service user led. Why not come and help to develop the UK’s Europeans only National Council of BME Disabled people & Carers.
Equalities National Council is a highly respected Enterprise with close working Partnerships with a number of Government departments, one in particular the department of Health.
The Deputy Director will be responsible to the founder & Chief Executive, and will be responsible for guiding and developing the Senior Management Team, Staff, Volunteer Trainers and Students to steer the 9/10 Regional development plan.
We foresee the secondment being for 12-18 months, but are happy to discuss flexibilities if requested.
For further information contact Tel: 020 7474 9812. Enquiries@...
To Apply- Send your CV to; leon.green@...
Please note, you DO NOT have to be from the BME Community to apply, however we would expect you to have a very good knowledge base of the issues experienced by our client group.
The European Anti-Poverty Network: Fighting for a Social Europe Free of Poverty! EAPN FLASH
NEWS FROM EAPN
EAPN launches Adequate Minimum Income Campaign website !
The European Anti Poverty Network (EAPN) has launched this Monday 25 May a website (www.adequateincome.eu) as part of the second stage of its Adequate Minimum Income Campaign. EAPN calls on all people who believe in providing everyone with the opportunity to live a dignified life to join the campaign by signing the appeal on the website. Read more.
EAPN Seminar: 2010 and beyond - the legacy we want
On Friday 29 May EAPN will hold an important seminar to set out its priorities for the post 2010 EU agenda and to set out the priorities it would like the renewed EU institutions to address. Taking as a starting point, the 10 demands which EAPN has widely circulated as part of its campaign for the European Parliament elections, this seminar will further elaborate the content of these demands. The members of the key working groups of EAPN have been invited to participate in this seminar as well as representatives from a range of other actors who will help shape the post 2010 agenda. The results of the seminar will be gathered together after the seminar in an EAPN position paper which will be widely distributed in order to try to influence the future EU priorities.
EAPN disappointed with Employment Summit conclusions
Social Cohesion promised - but not delivered. EAPN welcomes the commitment made by the Summit to put people at the centre of the recovery plans, promoting social cohesion through an integrated economic, employment and social approach. However, these principles are not delivered through the actions proposed. The 10-step solutions focus mainly on maintaining jobs at any price, without taking full account of the broader social impact of the crisis. Read more.
8th Meeting of People experiencing poverty
150 Europeans facing poverty gathered in Brussels on 15-16 May to meet and exchange directly with EU decision makers, representatives from national governments and NGOs, about poverty and social exclusion. This meeting’s topics were housing, basic services and financial inclusion. This 8th annual Meeting of People Experiencing Poverty was organised by the Czech EU Presidency, with the support of EAPN and of the European Commission. Read more.
NEWS FROM THE EAPN NATIONAL NETWORKS
EAPN Belgium holds a press conference on its activity plan 2009-2010
EAPN Spain: 6th Meeting of People experiencing poverty
7-9 May, Ciudad Real Madrid - “We are not alone, we know what we want”. For the 6th year, EAPN Spain organized its national Meeting of people experiencing poverty, with the help of the Ministry of Public Health and Social Affairs and of the European Commission. For 3 days, participants have expressed their ideas, expectations and proposals to improve their living conditions in a context of economic crisis. Read more (in Spanish).
EAPN Spain: “integrACTÚA” initiative for social inclusion
ON 29 April, Valencia hosted the 1st in a series of 15 autonomic seminars, in the framework of the “For Social Inclusion, IntegrACTÚA” initiative, which aims at strengthening social inclusion policies in Spain. Read more (in Spanish).
NEWS FROM THE EU INSTITUTIONS
EU begins to rethink growth an jobs strategy
As the recession bites, national governments and the European Commission have begun to reflect on replacing the EU's overarching strategy for growth and jobs, known as the Lisbon Agenda. “Green growth”, innovation and education are likely to feature highly among the EU's new priorities. The European Commission is preparing a broad Internet consultation on revising the Lisbon Strategy in early autumn 2009. Read more.
EU Parliament recognises importance of active inclusion in society
On Friday 30 April EAPN wrote to MEPs to request support for Green MEP Lamberts Report on Active Inclusion, voted in the European Plenary session on 6 May. UK Green MEP Jean Lambert, author of a report on "active inclusion in society", commented on its adoption by the European Parliament. Read more.
European Parliament's analysis of the Lisbon Treaty
A comprehensive review of the European Union's new institutional structure, should the Lisbon Treaty be ratified in 2009, as foreseen by the December 2008 European Council, was approved by the European Parliament on 7 May. The report, drafted by Jo Leinen (PES, DE) on the "New tasks and responsibilities of the EP for the implementation of the Lisbon Treaty" was approved by 441 votes in favour, 77 against and 18 abstentions. Read more.
The European Parliament sets out new rules on asylum policy
A package of measures to improve the way the EU asylum system works and strengthening asylum seekers' rights has been adopted today by the European Parliament. MEPs adopted amendments to enhance solidarity between Member States when managing asylum applications, and call for a binding mechanism to be set up before 2012. Read more.
“The response to the economic crisis should lead to more equality” says Commissioner Hammarberg
“A serious attempt to address the enormous gaps between the wealthy and the destitute is long overdue”, commented the Council of Europe Commissioner for Human Rights, Thomas Hammarberg, on 11 May in his latest Viewpoint. The Commissioner points out inequalities and injustices which afflict European societies and calls for better protection of vulnerable groups. “Measures against the economic crisis should not only focus on restoring the banking system and encouraging investment and more spending” he says. “There is also an urgent need to protect the marginalised and restore social justice.” Read more.
EC campaign: “do you know what social Europe can do for you?”
The European Commission has launched a campaign to explain what the EU is doing to create more and better jobs, improve working conditions or remove barriers to job mobility. Read more.
European Health Insurance Card
The European Commission has launched an information campaign to raise awareness of the benefits of the European Health Insurance Card (EHIC). Read more.
EC refers Poland to European Court of Justice on gender equality legislation
The European Commission has on 14 May 2009, referred Poland to the European Court of Justice (ECJ) for non-transposition of EU rules prohibiting gender discrimination in access to and supply of goods and services (Directive 2004/113/EC). Poland has not yet adopted the necessary measures to give effect to the legislation in national law, despite a 'Reasoned Opinion' (second stage warning) sent by the Commission in 2008. Read more.
NEWS FROM NGOs AND OTHERS
AGE General Assembly call for a ban of mandatory retirement ages
On the occasion of its General Assembly 2009, AGE members have called for a ban of mandatory retirement ages, the establishment of mandatory European quality standards for long term care and a EU Year on active ageing and intergenerational solidarity in 2012. Read more.
COFACE celebrates the International Day of Families: maternity leave raises concerns
“Just at a time when families all around the globe are getting ready to celebrate the International Day of Families (…) we hear the news that the report on the maternity leave directive setting to improve both duration and payment conditions for mothers got referred back to the Parliamentary committee!,” declared COFACE President, Yves Roland-Gosselin, on Friday 15 May, during the 16th edition of the International Day of Families. COFACE, as did other European social NGO’s involved in the issue, said it was both surprised and disappointed to see the directive blocked. Indeed, the event -considered as a political U-turn as far as family policies are concerned- that took place last week during a plenary vote session at the European Parliament could not happen at a worst time. Read more.
1st meeting of the EU Roma Platform
The EU Roma Policy Coalition (ERPC) has issued an assessment and recommendations to the European Commission and EU member states regarding the first meeting of the EU Platform for Roma inclusion, held on 24 April, and its future development. Read more.
EDF’s General Assembly in Athens: the future cannot wait!
The European Disability Forum held its 13th Annual General Assembly in Athens on 12 May. the representative organisation of 65 million persons with disabilities in Europe, gathered in Athens more than 200 participants from 30 national federations and 50 European disability NGOs to elect its leaders. Read more.
Solidar: “Together for Social Europe” continues
The presentations that social workers made to European decision makers on their experiences of working with poor and vulnerable people at the Together for Social Europe conference on 29 April are now available. The Together for Social Europe campaign continues with SOLIDAR members carrying out a series of activities at national level. Coming up in the next couple of months are activities in the Czech Republic, Austria, Spain, Lithuania, France and Romania. Read more.
PUBLICATIONS
Child Safety Report Card 2009: Europe Summary for 24 countries
A 24 country summary of Member States´ performances with respect to the level of safety provided to children and adolescents based on over 100 proven effective prevention national level strategies and policies. Read more.
Handbook for lawyers defending Roma and Travellers communities
The Council of Europe’s Roma and Travellers Division has published a handbook for lawyers defending Roma and Travellers communities entitled "Ensuring access to rights for Roma and Travellers - The role of the European Court of Human Rights". Read more
Council of Europe publication on racism against migrants in Europe
The increase of racism against migrants should be discussed at a time when the issue of migration is at the heart of many States’ concerns. This publication analyses migration policies which may have an influence on this increase. Read more (in French)
Council of Europe report on economic migration, social cohesion and development
This report was prepared to support the ministerial debate during the 8th conference of the European ministers. It presents the main aspects and characteristics of migration in the member states of the Council of Europe, analyses policy challenges raised by contemporary migration and identifies an integrated policy agenda. Read more
FEANSTA’s magazine: Spring 2009 edition is online
The Spring 2009 edition of Homeless in Europe, FEANTSA’s tri-annual magazine, is now available online. The theme of this issue is “Homelessness and the Arts: Creativity, empowerment and social change”. Read more.
Transfer, European Review of Labour and Research: “Lisbon: a failed strategy or still relevant for the future?”
This issue of Transfer assesses various aspects of the Lisbon strategy in the run-up to its review in 2010. The contributors are broadly critical not only of the capacity of the Lisbon strategy to create a full employment, knowledge-based society by fostering a real policy of innovation and growth for Europe, but also of its effects in terms of governance. Published by ETUI, 2009. Read more.
Call for Proposals: Youth in Action - Programme (2007 - 2013) - Deadline: from 01 February 2007 up to the end of 2013. Deadlines vary according to Action. Please contact the European Commission or your National Agency)
Call for proposals: Restructuring, well-being at work and financial participation – Deadline: 18 May 2009 for activities commencing no earlier than 20 July 2009 and 1 September 2009 for activities commencing no earlier than 3 November 2009 and no later than 21 December 2009.
Do you wish to share information, announce an event or a publication? Please, send it to team@...
The EAPN Flash is supported by the European Community Programme for Employment and Social Solidarity (2007-2013).
This programme was established to financially support the implementation of the objectives of the European Union in the employment and social affairs area, as set out in the Social Agenda, and thereby contribute to the achievement of the Lisbon Strategy goals in these fields.
The seven-year Programme targets all stakeholders who can help shape the development of appropriate and effective employment and social legislation and policies, across the EU-27, EFTA and EU candidate and pre-candidate countries. To that effect, PROGRESS purports at: providing analysis and policy advice on employment, social solidarity and gender equality policy areas; monitoring and reporting on the implementation of EU legislation and policies in employment, social solidarity and gender equality policy areas; promoting policy transfer, learning and support among Member States on EU objectives and
priorities; and relaying the views of the stakeholders and society at large.
EAPN is supported financially by the European Commission. The views expressed herein are those of the authors and the Commission is not responsible for any use that may be made of the information contained herein.
Is recruiting new members for the Management Committee which helps steer the organisation to achieve its aims and objectives
NSUN exists to develop networking, which will engage, support and reflect the diversity of mental health service users and survivors across England.
We do this by
Supporting individuals, existing groups and networks.
Providing practical support and capacity building to strengthen and support survivors and service users in their activities.
Facilitating and enabling the widest range of survivors and service users to have a voice in informing and influencing local, regional and national developments in mental health.
This is an exciting time to join the Committee. The setting up period is complete, and we are now starting to expand and extend to the widest range of service user individuals and groups.
People must be willing and able to commit at least two days a month which will largely be split between reading papers, preparing for and attending meetings and various other actions as appropriate.
This is a voluntary position and out of pocket expenses will be reimbursed
For more information or an application pack, please email us at amma.djan@... or phone us on 0207 820 8885
Amma Djan Finance and Administrative Officer National Survivor User Network 27 - 29 Vauxhall Grove Vauxhall London SW8 1SY
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I have not followed the baby p story really, but it strikes me that the guy gets only a 12 year minimum, that is more disturbin than the mother's punishment to me, because maybe he had a larger part to play in the the whole sorry mess, he should be getting 25 years at least.
But then justice is not applied equally is it? If you are a Lord involved in a fatal car crash just after you have been texting at 70mph, you'll be out in a couple of weeks, yet the police will turn up at your doorstep to chase down a 60 quid fine for doing 37 in a 30 zone, threatening you with all sorts of crap.
One law for them and one for us, is how it will always be, but i agree that a child's death should be top of the list for a long long sentence....however, didn't the mother get an indeterminate sentence? she will do 5years at least and will
only be released if she is assessed as no longer being a threat to children...she might be doing a bit more than 5 years given the public hostility towards her.
Yes Alex it did say the mother would serve a minimum of 5 yrs but could be held
indefinately. I haven't been following every step of the trial either but picked
up on the main points mostly.
2 men were charged with actually killing Baby P, so from my understanding they
were the ones that actually beat and killed him.
Also from my understanding (I may not be right here)the mothers part was hiding
the injuries that were inflicted and protecting her boyfriend. How any mother
could do this is beyond me, to stand by and watch her child being beaten and
tortured almost daily and doing nothing about it.
This to me is unnatural, which makes me think there is more with the mother than
has been exposed. Personally if I were her, he wouldn't have got away hitting
him once. Any normal mother has an in built protective instinct towards their
children.
I think I would be more likely to end up in the dock for killing the boyfriend.
But as you say the punishment doesn't fit the crime, it doesn't reflect the
intense pain and suffering inflicted upon baby P.
Pam
--- In Carersforumuk@yahoogroups.com, alexjenson04@... wrote:
>
> I have not followed the baby p story really, but it strikes me that the guy
gets only a 12 year minimum, that is more disturbin than the mother's punishment
to me, because maybe he had a larger part to play in the the whole sorry mess,
he should be getting 25 years at least.
> But then justice is not applied equally is it?
> If you are a Lord involved in a fatal car crash just after you have been
texting at 70mph, you'll be out in a couple of weeks, yet the police will turn
up at your doorstep to chase down a 60 quid fine for doing 37 in a 30 zone,
threatening you with all sorts of crap.
> One law for them and one for us, is how it will always be, but i agree that a
child's death should be top of the list for a long long sentence....however,
didn't the mother get an indeterminate sentence? she will do 5years at least and
will only be released if she is assessed as no longer being a threat to
children...she might be doing a bit more than 5 years given the public hostility
towards her.
>
I have not followed the baby p story really, but it strikes me that the guy gets only a 12 year minimum, that is more disturbin than the mother's punishment to me, because maybe he had a larger part to play in the the whole sorry mess, he should be getting 25 years at least. But then justice is not applied equally is it? If you are a Lord involved in a fatal car crash just after you have been texting at 70mph, you'll be out in a couple of weeks, yet the police will turn up at your doorstep to chase down a 60 quid fine for doing 37 in a 30 zone, threatening you with all sorts of crap. One law for them and one for us, is how it will always be, but i agree that a child's death should be top of the list for a long long sentence....however, didn't the mother get an indeterminate sentence? she will do 5years at least and will
only be released if she is assessed as no longer being a threat to children...she might be doing a bit more than 5 years given the public hostility towards her.
The European Anti-Poverty Network: Fighting for a Social Europe Free of Poverty! EAPN FLASH
Brussels, 25 May 2009
Press release: Join the Campaign for Adequate Minimum Income Schemes !
The European Anti Poverty Network (EAPN) launches today a website (www.adequateincome.eu) as part of the second stage of its Adequate Minimum Income Campaign. EAPN calls on all people who believe in providing everyone with the opportunity to live a dignified life to join the campaign by signing the appeal on the website.
Prominent figures such as Dario Fo, Nobel Prize winner; Jacques Delors, former President of the European Commission; Aye Aye Win, Director of Dignity International; John Monks, General Secretary of the ETUC and Conny Reuter, President of the Social Platform have already joined the campaign.
Every day, 79 million people facing poverty in the EU are forced to make difficult choices; between heating and eating, paying their rent or buying essential goods. The recently held 8th European meeting of people experiencing poverty confirmed that adequate and accessible minimum income schemes, coupled with access to essential services and in particular housing, are a key instrument to address this reality.
“Minimum Income schemes are a lifeline for many people experiencing poverty, providing money for essentials and support to be active in society, as well as being essential tools to stabilise the economy and ensure a social response to the current economic crisis", said Ludo Horemans, President of EAPN.
“In pursuing this campaign we are not looking for something new, we are just asking Governments and the EU Institutions to respect existing international human rights instruments and commitments. We are also asserting that Adequate Minimum Income schemes are good for everyone, as they provide the foundations for building decent societies” said Fintan Farrell, Director of EAPN.
As a key part of this campaign, EAPN calls on the Member Sates and the EU Institutions to respect the commitment made in the December 2008 Recommendation on Active Inclusion to recognise “the individual’s basic right to resources and social assistance sufficient to live a life that is compatible with human dignity”.
/END
For further information, seewww.adequateincome.eu or contact Nellie Epinat (Communication & Press Officer) or Fintan Farrell (Director), tel. +32 2 226 58 50 - fax. +32 2 226 58 69 – E-mail: team@... – Website: www.eapn.eu
EAPN is a representative network of non-governmental organisations (NGOs) and groups involved in the fight against poverty and social exclusion in the Member States of the European Union.
That thought crossed my mind a few days ago Rob. Baby P mother got 5 yrs for her part in his death a few days later I heard another story about a large sum of money being stolen and the person got 6 yrs!
So it seems that money is more precious than a child's life, the boyfriend got 12 yrs that included raping a 2 yr old. Compare this to what the great train robbers got. The boyfriend is a danger to children and I can't see this changing in 12 yrs time, or ever come to that.
Quite simply, confidentiality is a "con", a tool to protect the theoritical
incompetent policies & procedures put in place by the bureaucrats but don't work
in practice - so Staff have to rely upon the "confidentiality" excuse to cover
themselves, especially in such a compensation culture that is prevalent today.
.
--- In Carersforumuk@yahoogroups.com, "Pamela Pinder" <pamshouse@...> wrote:
>
> The difference is Rob, you are coming at it from a different perspective than
a carer/relative is. There is a difference between confidential information and
general information that is needed by the carer to enable them to support their
relative. If a person is going through a mh crisis suffering psychosis the way
they think can be impaired compared to how they would think when well.
>
> My son would not speak to anyone on the phone when he was like this, even
though he never stated he did not want me to know anything it is assumed. I
often had to phone up to enquire about something on his behalf and say for
example he had an appointment and forgot what time it was. I would phone the
GP's secretary to ask when the appointment was and would be told that they
couldn't tell me because it was confidential. So now I am in a predicament, my
son wouldn't speak to her because of how his symptoms effected him, he needed to
see the GP and I could not get the information to keep the appointment,. So now
my blood pressure starts rising, I start feeling frustrated this appointment is
important. My son will also not leave the house alone, to be able to get to the
GP, I need to go with him or he would not get there at all.
>
> I try explaining how my son is to the secretary and the reason I am phoning
and not him. Still she refuses to give me the info, all of this time my stress
levels are rising higher and higher and becoming more annoyed. Until I reach a
point I lose self control and start ranting at the secretary. She starts getting
stroppy back, and all I want to know is the time of my son's appointment!
>
> Giving another example, when my son had improved and would go to the GP on
his, even though at that time he would still not speak to anyone on the phone.
He had just started a new medication and went to collect what he thought was his
prescription (not knowing that the actual meds were delivered straight from the
hospital pharmacy to the gp surgery) he returns home saying that they didn't
have the prescription. This was on a Friday, the surgery was closed over the
week-end, and I knew if he missed his medication for two days the meds would be
out of his system and his symptoms would return. I also knew that he couldn't
just pick up where he left off, with the dose of his meds he would need to start
from scratch and build up the dose. This had happened before and had caused a
whole lot of problems...so now I am panicking.
>
> I phone to ask if my son had just been into the surgery to collect his
medication, as I wasn't sure if he had gone to the surgery or straight to the
chemist, as sometimes the chemist collected his prescription from the surgery.
He had only just started to venture out and was still apprehensive about doing
so, I wasn't sure he had actually been to get the meds or not and just told me
he did and didn't want to admit it, so then I would have to go there to collect
them. And guess what, I was told I can't tell you because it's confidential.
>
> Everytime we get slapped with confidentiality it obstructs something we are
trying to do and causes a lot of stress and unnecessary running around.
Everytime this happens we are forced to explain why we are phoning and not the
patient. Giving more information than is necessary and repeating it over and
over. I think this sort of information is more personal than me knowing whether
or not he had been to the surgery or what time his appointment was. Both of
which was part of his care.
>
> Pam
>
>
> Website: www.pamshouse.pwp.blueyonder.co.uk
> Message board: http://health.groups.yahoo.com/group/Carersforumuk/
>
> There are four kinds of people in this world... past carers - carers - future
carers ....and those who will need to be cared for
> ----- Original Message -----
> From: aim highpeak
> To: Carersforumuk@yahoogroups.com
> Sent: Sunday, May 24, 2009 4:31 AM
> Subject: Re: [Carersforumuk] HELP
>
>
>
>
>
> Really Pam,
>
> 'confidentiality' (as discussed many times) is just one of those
"things" that are used as a tool to either share or not share information about
anything, mental health is no worse or better when it comes to confidentiality
and is the most used/abused and misunderstood word I know.
>
> I visited my Town Hall about a housing matter recently concerning the
'company' who "manage" the Council's housing stock. All my details were on the
screen of the Council's computer (the Receptionist read them out in front of
other members of the public who were waiting) but when I asked for a contact
telephone number for the Complaints Manager of said 'company' - I was told that
the Council could not give it directly, that the Council would contact the
Complaints Manager, who would then contact me, as this information was
"confidential".
>
> Shock Horror ?
>
> Mental Health settings are no better (or worse) for 'confidentiality'.
It seem's to me that when you want to know something, you can't - for reasons of
"confidentiality". But when you don't wish to know anything, then all the
"confidential" information is freely talked about.
>
> How does "confidentiality" clash with Freedom of Information ?
>
> Call it 'irony' but don't call it "confidential"
>
>
> Donate/Circulate .... Thank You.
> http://www.justgiving.com/robhanlon
>
>
>
>
> --- On Sat, 23/5/09, Pamela Pinder <pamshouse@...> wrote:
>
>
> From: Pamela Pinder <pamshouse@...>
> Subject: Re: [Carersforumuk] HELP
> To: Carersforumuk@yahoogroups.com
> Date: Saturday, 23 May, 2009, 11:28 PM
>
>
> Tell me about it Rob, to my way of thinking putting together a
generic leaflet/policy is the same as others calling the shots.I remember once
giving an example of when a friend was in hospital and I phone to enquire what
ward she was on (in the general hospital) I was intending visiting her. I
pointed out I was given this information and was told I shouldn't have been told
this was confidential info. This is the norm for the general hospital but not
the norm apparently for the psych unit.... the info I was given was said to be
confidential.
>
> I believe there is a difference between confidentiality and general
information that is acceptable and accepted as the norm. They dictate anti
stigma but don't practice what they preach. I think it is stigmatising towards
those with mental illness to be treated and regarded as being different to the
general population.
>
> Bottom line is, even people with a mental illness can be a carer of
another and they are treated no differently so this is not only an issue for
those without mental illness who support someone in the community the same
applies to those with a mh prob if they find their selves in the role of caring
for someone else.
>
> Pam
>
>
> Website: www.pamshouse. pwp.blueyonder. co.uk
> Message board: http://health. groups.yahoo. com/group/
Carersforumuk/
>
> There are four kinds of people in this world... past carers - carers
- future carers ....and those who will need to be cared for
> ----- Original Message -----
> From: aim highpeak
> To: Carersforumuk@ yahoogroups. com
> Sent: Saturday, May 23, 2009 8:01 PM
> Subject: Re: [Carersforumuk] HELP
>
>
> "Locally the powers that be are in the process of putting
together a carers confidentiality policy and leaflet. "
>
> Why don't the local (Mental Health) Carers get together and
put their own confidentiaility policy together Pam?
>
> If all the NHS 'blurb' is to be believed, then it is the
Patients & Carers who should be at the heart of each and every process.
>
>
>
> Donate/Circulate .... Thank You.
> http://www.justgivi ng.com/robhanlon
>
>
>
>
> --- On Sat, 23/5/09, Pamela Pinder <pamshouse@blueyonde
r.co.uk> wrote:
>
>
> From: Pamela Pinder <pamshouse@blueyonde r.co.uk>
> Subject: [Carersforumuk] HELP
> To: Carersforumuk@ yahoogroups. com
> Date: Saturday, 23 May, 2009, 4:21 PM
>
>
> Locally the powers that be are in the process of putting
together a carers confidentiality policy and leaflet. But do not want it to be
specific to mental health but generic for all carers.
>
> There seems to be a problem that is not unique to where I
live, that nobody seems to be able to grasp the there is a difference between
caring for someone with a mental illness and physical illness. This is more
prominent in people who suffer from psychosis and how the symptoms of psychosis
effects their thought process. Which I see as this not being the person they
really are deep inside, but being controlled by the nature of the condition.
>
> I was recently told that if someone wrote out an advanced
directive and they stated that they wanted a named person to be informed and
kept involved and if they change their mind when they become unwell, not to take
any notice as this was how they become when unwell. Even after writing this, if
the person changed their mind and refused any information or involvement of the
named person when they became unwell, that staff would still take notice and not
give the named person any info. I wondered what point there is in making an
advanced directive and I did argue this point when it was said to me.
>
> Without going off on one further! What are your thoughts
on this?
>
> 1) What are the differences between caring for somebody
with a physical illness compared to someone with psychosis? (This would be to do
with communication) .
>
> 2) What impact does this constant chopping and changing of
one minute being involved and the next excluded. I have seen this happen to
carers and know myself the impact this has upon the carers mental health. It
would help if you could describe how this feels in your own words.
>
> I am thinking of writing up a paper and try to get across
why there should be a specific mh carers leaflet and a generic one for generic
carers. I also wonder how strongly generic carers feel about this I feel sure
they are not affected in the same way, as if the GP told their caree anything
the norm is that the caree would discuss with someone close to them.
>
> Do you have any logical and reasonable argument that you
would put across?
>
> Pam
>
>
>
> Website: www.pamshouse. pwp.blueyonder. co.uk
> Message board: http://health. groups.yahoo. com/group/
Carersforumuk/
>
> There are four kinds of people in this world... past
carers - carers - future carers ....and those who will need to be cared for
>
The difference is Rob, you are coming at it from a different perspective than a carer/relative is. There is a difference between confidential information and general information that is needed by the carer to enable them to support their relative. If a person is going through a mh crisis suffering psychosis the way they think can be impaired compared to how they would think when well.
My son would not speak to anyone on the phone when he was like this, even though he never stated he did not want me to know anything it is assumed. I often had to phone up to enquire about something on his behalf and say for example he had an appointment and forgot what time it was. I would phone the GP's secretary to ask when the appointment was and would be told that they couldn't tell me because it was confidential. So now I am in a predicament, my son wouldn't speak to her because of how his symptoms effected him, he needed to see the GP and I could not get the information to keep the appointment,. So now my blood pressure starts rising, I start feeling frustrated this appointment is important. My son will also not leave the house alone, to be able to get to the GP, I need to go with him or he would not get there at all.
I try explaining how my son is to the secretary and the reason I am phoning and not him. Still she refuses to give me the info, all of this time my stress levels are rising higher and higher and becoming more annoyed. Until I reach a point I lose self control and start ranting at the secretary. She starts getting stroppy back, and all I want to know is the time of my son's appointment!
Giving another example, when my son had improved and would go to the GP on his, even though at that time he would still not speak to anyone on the phone. He had just started a new medication and went to collect what he thought was his prescription (not knowing that the actual meds were delivered straight from the hospital pharmacy to the gp surgery) he returns home saying that they didn't have the prescription. This was on a Friday, the surgery was closed over the week-end, and I knew if he missed his medication for two days the meds would be out of his system and his symptoms would return. I also knew that he couldn't just pick up where he left off, with the dose of his meds he would need to start from scratch and build up the dose. This had happened before and had caused a whole lot of problems...so now I am panicking.
I phone to ask if my son had just been into the surgery to collect his medication, as I wasn't sure if he had gone to the surgery or straight to the chemist, as sometimes the chemist collected his prescription from the surgery. He had only just started to venture out and was still apprehensive about doing so, I wasn't sure he had actually been to get the meds or not and just told me he did and didn't want to admit it, so then I would have to go there to collect them. And guess what, I was told I can't tell you because it's confidential.
Everytime we get slapped with confidentiality it obstructs something we are trying to do and causes a lot of stress and unnecessary running around. Everytime this happens we are forced to explain why we are phoning and not the patient. Giving more information than is necessary and repeating it over and over. I think this sort of information is more personal than me knowing whether or not he had been to the surgery or what time his appointment was. Both of which was part of his care.
'confidentiality' (as discussed many times) is just one of those "things" that are used as a tool to either share or not share information about anything, mental health is no worse or better when it comes to confidentiality and is the most used/abused and misunderstood word I know.
I visited my Town Hall about a housing matter recently concerning the 'company' who "manage" the Council's housing stock. All my details were on the screen of the Council's computer (the Receptionist read them out in front of other members of the public who were waiting) but when I asked for a contact telephone number for the Complaints Manager of said 'company' - I was told that the Council could not give it directly, that the Council would contact the Complaints Manager, who would then contact me, as this information was "confidential".
Shock Horror ?
Mental Health settings are no better (or worse) for 'confidentiality'. It seem's to me that when you want to know something, you can't - for reasons of "confidentiality". But when you don't wish to know anything, then all the "confidential" information is freely talked about.
How does "confidentiality" clash with Freedom of Information ?
--- On Sat, 23/5/09, Pamela Pinder <pamshouse@blueyonder.co.uk> wrote:
From: Pamela Pinder <pamshouse@blueyonder.co.uk> Subject: Re: [Carersforumuk] HELP To: Carersforumuk@yahoogroups.com Date: Saturday, 23 May, 2009, 11:28 PM
Tell me about it Rob, to my way of thinking putting together a generic leaflet/policy is the same as others calling the shots.I remember once giving an example of when a friend was in hospital and I phone to enquire what ward she was on (in the general hospital) I was intending visiting her. I pointed out I was given this information and was told I shouldn't have been told this was confidential info. This is the norm for the general hospital but not the norm apparently for the psych unit.... the info I was given was said to be confidential.
I believe there is a difference between confidentiality and general information that is acceptable and accepted as the norm. They dictate anti stigma but don't practice what they preach. I think it is stigmatising towards those with mental illness to be treated and regarded as being different to the general population.
Bottom line is, even people with a mental illness can be a carer of another and they are treated no differently so this is not only an issue for those without mental illness who support someone in the community the same applies to those with a mh prob if they find their selves in the role of caring for someone else.
--- On Sat, 23/5/09, Pamela Pinder <pamshouse@blueyonde r.co.uk> wrote:
From: Pamela Pinder <pamshouse@blueyonde r.co.uk> Subject: [Carersforumuk] HELP To: Carersforumuk@ yahoogroups. com Date: Saturday, 23 May, 2009, 4:21 PM
Locally the powers that be are in the process of putting together a carers confidentiality policy and leaflet. But do not want it to be specific to mental health but generic for all carers.
There seems to be a problem that is not unique to where I live, that nobody seems to be able to grasp the there is a difference between caring for someone with a mental illness and physical illness. This is more prominent in people who suffer from psychosis and how the symptoms of psychosis effects their thought process. Which I see as this not being the person they really are deep inside, but being controlled by the nature of the condition.
I was recently told that if someone wrote out an advanced directive and they stated that they wanted a named person to be informed and kept involved and if they change their mind when they become unwell, not to take any notice as this was how they become when unwell. Even after writing this, if the person changed their mind and refused any information or involvement of the named person when they became unwell, that staff would still take notice and not give the named person any info. I wondered what point there is in making an advanced directive and I did argue this point when it was said to me.
Without going off on one further! What are your thoughts on this?
1) What are the differences between caring for somebody with a physical illness compared to someone with psychosis? (This would be to do with communication) .
2) What impact does this constant chopping and changing of one minute being involved and the next excluded. I have seen this happen to carers and know myself the impact this has upon the carers mental health. It would help if you could describe how this feels in your own words.
I am thinking of writing up a paper and try to get across why there should be a specific mh carers leaflet and a generic one for generic carers. I also wonder how strongly generic carers feel about this I feel sure they are not affected in the same way, as if the GP told their caree anything the norm is that the caree would discuss with someone close to them.
Do you have any logical and reasonable argument that you would put across?