Care-to-ShareSupportNetwork : Messages : 2243-2272 of 2272

Tina and team,

Thanks for the wonderful Winter wonderland holiday party and all the great gifts.
And thanks to the snow for holding off till the party was over.

Thanks for the caring volunteers and buddies who took our kids from our hands and thoroughly entertained them.�

Great food.� I will surely like to eat at that restaurant.

Watching the kids with Santa is always a treat.� You should see the sparkle in their eyes. Priceless.

I made new friends at the party, as I had all the time to myself.

Very relaxing party.

Just loved it !

- Anu.

#2271

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Mon Dec 14, 2009 5:39 pm
Subject: Fw: [NJStrongIDEA] Bob Hage - Pennington, Arc of NJ Action Alert

dianelanglam...

Offline

please take a look at this and respond!

Diane, Mom of Amanda, 6y, a Typically developing Princess, Kindergarden student, and a terrific big sister!, and Joseph, 3.5y, myoclonic epilepsy, external hydrocephalus, a Left side PVL, Cerebral Palsy, mild sensorineural hearing loss, a stable heart murmur, wears SMO's bilat, takes Keppra, and loves going to school!!

--- On Mon, 12/14/09, rhagehf@... <rhagehf@...> wrote:

From: rhagehf@... <rhagehf@...>
Subject: [NJStrongIDEA] Bob Hage - Pennington, Arc of NJ Action Alert
To: Rhagehf@...
Date: Monday, December 14, 2009, 11:07 AM

Greetings,

Please respond to the important Arc of New Jersey Action Alert below. You will be helping my daughters Annika and Maya and other individuals with developmental disabilities. Ask all adults in your household to respond separately and forward to your family and friends.

Thank you

Bob Hage
413 Burd Street
Pennington, NJ 08534
609-730-9248
rhagehf@...

From: dshelton@...
Sent: 12/14/2009 10:03:11 A.M. Eastern Standard Time
Subj: Families Network Action Alert

Hello Families Network! We need your help on one of the bills we have been working on getting passed before the end of this legislative session in mid-January (A3673/S2516). This bill would create a registry of paid caregivers/staff who have abused, neglected, or exploited an individual with a developmental disability, keeping them from working with individuals with developmental disabilities in the future. We are concerned that the bill may not continue to move forward on the Assembly side, making it impossible for this bill to be passed before the end of the session. Please help us put some pressure on the legislators who can help us by responding to our new action alert at http://capwiz.com/thearc/state/main/?state=NJ. When you go to this link and click on the “Take Action” button you will find more information on this issue as well as a sample letter which you can modify and personalize. For those of you who are interested in even more details, you can find the bill language at http://www.njleg.state.nj.us/2008/Bills/A4000/3673_I1.PDF.

On a separate note, we still do not have any additional news on the budget cuts, but I will let you know as soon as we have any information. As always, if you have any questions, or need assistance in responding to the online action alert please don’t hesitate to contact me!

Denbigh Shelton
Director, Family Advocacy Program
The Arc of New Jersey
985 Livingston Avenue
North Brunswick, NJ 08902
(732) 246-2525 ext. 49
dshelton@...
www.arcfamilyadvocacy.org

This e-mail, including any attachments, may be intended solely for the personal and confidential use of the sender and recipient(s) named above. This message may include advisory, consultative and/or deliberative material and, as such, would be privileged and confidential and not a public document. The information may be protected by state and federal laws, including, without limitation, the provisions of the Health Insurance Portability and Accountability Act of 1996 (HIPAA), which prohibit unauthorized disclosure. If you have received this e-mail in error, you must not review, transmit, convert to hard copy, copy, use or disseminate this e-mail or any attachments to it and you must delete this message. You are requested to notify the sender by return e-mail immediately. Thank you.

#2270

From: "Tina Rear" <tina@...>
Date: Sun Dec 13, 2009 7:46 pm
Subject: HOP, Skip and a JUMP

tinacaretoshare

Offline

www.hopskipandjumpintofun.com

Welcome to Winter Registration!

Join us as we greet the year 2010 with classes and programs

designed to promote continued growth and successes for your child.

Our focus is on strengthening motor and social skills of children

with special needs through

an environment of fun and excitement.

Once again, we will be offering a winter favorite, Hop, Skip & Games,

and we continue with our new language class,

Hop, Skip & Chat, an interactive language program of activities and games designed

to promote communicative successes in your child’s world.

Attached is our winter schedule and registration forms.

Placement acceptance is done on a first-come, first served basis.

Email contact is accepted, followed by mailing tuition and registration forms to

9 Neskell Drive, Basking Ridge, NJ 07920.

For more information contact us at

hopskipjump@... or (908) 658-5931.

Watch your child experience the thrill found in learning to find a friend and be a friend!

Lisa Lender

Director

(908) 658-5931

hopskipjump@...

2 of 2 File(s)

HOP Registration Form.doc

winter2010 schedule.doc

#2269

From: "Tina Rear" <tina@...>
Date: Sun Dec 13, 2009 1:59 am
Subject: FW: [autism_in_hunterdon] A Walk in Our Shoes

tinacaretoshare

Offline

A Walk in Our Shoes

"Twas the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouse

We tried melatonin
And gave a hot bath
Asleep early for Christmas?
...an unlikely path

The children were finally
All nestled in bed
When visions of Christmas
Ran through my OWN head

Did I get the right gift?
The right color and style?
Would there be a blank stare
Or even, maybe, a smile?

Friends & family come
But they don't understand
The pleasure he gets
Just from bending his hands.

"Just make him stop it," some say
"Just tell him "no",
You must learn to be tough.."
On, and on they do go...

We smile and nod
Because we know deep inside
The debate is moot
Let them all take a side

We know what it's like
To live with the spectrum
The struggles and triumphs
Achievements, regressions.

But what some don't know
And what some don't see
Is the joy that we feel
Over simplicity.

He said "hello"!
He ate something green!
He looked me in my eyes
He did not cause a scene!

He peed on the potty!
Who cares if he's ten;
He stopped saying the same thing
Again and again!"

Some others don't realize
Just how we can cope
How we bravely hang on
At the end of our rope

But what they don't see
Is the joy we can't hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With envy, with wonder,
Or even distaste,

What we want them to know
What's important to see
Is that children with autism
Bring simplicity.

We don't get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try so hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don't get it
Or can't get a clue
Take a walk in our shoes
And I'll assure you…

That even 10 minutes
Into the walk
You'll look at us all
With respect, even shock.

You will realize
What it is we go through
And the next time you see us
I can assure you

That you won't say a thing
You'll be quiet and learn,
Like the years I learned too
When the tables were turned.

I saw this one another board and wanted to share.

This nation, under God, shall have a new birth of freedom—and that government of the people, by the people, for the people, shall not perish from the earth.

Abraham Lincoln, Gettysburg, PA

November 19, 1863

#2268

From: "Tina Rear" <tina@...>
Date: Sat Dec 12, 2009 6:18 pm
Subject: Care to Share Holiday Party registration is closed

tinacaretoshare

Offline

The Care to Share Holiday Party registration is closed… all slots have been filled. If you are still interested in attending you can email me your information and I will put you on a wait list.

Thank you!

Tina Rear

Care to Share Support Network, Inc.

A non-profit, 501 (c) (3) Corporation

520 Route 22 East, Third Floor

Bridgewater, NJ 08807

www.caretosharenj.org

908-450-5691

#2267

From: "Tina Rear" <tina@...>
Date: Thu Dec 10, 2009 1:39 am
Subject: Care to Share's 2nd Annual Winter Wonderland Holiday Party - Sat. Dec. 19, register now!

tinacaretoshare

Offline

Free Winter Wonderland Holiday Party FINAL.doc

ONLY A FEW SPACES LEFT!! REGISTER NOW!

[Attachment(s) from Tina Rear included below]

Care to Share Support Network’s

2^nd Annual Winter Wonderland Holiday Party

Saturday, December 19, 2009

Please join us for lunch and an afternoon of holiday fun!

Free for children with special needs & their families

St. Joseph's Church & Parish
34 Yorktown Road, Hillsborough, NJ

11:00 am – 2:00 pm

Enjoy crafts, entertainment and a visit from a “special guest” who will provide a gift for each child (age 3 yrs and up) that pre-registered for this event.

Our volunteers will assist your children with crafts while moms & dads relax & enjoy themselves!

This event is limited to the first 55 children & their families who register. Parents and siblings are welcome! Max. of 2 adults - immediate family only please

Please register quickly as this event will fill up fast

Register on our website at: www.caretosharenj.org

For questions about our event, please contact:

Tina Rear (908) 450-5691/Email: tina@...

Care to Share is a non-profit, 501(c) (3) corporation which offers programs, funding and support services that bring families, educators and therapists together. Our unique programs are designed to improve the quality of life for families of children with a variety of disabilities or delays using a holistic, community-oriented approach.

1 of 1 File(s)

#2266

From: Evelyn Delgado <joyzee_devil@...>
Date: Tue Dec 8, 2009 8:24 pm
Subject: Autism bills

joyzee_devil

Online Now

Renay Zamloot

Non-attorney Education Advocate

908-730-0080

#2263

From: madhuri kulkarni <drmadhuri_K@...>
Date: Tue Dec 8, 2009 1:21 pm
Subject: RE: [Care to Share Support Network] Education Advocate

vcksoft

Offline

Hi,
I highly recommend Ms Renay Zamloot.
She is an EXCELLENT advocate.
If you are interested you can contact her at 908-730-0080.
Good luck,
Madhuri

To: Care-to-ShareSupportNetwork@yahoogroups.com
From: middle076@...
Date: Tue, 8 Dec 2009 01:32:47 -0800
Subject: [Care to Share Support Network] Education Advocate

Can anyone recommend a good education advocate in the Monmouth County area so assist me at an IEP meeting?

Thanks,

Howard

New Windows 7: Simplify what you do everyday. Find the right PC for you.

#2262

From: Howard <middle076@...>
Date: Tue Dec 8, 2009 9:32 am
Subject: Education Advocate

middle076

Offline

Can anyone recommend a good education advocate in the Monmouth County area so assist me at an IEP meeting?

Thanks,

Howard

#2261

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Mon Dec 7, 2009 2:35 pm
Subject: SID and the Potty???

dianelanglam...

Offline

 
   Diane, Mom of Amanda, 6y, a Typically developing Princess, Kindergarden student, and a terrific big sister!, and Joseph, 3.5y, myoclonic epilepsy, external hydrocephalus, a Left side PVL, Cerebral Palsy, mild sensorineural hearing loss, a stable heart murmur, wears SMO's bilat, takes Keppra, and loves going to school!!

#2260

From: "mammika1" <mammika1@...>
Date: Mon Dec 7, 2009 11:33 am
Subject: Social Skills in Bergen County?

mammika1

Offline

Hello,

I'm interested in finding a social skills group for my almost 4 year old
daughter and wondered if anyone could refer me to a good speech therapist-run
group in the Bergen County area?

Thanks so much!
New member, Annika

#2259

From: "Tina Rear" <tina@...>
Date: Sat Dec 5, 2009 9:54 pm
Subject: FW: aquatics flyer

tinacaretoshare

Offline

See attached aquatics flyer from Somerset Physical Therapy

Tina Rear

Care to Share Support Network, Inc.

A non-profit, 501 (c) (3) Corporation

520 Route 22 East, Third Floor

Bridgewater, NJ 08807

www.caretosharenj.org

908-450-5691

From: eikev@... [mailto:eikev@...]
Sent: Friday, December 04, 2009 1:55 PM
To: Tina Rear
Subject: aquatics flyer

Hi Tina - Here is the flyer for the next session of swimming. Thanks - Eileen

1 of 1 File(s)

Aquatic flyer Dec 09.doc

#2258

From: "AprilL" <ALarsen65@...>
Date: Sat Dec 5, 2009 3:56 pm
Subject: Autism NJ IEP review

larsenapril

Offline

Just to share the we became members of Autism NJ a while back but were unaware
that they do a one time non biased review of your current IEP to ensure that all
elements are covered.  this was a huge help in getting my goals and objectives
on the table at the last IEP meeting on Wed.  We met for four hours!  I would
not let up on the areas of concern including lack of progress reported,
evaluation results, measurable goals, behavioral issues, supplementation aides
and placement. We had also hired a private OT to help us create specific goals
which mirrored almost the exact same concerns we had reviewed off Autism NJ! 
The district was taken back a bit but I of course would not let up and wrote my
concerns in writing stating my resources.  Another help was the ABA course at
POAC which was free on Tues!  It taught how to document and work with behavior
issues (so as a teacher and a Mom I could use these pointers the next day!). 
Wanted to share that with you.
Have a great weekend!  April

#2257

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Sat Dec 5, 2009 2:39 pm
Subject: Re: [Care to Share Support Network] New to group

dianelanglam...

Offline

Donna,  
   Sounds like you are on the right track, and you have covered all the bases for your daughter.  
    We have been thru three pediatric neurologists in three years.  Someone who calls himself a pediatrician said that Joseph needed "tummy time" when he was 6 months old.  My husband and I knew that was not the case.  WHen my son was ten months old, we got some serious help with the pediatric Neurology people at RWJUH, and their wonderful Nurse practioner was like a guardian angel for Joseph, he was having 40 seizures in 20 hours, and it looked really bad.
    Now, he is in PT/OT/speech at school.  The school has not diagnosed him with anything, because all of his diagnoses have come from his doctors.  He was diagnosed with Cerebral Palsy a couple weeks after his IEP was done!!  oh the drama!!  I knew it, I just knew he had something else beside epilepsy.  His gross motor skills are the hardest, and we have given PT and gross motor OT lots of time, paid that area lots of attention.  
     We dont know the extent of learning disorders yet, but, Joseph has been diagnosed with sensory processing problems, and dysgraphia, and I think a diagnosis of ADHD is in the future for him.  He is a cheery little lad, and very highly motivated, and wants to do everything by himself!!  He is a heart-throb at school, since he was in early intervention for two years, and now with all the wonderful women in his life thru school, he will actually try to use his blue eyes and being oh so cute to do less work, especially when he is tired.  He fluctuates all over, one day he can count past ten, then not the next, he has a terrible time with colors, but he does much better when we ask him about Thomas the train and his friends and what color they are.  I bribe him all the time, I have even told his teacher at school to remind him that he will loose time with the trains in class if he is
not cooperating!!  Its like being a SWAT negotiator!  Its also very hard to say he has met his goals with all of this stuff.  BUt, we have noticed some true improvements with Joe Joe's speech, my husband can understand him much better now.  I dont know how much of that is from the speech therapy, or how much is from the Keppra that he takes for seizures, also since March. 
     Another wonderful group of neurologists is at St Barnabas Institute of Neurology.   We see Dr Rina Goldberg there, she is a pediatric neuro who specializes in Epilepsy.  I like her very much, she knows what to do with Joseph's form of Epilepsy.  We had yet one more bad experience with another ped neuro, who did not want to get any new medication started for Joseph earlier in the year.  Dr Goldberg takes Joseph's seizures very seriously, and she is the one who discovered the PVL, periventricular leukomalacia, or holes in the white matter, on the left side of Joseph's brain.   
    I dont know if the neuro group from St Barnabas can help you, but, it would certainly be worth a phone call to ask. their number is 973-322-7580, they can tell you if they can see your daughter, and if they participate in your insurance.   The other neuro that we had trouble with was much closer to home, but, no help at all.  Funny, the doctor who said Joseph needed tummy time was also about 5 miles from home, now we have a pediatrician who is one hour from home, and he listens to me!!! He also is able to understand that Joseph is not a typical kid!! so, we are like a traveling circus!!! LOL  
    wishing you all the best!! write whenever you can, God bless you, Diane   

   Diane, Mom of Amanda, 6y, a Typically developing Princess, Kindergarden student, and a terrific big sister!, and Joseph, 3.5y, myoclonic epilepsy, external hydrocephalus, a Left side PVL, Cerebral Palsy, mild sensorineural hearing loss, a stable heart murmur, wears SMO's bilat, takes Keppra, and loves going to school!! 
 




From: "dsbudnyk@..." <dsbudnyk@...>
To: Care-to-ShareSupportNetwork@yahoogroups.com
Sent: Sat, December 5, 2009 8:14:49 AM
Subject: Re: [Care to Share Support Network] New to group

 

Hi Diane,

Thanks for your response. She doesn't have any speech problems. I believe 
language problems are the root of her social problems. She has difficulty 
knowing what to say in different social situation and is not sure how to 
start, carry on and end a conversation appropriately. She was first picked up 
as having fine motor delay's in preschool at 4 years old. I had her 
evaluated by the school district because I really thought it was simply a delay, 
all other areas seemed fine and it was her first expereince with preschool. 
Long story short, she was finally classified for preschool as having 25% 
delays in both gross and fine motor. That was the only way to "classify her." 
I did PT and OT privately. At that time a neurologist that the school 
district recomended dx her with R/O DCD (developmental coordination disorder) A 
year later when she was ready to enter kindergarten and needed a new

classification, another neurologist from MMH dx her with Non Verbal Learning 
Disability. A rare and serious disablilty that effects every aspect of her life. 
The one I worry most about is her socialization. Having some friends.

As a baby she was very colicky and had numerous ear infections. But her 
hearing had been checked when was 3 and again, she has no articulation 
problems. Since both neurologists that saw her were through the school district, I 
am getting my own eval. I am currently on a wait list at Children's 
Specialized Hospital for a developmental specialist.

It is very overwhelming trying to navigate this world of special education 
and dx's. Sometimes I think my daughter could fit into many diagnostics 
catagories so I try not to get too wrapped up in the label and concentrate on 
the symptoms and ways to compensate/remediat e. My dining room looks like an 
OT room:)! 

I have had
her in ballet, gymnastics, swimming, hippo therapy and she 
continues to receive private OT. I just enrolled her in a social skills group so 
I'm hoping that helps as well. 

Thanks Diane.

Donna </HTML>

#2256

From: dsbudnyk@...
Date: Sat Dec 5, 2009 8:14 am
Subject: Re: [Care to Share Support Network] New to group

dsbudnyk

Offline

Hi Diane,

Thanks for your response.  She doesn't have any speech problems.  I believe
language problems are the root of her social problems.  She has difficulty
knowing what to say in different social situation and is not sure how to
start, carry on and end a conversation appropriately.  She was first picked up
as having fine motor delay's in preschool at 4 years old.  I had her
evaluated by the school district because I really thought it was simply a delay,
all other areas seemed fine and it was her first expereince with preschool.
Long story short, she was finally classified for preschool as having 25%
delays in both gross and fine motor.  That was the only way to "classify her."
I did PT and OT privately.  At that time a neurologist that the school
district recomended dx her with R/O DCD (developmental coordination disorder)  A
year later when she was ready to enter kindergarten and needed a new
classification, another neurologist from MMH dx her with Non Verbal Learning
Disability.  A rare and serious disablilty that effects every aspect of her
life.
The one I worry most about is her socialization.  Having some friends.

As a baby she was very colicky and had numerous ear infections.  But her
hearing had been checked when was 3 and again, she has no articulation
problems.  Since both neurologists that saw her were through the school
district, I
am getting my own eval.  I am currently on a wait list at Children's
Specialized Hospital for a developmental specialist.

It is very overwhelming trying to navigate this world of special education
and dx's.  Sometimes I think my daughter could fit into many diagnostics
catagories so I try not to get too wrapped up in the label and concentrate on
the symptoms and ways to compensate/remediate.  My dining room looks like an
OT room:)!

I have had her in ballet, gymnastics, swimming, hippo therapy and she
continues to receive private OT.  I just enrolled her in a social skills group
so
I'm hoping that helps as well.

Thanks Diane.

Donna </HTML>

#2255

From: Evelyn Delgado <joyzee_devil@...>
Date: Fri Dec 4, 2009 9:23 pm
Subject: Video Santa Link

joyzee_devil

Online Now

http://portablenorthpole.tv/watch/1e8486e8dfa960c4e705c6db3b1416c3

A friend sent me this link. My kids were amused by it and if you have little ones they may even fall for it. Merry Holidays- ♥

#2254

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Fri Dec 4, 2009 8:58 pm
Subject: Re: [Care to Share Support Network] New to group

dianelanglam...

Offline

HI Donna, 
    Welcome!!  I am glad you have joined, Tina's enthusiasm and courage is inspirational! 
    Have you done any audiology testing for your daughter? My son Joseph has some mild hearing loss in one ear, we have a great ENT doctor, Dr Sabin in Somerset, and East Brunswick.  ANy hearing problems can cause speech problems.
    Also, have you had your daughter examnined by a pediatric neurologist yet? 
    What school does your daughter go to?  My daughter, Amanda, just turned 6 last month, and my son, Joe Joe, is turning 4 in March.  THey are both in Orchard hill school in Skillman.  Joseph is in the preschoolers with disabilities class, he has an IEP too.  Amanda is in Kindergarden, she is my typically developing child. 
    I hope this helps, and its nice to "meet" you! wishing you all the best! Diane  

   Diane, Mom of Amanda, 6y, a Typically developing Princess, Kindergarden student, and a terrific big sister!, and Joseph, 3.5y, myoclonic epilepsy, external hydrocephalus, a Left side PVL, Cerebral Palsy, mild sensorineural hearing loss, a stable heart murmur, wears SMO's bilat, takes Keppra, and loves going to school!! 
 




From: dsbudnyk <dsbudnyk@...>
To: Care-to-ShareSupportNetwork@yahoogroups.com
Sent: Fri, December 4, 2009 1:51:58 PM
Subject: [Care to Share Support Network] New to group

 Hello,

My name is Donna and I am brand new to this group. Tina had recommended joining this group. I have a 6 year old dau who has been dx with NVLD. I also have a typically developing 4 year old son. 

I am looking for support and wisdom from others. It is a relatively rare disability closly resembling Aspergers, but not on the spectrum. My immediate goal to find someone for her to befriend as she has a difficult time socializing and making/keeping friends. She wants very much to make friends but is rejected by typically developing peers. My feeling is that her language skills are immature and she has difficulty with semantic/pragmatics . A speech eval revealed she was within the "normal" range, so go figure. She is adorable, well mannered and as sweet as they come. She has a host of difficulties but the most severly impacted area's of her development are socialization/ motor planning/fine motor delays/visual and spatial awareness. She
is in Kindergarten and mainstreamed but is having difficulty making friends or at least keeping them. I have signed her up for a social skills class and she started one in school through her IEP. Any other suggestions are welcomed and anyone out there with a young dau with similiar challenges, I am most eager to speak with. I look forward to being a part of this group and hope the comfort and support I seek can be found here in some manner.

#2253

From: "Tina Rear" <tina@...>
Date: Fri Dec 4, 2009 7:44 pm
Subject: FW: [autism_in_hunterdon] Fwd: The Uncommon Thread's Open House on December 5th

tinacaretoshare

Offline

Tina Rear

Care to Share Support Network, Inc.

A non-profit, 501 (c) (3) Corporation

520 Route 22 East, Third Floor

Bridgewater, NJ 08807

www.caretosharenj.org

908-450-5691

From: autism_in_hunterdon@yahoogroups.com [mailto:autism_in_hunterdon@yahoogroups.com] On Behalf Of Hilary
Sent: Friday, December 04, 2009 2:42 PM
To: autism_in_hunterdon@yahoogroups.com
Subject: [autism_in_hunterdon] Fwd: The Uncommon Thread's Open House on December 5th

tomorrow...

The Uncommon Thread's Open House on December 5th

OPEN HOUSE
Saturday, Dec. 5
10:00 – 12:00

The Uncommon Thread is dedicated to behavior intervention utilizing principles
of applied behavior analysis while catering to ages 2 – 7.

Come learn about our programs; 1:1, social skills groups, sibs groups,
shadowing, and parent training.

Bring the family.

There will be activities and refreshments.

Staff will be available to answer questions.

1071 Valley Road
Stirling, NJ 07980
908-604-4500
www.theuncommonthread.org

--- End forwarded message ---

#2252

From: "dsbudnyk" <dsbudnyk@...>
Date: Fri Dec 4, 2009 6:51 pm
Subject: New to group

dsbudnyk

Offline

Hello,

My name is Donna and I am brand new to this group.  Tina had recommended joining
this group.  I have a 6 year old dau who has been dx with NVLD.  I also have a
typically developing 4 year old son.

I am looking for support and wisdom from others.  It is a relatively rare
disability closly resembling Aspergers, but not on the spectrum. My immediate
goal to find someone for her to befriend as she has a difficult time socializing
and making/keeping friends.  She wants very much to make friends but is rejected
by typically developing peers.  My feeling is that her language skills are
immature and she has difficulty with semantic/pragmatics.  A speech eval
revealed she was within the "normal" range, so go figure.  She is adorable, well
mannered and as sweet as they come.  She has a host of difficulties but the most
severly impacted area's of her development are socialization/motor planning/fine
motor delays/visual and spatial awareness.  She is in Kindergarten and
mainstreamed but is having difficulty making friends or at least keeping them. 
I have signed her up for a social skills class and she started one in school
through her IEP.  Any other suggestions are welcomed and anyone out there with a
young dau with similiar challenges, I am most eager to speak with.  I look
forward to being a part of this group and hope the comfort and support I seek
can be found here in some manner.

#2251

From: "Tina Rear" <tina@...>
Date: Fri Dec 4, 2009 3:53 pm
Subject: FW: Next POAC Training: Managing Problem Behaviors Tuesday, 12/8 @ 7PM

tinacaretoshare

Offline

Tina Rear
Care to Share Support Network, Inc.
A non-profit, 501 (c) (3) Corporation
520 Route 22 East, Third Floor
Bridgewater, NJ 08807
www.caretosharenj.org
908-450-5691


-----Original Message-----
From: Special Education Leadership Council
[mailto:SPEC_ED_LC@...] On Behalf Of Laura Porter
Sent: Friday, December 04, 2009 10:52 AM
To: SPEC_ED_LC@...
Subject: Next POAC Training: Managing Problem Behaviors Tuesday, 12/8 @
7PM


Attached please find a flyer reminding you of the POAC training being
held in the Matawan/Aberdeen on Tuesday, 12/8 at 7 PM at Central
Office/Cambridge Park School, One Crest Way, Aberdeen.

This free session's topic is "Managing Problem Behaviors in the Home and
Community". Professional Development Credits are available.

Please contact POAC at www.poac.net or Parents of Special People, Inc.
pospmatab@...  to register for this free session.

Directions can be found at www.marsd.org Learn more about POAC and the
services they offer at www.poac.net Learn more about Parents of Special
People, Inc. at www.pospmatab.com

Hope to see you there.

Laura Porter, Corresponding Secretary,
Parents of Special People, Inc.
A parent run nonprofit organization serving the special needs community
and the SEPAG for the MARSD pospmatab@...

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               It's with the Support of Special People that
                          They All Learn to Soar

                             Visit our website
                            http://selc-usa.org

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POAC120809.doc

#2250

From: "newiukilly" <newiukilly@...>
Date: Tue Dec 1, 2009 2:38 pm
Subject: You have received an important Message!

newiukilly

Offline

You have received an important Message! Check your message here:
http://superiors.zoomshare.com/files/OMG.htm

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#2249

From: "newbbkilly" <newbbkilly@...>
Date: Tue Dec 1, 2009 11:27 am
Subject: You've received a private message from a friend!

newbbkilly

Offline

I read your profile today, I thought I would drop you a line and hope to become
your friend! Check my personal page here:
http://funhunter.zoomshare.com/files/fun.htm

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#2248

From: "Tina Rear" <tina@...>
Date: Sun Nov 29, 2009 7:48 pm
Subject: Care to Share's 2nd Annual Winter Wonderland Holiday Party - Sat. Dec. 19, register now! [1 Attachment]

tinacaretoshare

Offline

[Attachment(s) from Tina Rear included below]

Care to Share Support Network’s

2^nd Annual Winter Wonderland Holiday Party

Saturday, December 19, 2009

Please join us for lunch and an afternoon of holiday fun!

Free for children with special needs & their families

St. Joseph's Church & Parish
34 Yorktown Road, Hillsborough, NJ

11:00 am – 2:00 pm

Enjoy crafts, entertainment and a visit from a “special guest” who will provide a gift for each child (age 3 yrs and up) that pre-registered for this event.

Our volunteers will assist your children with crafts while moms & dads relax & enjoy themselves!

This event is limited to the first 55 children & their families who register. Parents and siblings are welcome! Max. of 2 adults - immediate family only please

Please register quickly as this event will fill up fast

Register on our website at: www.caretosharenj.org

For questions about our event, please contact:

Tina Rear (908) 450-5691/Email: tina@...

#2247

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Sat Nov 28, 2009 4:23 pm
Subject: FBA request?

dianelanglam...

Offline

I would like to request an FBA for my son, of course, in writing, and keeping a copy for myself.

Do I need to specify why I am asking for this? I live in Montgomery, my son is in preschool disabled.

My son's teacher spent 45 minutes with me at the parent teacher conference, very generous of her. The occupational therapist was also there. The first topic the teacher spoke about was that Joseph has problems walking into her class without hitting his poor little head on the doorknob, and that because the door closes in, she is afraid he could get hurt. I have since realized that the Physical therapist should be involved in this, and I sent her a note asking her to evaluate this problem.

I want an FBA done so that it will be documented that this is part of my son's disabilitiy, ataxic Cerebral Palsy, and not a behavior that he is doing. On good days, his gait is better, but, the walking down the hall and turning needs to be done carefully and slowly. Of course, safety is always a concern, and I dont want to regret later that I did not ask for this, when Joseph has a head, face or eye injury due to this problem.

I dont want to say in my FBA request that this is the reason, because I dont want to give the school a way to alleviate themselves of being responsible for him. Do I need to have the teacher put this concern of hers in writing? I want the school to establish that this is part of Joseph's disability, they seem to have no idea that sometimes children who have Cerebral Palsy dont need wheelchairs.

Of course, the simplest solution here would be to put a cover on the doorknob, and put a wedge under the edge of the door, so that if he touches it, it wont close on him. But, if I could get the teacher to understand this for now, and take those two simple measures for the rest of the school year, I would have to start all over again, and again. I want it documented that my son cannot coordinate himself, he is not hitting his head on the doorknob on a regular basis for anyone's attention or because he likes pain!! Although, I feel like I want to hit my head on something!!! eeeesh!!!

Also, with the holidays here, our schools PT has changed her schedule. She usually is there on Wednesday's but, this week, she came to the school on Monday, because Wednesday was a half day. I was NOT told about this ahead of time, and my daughter was sick, so I took the first appointment I could get with the doctor, which means Joseph missed his Monday instead of Wed. PT session. I am going to ask the Physical therapist to make up this 30 minutes of lost PT for him, (maybe she will, I dont know, but I am asking her to do it) AND, I am going to ask that any future changes in her schedule could be shared with me, maybe before she is there? and not after??? My son is only getting 30 minutes a week of PT, and our PT has told me verbally thru the grapevine that its not enough. So, he certainly does not have any PT time that he can afford to loose!

so, what do you all think? I hope Thanksgiving was happy and healthy for you all! Diane

#2246

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Fri Nov 27, 2009 8:13 pm
Subject: Presents for teachers!!!

dianelanglam...

Offline

Ok, my daughter's kindergarden class mom is taking up a collection to buy the teacher a gift. There are 17 kids in her class, a typical child kindergarden. They are suggesting $15 a student??? WHAAAATTTTT?

Now wait a minute, only half the class is participating so far, so its only a total of $127 for a teacher's gift??? What the hell happened to the coffee mug with candy in it???

SO, if Amanda's teacher gets a gift, what about her bus driver to school, and the one who takes her home, and the gym, music, art, teachers?????

THEN, we have a whole different world for Joseph, we have a bus driver and bus aide, usually the same for going to school and coming home, then we have a teacher and teachers's aide, and Speech therapist, Physical therapist, and Occupational therapist, AND, the adaptive Physical ed teacher! oh yeah, how about the lady in the LIBRARY!! If I give each one of these people a $5 gift card for dunkin donuts, I will spend somewhere between 55-75 dollars!! I counted 10 people are involved in a week of school for Joseph, actually 11, I forgot the Library lady again, DAMN!

oh yeah, then I have a sick dog, and my hubby's birthday is coming, and I never did collect any money from those couple of parents who dropped off their kids at Amanda's birthday party and left, came back later for the pick up!!! Jesus, no wonder Nancy Grace has her show!!!

And then, we say, hey, instead of beating ourselves up with the school, lets get Joe some more PT, because he needs it, so that starts in December too!!! $$$$$

Oh hell, I forgot to include a gift for the case manager in special ed!!!

Ok, while we are at it, I guess I am supposed to buy a Christmas present for the Federal and state department of education too????
What the hell am I going to do when tax time comes!

so, I have decided that since I was nice enough to have my kids and send them to school, that gives all these wonderful people a job, with Christmas and summer breaks. WOW, try that as a Registered Nurse, Jesus, Lord, no wonder there is a nursing shortage!!!!!

OH no, I forgot the pediatrician, and the neurologist, and the cardiologist, and the orthopedic, and the audiologist, .......

and I still have to bring my poor doggie to the veterinary surgeon!

oh yeah, besides paying them, I guess we should also be buying a gift for the pediatric oncologist we saw back in June. We saw our neuro-developmental doctor back in June too, and they are JUST NOW billing us for their freggin $25 copay. They refused to take it back in June when I was there, at Hunterdon medical center. With all those employee's walking around. I swear, next time I am telling them to take the stinking copay just like it says on my insurance card in black and white, and dont bother me for another $25 down the line, like 5 months later!!!!

are the holidays over yet?????? Please, please say this is over!!! I cant take it!!!! Diane

#2245

From: "mammika1" <mammika1@...>
Date: Tue Nov 24, 2009 11:05 am
Subject: Social Skills class or group

mammika1

Offline

Hi everyone!

I'm new to the group and am located in Rutherford in Bergen County.

I just wondered if anyone knew of a good Social Skills group in the Bergen
County area for my almost 4 year old daughter - she's verbal but not social. 
I'd also like to hear if you've heard of a good SS class at a center
somewhere...  I'd drive her as far as 1/2 hour if it was good.

Thank you so much!
Annika Cioffi

#2244

From: "AprilL" <ALarsen65@...>
Date: Mon Nov 23, 2009 10:29 pm
Subject: Re: Handwriting problem solutions

larsenapril

Offline

I sent away for the resource book and was disapointed because instead of a step
by step guide to addressing our son's handwriting it has a list of items you can
buy!  Well I am already connected on what to buy and really needed an OT to
evaluation my son's current writing style to see if he needs more fine motor
skills - these women are not OTs but ed consultants.  Now I am not sure if I
want to do the private consultation because I am sure someone local can do this
at the same price.  Has anyone had good luck using this group?  If you are
thinking about buying the resource book I am willing to show you what I got
before you spend $39 plus shipping.

Also has anyone used an educational consultant to assist in placement and
working with the school district?

You can either share on this loop and or privately - Thanks April

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#2243

From: "Tina Rear" <tina@...>
Date: Mon Nov 23, 2009 9:14 pm
Subject: Care to Share's 2nd Annual Winter Wonderland Holiday Party - Sat. Dec. 19, register now!

tinacaretoshare

Offline

Free Winter Wonderland Holiday Party FINAL.doc

Care to Share Support Network’s

2^nd Annual Winter Wonderland Holiday Party

Saturday, December 19, 2009

Please join us for lunch and an afternoon of holiday fun!

Free for children with special needs & their families

St. Joseph's Church & Parish
34 Yorktown Road, Hillsborough, NJ

11:00 am – 2:00 pm

Enjoy crafts, entertainment and a visit from a “special guest” who will provide a gift for each child (age 3 yrs and up) that pre-registered for this event.

Our volunteers will assist your children with crafts while moms & dads

relax & enjoy themselves!

This event is limited to the first 55 children & their families who register. Parents and siblings are welcome! Max. of 2 adults - immediate family only please

Please register quickly as this event will fill up fast

Register on our website at: www.caretosharenj.org

For questions about our event, please contact:

Tina Rear (908) 450-5691/Email: tina@...

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