Care-to-ShareSupportNetwork : Messages : 1812-1841 of 2272

District report questions inclusion's effectiveness

Although this is from Maryland I do believe it applies here as well. I've been saying this for years. Please see link.

#1840

From: Evelyn Delgado <joyzee_devil@...>
Date: Fri Feb 27, 2009 10:41 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

joyzee_devil

Offline

ATA Fords/Woodbridge

Phone is 732-225-7575

'Keep me away from the wisdom which does not cry,
the philosophy which does not laugh and the greatness
which does not bow before children'
~Kahlil Gibran~

--- On Fri, 2/27/09, kai0424@... <kai0424@...> wrote:

From: kai0424@... <kai0424@...>
Subject: Re: [Care-to-ShareSupportNetwork] Tae Kwon Do or Karate for Special Needs Kids
To: Care-to-ShareSupportNetwork@yahoogroups.com
Date: Friday, February 27, 2009, 5:23 PM

Oh wow.. that little. Cole is 3 1/2... I bet he would love that. Where is it in Fords?

In a message dated 2/27/2009 5:22:36 P.M. Eastern Standard Time, joyzee_devil@ yahoo.com writes:

Tiny tigers are for ages 2-6

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

#1839

From: kai0424@...
Date: Fri Feb 27, 2009 5:23 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

kymm424

Offline

Oh wow.. that little. Cole is 3 1/2... I bet he would love that. Where is it in Fords?

In a message dated 2/27/2009 5:22:36 P.M. Eastern Standard Time, joyzee_devil@... writes:

Tiny tigers are for ages 2-6

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

#1838

From: Evelyn Delgado <joyzee_devil@...>
Date: Fri Feb 27, 2009 10:22 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

joyzee_devil

Offline

Tiny tigers are for ages 2-6

#1837

From: kai0424@...
Date: Fri Feb 27, 2009 5:19 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

kymm424

Offline

LOL.... what is a "tiny tiger"? ;)

In a message dated 2/27/2009 5:18:37 P.M. Eastern Standard Time, joyzee_devil@... writes:

He does Tiny tigers and above. My kids are 12 and 11...

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

#1836

From: Evelyn Delgado <joyzee_devil@...>
Date: Fri Feb 27, 2009 10:18 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

joyzee_devil

Offline

He does Tiny tigers and above. My kids are 12 and 11...

#1835

From: kai0424@...
Date: Fri Feb 27, 2009 5:16 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

kymm424

Offline

What age group do they start at?

In a message dated 2/27/2009 5:16:11 P.M. Eastern Standard Time, joyzee_devil@... writes:

My children attend a Tae-kwon-do class in Fords. The instructor has a brother on the spectrum and is very good with the children. Many of our special children in Woodbridge and from the PACE program attend classes at this location. My children love it and I'm glad thats its an inclusive class.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

#1834

From: Evelyn Delgado <joyzee_devil@...>
Date: Fri Feb 27, 2009 10:15 pm
Subject: Re: Tae Kwon Do or Karate for Special Needs Kids

joyzee_devil

Offline

My children attend a Tae-kwon-do class in Fords. The instructor has a brother on the spectrum and is very good with the children. Many of our special children in Woodbridge and from the PACE program attend classes at this location. My children love it and I'm glad thats its an inclusive class.

#1833

From: Lisa Ward <lisaward0308@...>
Date: Fri Feb 27, 2009 1:33 am
Subject: Re: please say a prayer for Joe Joe.

lisaward0308

Offline

Tons of love and prayers to you and your family, Diane.

--- On Thu, 2/26/09, Diane Lang-LaMorticella <dianelanglamorticella@...> wrote:

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Subject: [Care-to-ShareSupportNetwork] please say a prayer for Joe Joe.
To: care-to-sharesupportnetwork@yahoogroups.com, Epilepsy-kids@yahoogroups.com, HypotoniaHope@yahoogroups.com, Parents_of_special_needs_kids_DE_MD_PA@yahoogroups.com, RareEpilepsySyndromes@yahoogroups.com
Date: Thursday, February 26, 2009, 3:24 PM

    Please say a prayer for Joseph, 35 months old, now off Phenobarbital after being on it for two years.   He is not doing so good without medications, so we are going to try Keppra and see if that helps.   Tomorrow we will be at the hospital, he needs a new MRI of his brain under sedation, and a Video EEG to run for 24 hours. At least we can use the time that the sedation is wearing off to apply the leads for the video EEG. The last time he had one of these, he was a lot smaller, and he had no tone at all, so he could not fight back, now he has been body building for two years, with lots of physical therapy and various therapies, and I think he will not like laying still and getting all the leads on his head.    He has not had a normal EEG in the last two years, so I am not really worried about that, and he has had other procedures with sedation, and he has not had any problems, the scariest thing to me is that we might actually find something on the MRI that could possibly add to his laundry list of medical problems.  He has lots of developmental delays, but so far, he has not been diagnosed with Cerebral Palsy, or Autism, its also possible that he has suffered from his seizures, and that he has some form of encephalopathy, which could still leave him with a good MRI.   Either way, I am hoping for a good MRI of his brain, and I am praying that the Keppra will allow him to have improvement with his seizures.   He has a very comprehensive IEP that starts on St Patricks Day, and I am hoping that with the Keppra, he will be able to continue making gains with all the wonderful support he will be receiving in school, after being in the early intervention system for two years!

     My daughter saw two buses near each other on the road this morning while we rode to her school, and since she is 5 now she is extremely observant.   She explained to me that the big bus will come and get her, (kindergarden is September 2009 for her) and that the little bus is for the little kids, so Joseph will go on that one!! I was so impressed! It was so sweet that she puts the little bus together with the little kids! LOL

   The wheels on the bus go 'round and 'round!

   Have a great weekend!

   Diane, mother of Amanda, 5, a TD Princess, and Joseph, 35 months, full of mischeif despite his Epilepsy, external hydrocephalus, a heart murmur, mild Left sensorineural hearing loss, various developmental delays, wears SMO's on both feet for gait problems, and one blue-eyed little flirtatious boy!

    "I can do no great things, only small things with great love." - Mother Teresa -

#1832

From: Jessica Dale <luzquinos1@...>
Date: Thu Feb 26, 2009 10:32 pm
Subject: Re: please say a prayer for Joe Joe.

luzquinos1

Offline

Diane,

You can count on my prayers. Joe Joe and Amanda are very lucky to have you as their Mommy. You are so dedicated! God bless you!

Jessica Dale

www.JJKidStyle.com

Cell: (732)672-4618

--- On Thu, 2/26/09, Diane Lang-LaMorticella <dianelanglamorticella@...> wrote:

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Subject: [Care-to-ShareSupportNetwork] please say a prayer for Joe Joe.
To: care-to-sharesupportnetwork@yahoogroups.com, Epilepsy-kids@yahoogroups.com, HypotoniaHope@yahoogroups.com, Parents_of_special_needs_kids_DE_MD_PA@yahoogroups.com, RareEpilepsySyndromes@yahoogroups.com
Date: Thursday, February 26, 2009, 3:24 PM

    Please say a prayer for Joseph, 35 months old, now off Phenobarbital after being on it for two years.   He is not doing so good without medications, so we are going to try Keppra and see if that helps.   Tomorrow we will be at the hospital, he needs a new MRI of his brain under sedation, and a Video EEG to run for 24 hours. At least we can use the time that the sedation is wearing off to apply the leads for the video EEG. The last time he had one of these, he was a lot smaller, and he had no tone at all, so he could not fight back, now he has been body building for two years, with lots of physical therapy and various therapies, and I think he will not like laying still and getting all the leads on his head.    He has not had a normal EEG in the last two years, so I am not really worried about that, and he has had other procedures with sedation, and he has not had any problems, the scariest thing to me is that we might actually find something on the MRI that could possibly add to his laundry list of medical problems.  He has lots of developmental delays, but so far, he has not been diagnosed with Cerebral Palsy, or Autism, its also possible that he has suffered from his seizures, and that he has some form of encephalopathy, which could still leave him with a good MRI.   Either way, I am hoping for a good MRI of his brain, and I am praying that the Keppra will allow him to have improvement with his seizures.   He has a very comprehensive IEP that starts on St Patricks Day, and I am hoping that with the Keppra, he will be able to continue making gains with all the wonderful support he will be receiving in school, after being in the early intervention system for two years!

     My daughter saw two buses near each other on the road this morning while we rode to her school, and since she is 5 now she is extremely observant.   She explained to me that the big bus will come and get her, (kindergarden is September 2009 for her) and that the little bus is for the little kids, so Joseph will go on that one!! I was so impressed! It was so sweet that she puts the little bus together with the little kids! LOL

   The wheels on the bus go 'round and 'round!

   Have a great weekend!

   Diane, mother of Amanda, 5, a TD Princess, and Joseph, 35 months, full of mischeif despite his Epilepsy, external hydrocephalus, a heart murmur, mild Left sensorineural hearing loss, various developmental delays, wears SMO's on both feet for gait problems, and one blue-eyed little flirtatious boy!

    "I can do no great things, only small things with great love." - Mother Teresa -

#1831

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Thu Feb 26, 2009 8:24 pm
Subject: please say a prayer for Joe Joe.

dianelanglam...

Offline

Please say a prayer for Joseph, 35 months old, now off Phenobarbital after being on it for two years. He is not doing so good without medications, so we are going to try Keppra and see if that helps. Tomorrow we will be at the hospital, he needs a new MRI of his brain under sedation, and a Video EEG to run for 24 hours. At least we can use the time that the sedation is wearing off to apply the leads for the video EEG. The last time he had one of these, he was a lot smaller, and he had no tone at all, so he could not fight back, now he has been body building for two years, with lots of physical therapy and various therapies, and I think he will not like laying still and getting all the leads on his head. He has not had a normal EEG in the last two years, so I am not really worried about that, and he has had other procedures with sedation, and he has not had any problems, the scariest thing to me is that we might actually find something on the MRI that could possibly add to his laundry list of medical problems. He has lots of developmental delays, but so far, he has not been diagnosed with Cerebral Palsy, or Autism, its also possible that he has suffered from his seizures, and that he has some form of encephalopathy, which could still leave him with a good MRI. Either way, I am hoping for a good MRI of his brain, and I am praying that the Keppra will allow him to have improvement with his seizures. He has a very comprehensive IEP that starts on St Patricks Day, and I am hoping that with the Keppra, he will be able to continue making gains with all the wonderful support he will be receiving in school, after being in the early intervention system for two years!

My daughter saw two buses near each other on the road this morning while we rode to her school, and since she is 5 now she is extremely observant. She explained to me that the big bus will come and get her, (kindergarden is September 2009 for her) and that the little bus is for the little kids, so Joseph will go on that one!! I was so impressed! It was so sweet that she puts the little bus together with the little kids! LOL

The wheels on the bus go 'round and 'round!

Have a great weekend!

Diane, mother of Amanda, 5, a TD Princess, and Joseph, 35 months, full of mischeif despite his Epilepsy, external hydrocephalus, a heart murmur, mild Left sensorineural hearing loss, various developmental delays, wears SMO's on both feet for gait problems, and one blue-eyed little flirtatious boy!

"I can do no great things, only small things with great love." - Mother Teresa -

#1830

From: "Tina Rear" <tina@...>
Date: Thu Feb 26, 2009 5:05 pm
Subject: RE: PARENTS - DO YOU WANT TO : help with dissertation research with children with autism

tinacaretoshare

Offline

Sorry, I thought her contact info was in the letter.. here is her email.

ccoffiel@...

Tina Rear

President

Care to Share Support Network, Inc.

A non-profit, 501c (3) Corporation

520 Route 22 East, Third Floor

Bridgewater, NJ 08807

www.caretosharenj.org

908-450-5691

From: Care-to-ShareSupportNetwork@yahoogroups.com [mailto:Care-to-ShareSupportNetwork@yahoogroups.com] On Behalf Of Evelyn Delgado
Sent: Thursday, February 26, 2009 11:50 AM
To: Care-to-ShareSupportNetwork@yahoogroups.com
Subject: Re: [Care-to-ShareSupportNetwork] PARENTS - DO YOU WANT TO : help with dissertation research with children with autism

How do we contact her? There is no contact information...

Reply | Forward | Messages in this Topic (4)

#1829

From: Evelyn Delgado <joyzee_devil@...>
Date: Thu Feb 26, 2009 4:50 pm
Subject: Re: PARENTS - DO YOU WANT TO : help with dissertation research with children with autism

joyzee_devil

Offline

How do we contact her? There is no contact information...

Reply | Forward | Messages in this Topic (4)

#1828

From: "Tina Rear" <tina@...>
Date: Thu Feb 26, 2009 4:37 pm
Subject: PARENTS - DO YOU WANT TO : help with dissertation research with children with autism

tinacaretoshare

Offline

My name is Carrie Coffield and I am a doctoral student at Rutgers
University.

I am writing to see if you might be able to help me get into contact
with families with a young child with autism. My study involves 3-5
year old children with autism and 3-5 year old typically children.
So far I have successfully recruited and run all of the 24 typically
developing children I need. Any assistance or advice you might be able
to give me in regards to getting in touch with families with a child
with autism would be most appreciated! I have a packet of information
that I send home to these families and then they get in touch with me if
they are willing to take part in my research. I am happy to arrange a
time to speak to you about this in more detail or to email you more
information.


  Thanks in advance!
Carrie Coffield

Reply | Forward | Messages in this Topic (4)

#1827

From: Evelyn Delgado <joyzee_devil@...>
Date: Thu Feb 26, 2009 11:23 am
Subject: Iconverse- Assisted communication application

joyzee_devil

Offline

First Assisted Communication Application for

iPhone/iPod Touch Benefits Children and

Persons with Special Needs

Xcellent Creations, Inc. and Special Education teacher, Ian Walden,
have developed iConverse which allows children or adults with special
needs to use push button images to convey their basic needs to those
around them.

Denver, Colorado (PRWEB) February 22, 2009 -- Xcellent Creations, Inc.
and Special Education teacher, Ian Walden, have developed iConverse
which allows children or adults with special needs to use push button
images to convey their basic needs to those around them.

Communication disorders are among the most common disabilities in the
United States. A child's overall future and success can be improved
greatly through the early identification of communication disorders,
establishment of their causes, and subsequent intervention. Both
adults and children living with communicative disabilities are
assisted by communication devices that allow them to be proficient in
their environment.

Similar, more complex devices are commonly used in many Special
Education classes, and in homes of individuals with special needs.
These devices are often big, measuring 12 inches or more, and are very
cumbersome to carry around. The price for these devices ranges from
$300 - $5000 depending on the options selected. The slots for the
pictures can be problematic for disabled individuals, and it is hard
to string sentences together using the pictures while also focusing on
the emotion you are trying to illustrate.

iConverse is simple enough that anyone at any level can use the
application with ease and with no prior knowledge or training. The
application features 6 buttons representing basic needs; eating,
drinking, restroom, sickness, resting and help. When pressed, the need
is displayed as a visual text and spoken as a verbal sentence by
either a male or female voice.

Children who communicate with a speech generating device, are able
converse with others at a comfortable distance and will not need an
interpreter to explain their wants and needs. It allows these
individuals to be independent in their surroundings, and it
successfully contributes to increasing an individual's receptive and
expressive communication.

The application currently uses only images for basic needs so as not
to overwhelm a child/adult with options, in a situation that may
already be overwhelming to them. For the price of an iPhone or iPod
Touch, and this $4.99 application, a parent or caretaker can have a
portable assisted communication device.

For additional information on iConverse, contact Danielle Reubenstein
or visit www.iconverseapp. com. The iConverse product is available now
in the Apple App Store.

ABOUT XCELLENT CREATIONS, INC.: Xcellent Creations, Inc. is a Denver
based digital media company specializing in iPhone and web application
development.

#1826

From: Evelyn Delgado <joyzee_devil@...>
Date: Wed Feb 25, 2009 8:53 pm
Subject: Article- NJ autism aid getting a boost from state

joyzee_devil

Offline

N.J. adults with autism might get more aid under new law

Hi everyone,

I thought this article would be of interest to our group. Please feel free to pass it along.

#1825

From: "jessicajlh2002" <jessicajlh2002@...>
Date: Wed Feb 25, 2009 6:35 pm
Subject: Independant Evaluation for Re-evaluation for Kindergarden?

jessicajlh2002

Offline

Hi,

My son is going to kindergarden this Sept. and his school is doing some
evaluations to see if he qualifies for special services at
kindergarden.  Can we request an independant evalutaion if we are not
happy with the evaluations done by school?

Thank you.

Jessica

#1824

From: "Tina Rear" <tina@...>
Date: Tue Feb 24, 2009 4:25 pm
Subject: Enhanced Learning Skills - new eStore

tinacaretoshare

Offline

Enhanced Learning Skills for Kids

Training One Mind at a Time!

Hi. I am happy to announce I officially launced a new eStore at the request of my clients. The store's main focus is around learning and improving one's ability to learn. I partnered with Amazon so once you decide to buy, you continue through Amazon's main site, using your account, billing and shipping information on file. Remember to check back often as new items are being added weekly. Suggested books for reading for your child from K-12 have been provided along with tools such as SAT and NJ ASK preps, etc.

http://astore.amazon.com/enh-20/about

Blessings,

Colleen

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Enhanced Learning Skills for Kids

Colleen Bain, M.A.

Owner/Licensed Cognitive Trainer

Stronger learning skills with impactful measurable results in as little as 12-24 weeks.
Your child will learn, read and comprehend easier and more efficiently. I guarantee results.

==================================

If your child struggles with learning or reading, go to my website http://www.els4kids.com for more information today.

=================================

Signup for my FREE ezine today and get a free gift on me!

Click here to view my ezine archive!

=========================

#1823

From: "Tina Rear" <tina@...>
Date: Tue Feb 24, 2009 4:19 pm
Subject: Your Child Today Expo - March 28

tinacaretoshare

Offline

Tina Rear
President

Care to Share Support Network, Inc.
A non-profit, 501c (3) Corporation
520 Route 22 East, Third Floor
Bridgewater, NJ 08807
www.caretosharenj.org
908-450-5691

#1822

From: "cinnych" <cinnych@...>
Date: Tue Feb 24, 2009 3:07 pm
Subject: Vote in the Poll for Monthly Support Meetings

cinnych

Offline

Hey all, one last reminder to PLEASE vote in our current poll regarding the
Monthly
Parent Support Meetings CTS offers.  We will be closing the poll this evening
for analysis at
our Board Meeting and WE WANT YOUR INPUT!  To vote please visit the following
web page:
http://groups.yahoo.com/group/Care-to-ShareSupportNetwork/surveys?id=12874211

For those that have already voted, THANK YOU again...

~ Christine Horvath, MS, OTR/L

#1821

From: "Tina Rear" <tina@...>
Date: Mon Feb 23, 2009 7:57 pm
Subject: FW: HPAC - FYI, CHADD

tinacaretoshare

Offline

Tina Rear

President

Care to Share Support Network, Inc.

A non-profit, 501c (3) Corporation

520 Route 22 East, Third Floor

Bridgewater, NJ 08807

www.caretosharenj.org

908-450-5691

From: Helen.Raczkowski@... [mailto:Helen.Raczkowski@...]
Sent: Monday, February 23, 2009 12:08 PM
Subject: HPAC - FYI, CHADD

All,
Below is broadcast from local CHADD group (Children and Adults with Attention Deficit/Hyperactivity Disorder).
If you have any questions, please contact Jane Milrod directly. Here info is at the bottom.

_______________________________________________________________________________________________________________________________

CHADD Princeton-Mercer County will be meeting monthly September through May.

When: We meet on Wednesday evenings, once a month from 7pm to 9pm. In addition we have an Adult support group that meets on Thursday evening, a Daytime Parent Support Group that meets on Fridays from 1pm-2:30pm, and a "Suppers for AD/HD" group beginning Tuesday, January 27th 6-7:30pm. Scroll down to see more details.
Who: Everyone is welcome to join us. Non-CHADD members are asked to give a donation.
What: We will share information via facilitated small group discussion, as well as host speakers on a variety of topics affecting individuals with AD/HD and their families. Our meetings are open to the public, everyone welcome.One hour is dedicated to facilitated small group discussion, and the other to a speaker and Q and A. The speaker times will be listed for those who are not interested in the support group discussion portion.

You can join our chapter by specifying Chapter NJ 153 when you join CHADD.

* Due to insurance restrictions, childcare is not available. Please make arrangements for childcare. Children will be unable to attend meetings. We apologize for the inconvenience.

OUR NEXT P to P COURSE:   CLASS IS FULL. sign up for Fall 2009* Princeton
Parent To Parent: Family Training on AD/HD  --Saturday, January 24th from 1-3pm, and run 5 sessions. Classeswill be held at the Princeton Public Libary. Taught by Certified Educators, Jane Milrod and Katherine McGavern

P to P Lambertville, NJ -- Thursday Feb 26th 6:30 To 8:30pm, Lambertville Public school. Register call Judith Champion 609 468 0819 email championjudith@...

Schedule 2008-2009 Meeting Day: Wednesday   Time: 7-9pm

Sat, March 21, 2009	Teens Talk About AD/HD + Accomodations from 6th Grade- College: What students need to know to succeed.	Elizabeth Hamblet
Wed, April 22, 2009	Cogmed: Training the AD/HD Brain + Behavior Therapy Explained	Dr Steve Gordon
Wed, May 20, 2009	Managing the side effects of Medication for ADHD	Dr. Adam Hauser

Driving Directions to Riverside School, 58 Riverside Drive, Princeton NJ 08540
- Route 1 to the Harrison Street Exit (Sunoco Station)
- Turn Right at 2nd light past the Lake onto Prospect Avenue
- Left at stop onto Riverside Drive   The Gym entrance is on theleft sideof the building (notthe center, main entrance)
- The Riverside School is on the right. Riverside Elementary School, 58 Riverside Drive,   Princeton NJ 08540

Please call Jane Milrod for more information. Tel 609 683 8787 or email janemilrod@ aol.com

Special Interest Group Meetings * Daytime Support Group for Parents Meets Friday 1 to 2:30
All meetings will be at the Lawrenceville Library from 1-2:30pm in the community room in the back of library
Fri.Jan.30th
Fri. Feb. 27
Fri. March 27
Fri. April 24
Fri. June 5

The location is The Lawrence Library, 2751 Brunswick Pike. Registration Requested to sign up, email Facilitator Betsy Ie (cell 731-4553) email betsy.ie@... and for info janemilrod@...

* Evening Support Group for Adults:   Meets Tuesday Evening The Adult Support Group will meet on Tuesdays from 7:30-8:30 at the Princeton Public Library in Princeton NJ. Go the second floor and ask for the room number at the helpdesk. Email Janemilrod@... for more information.
Jan. 29, 2009 - PPL 2nd floor
Feb. 24, 2009 - PPL 2nd floor
Mar. 24, 2009 - PPL 2nd floor
Apr. 28, 2009 - PPL 2nd floor
June  2, 2009 - PPL 2nd floor

Registration Requested, Facilitator is Norma Svedosh.
Cell 609 216 0441 Email nsvedosh@...

Suppers for ADHD- Tuesday 6-7:30pm Class is filled, for more info
DorothyMullenwww.DorothyMullen.org     www.SuppersFor.org

Volunteer Opportunities:

We welcome volunteers to help support our members.
Public Relations/Publicity/Flyer (artist!), Physician and School Liason, Speaker and Topics Chairperson, Library Liason (PPL-Chadd Collection).
In addition we are looking to align ourselves with Professionals in Mercer County. Please contact us with your interest and areas of expertise:
Jane Milrod Jemas, Tel- 609 683 8787, Email --mercer-county@...

Jane Milrod
AD/HD Academic Coach
phone: 609-683-8787
cell: 609-731-7556
e-mail : adhdCoachJane@...

Please consider the environment before choosing to print this e-mail.
* * * * * * * * * *
This communication contains information of International Flavors & Fragrances (IFF) and/or its affiliates that may be confidential, proprietary, copyrighted and/or legally privileged, and is intended only for the addressee. Any copying, dissemination or other use of this information by anyone other than the intended recipient is prohibited. If you have received this communication in error, please contact the sender and delete it from your system.

#1820

From: "girlanjblog" <girlanjblog@...>
Date: Mon Feb 23, 2009 7:52 am
Subject: I want to meet you. Give me a chance!

girlanjblog

Offline

I want to meet you. Give me a chance! Click here to chat with me online:
http://daisukegd.zoomshare.com/files/chat.htm

#1819

From: Diane Lang-LaMorticella <dianelanglamorticella@...>
Date: Sat Feb 21, 2009 10:19 pm
Subject: Coverage for diapers?

dianelanglam...

Offline

Does anyone know if there is a certain age when a child with disablities/ developmental delays can have their diapers as a medical expense??

We cant use the DME on our insurance, because we have a certain amount per year and we need that for my son's SMO braces for his feet.

But, I am wondering if I can use the receipts for his diapers as an uncovered medical expense, maybe not now, but say in a year or two if he is not potty trained? He is starting preschool disabled program next month, and I asked our accountant, and he said since I need to buy gloves for his diaper changes at school, I can keep those receipts in my uncovered medical expenses. We are not eligible for SSI, our family income is too high, so, I just do the next best thing, I keep all the receipts for medical expenses we incur during the year, and I keep track of the mileage we accumulate for medical things, like doctors in Philadelphia since we live in NJ, its a 120 mile round trip for us.

I am just wondering is there a time when it is valid to say that using diapers is a result of the developmental delays, and therefore the diapers are an uncovered medical expense? My son is just turning three now, so it might be too soon, but, this way, when he gets a little older, I will know when to claim this as an expense as I do with other out of pocket expenses.

thanks, Diane in NJ

#1818

From: "April Larsen" <ALarsen65@...>
Date: Sat Feb 21, 2009 1:41 pm
Subject: Re: Vision Therapy

larsenapril

Offline

thanks for that feedback - I am gonna contact you offline - we are not
anywhere close to Old Bridge but I value your input.

April

Reply | Forward | Messages in this Topic (5)

#1817

From: "jessicajlh2002" <jessicajlh2002@...>
Date: Sat Feb 21, 2009 6:40 am
Subject: Tae Kwon Do or Karate for Special Needs Kids

jessicajlh2002

Offline

Hi,

I heard one of these sports is very good for special needs kids, it
helps them focusing and practicing eye-hand coordination etc.  But I'm
not sure which one, Tae Kwon Do or Karate? Also, if you know a great
program or instructor, please let me know the contact information.
Thanks a lot.

Jessica

#1816

From: "cinnych" <cinnych@...>
Date: Fri Feb 20, 2009 4:01 pm
Subject: Monthly Support Meetings Poll

cinnych

Offline

Hey all, just another reminder that we are currently conducting a poll regarding
our Monthly
Parent Support Meetings.  The numbers are creeping up so for those who have
taken the time
to vote on the options... THANK YOU.  If you haven't yet had a chance to do so,
please do so
now.  The poll will be closing soon and we want to know your opinion so we can
plan
accordingly.

To vote, please visit the following web page:
http://groups.yahoo.com/group/Care-to-ShareSupportNetwork/surveys?id=12874211

Have a great weekend!

~ Christine Horvath, MS, OTR/L

Reply | Forward | Messages in this Topic (2)

#1815

From: "cinnych" <cinnych@...>
Date: Fri Feb 20, 2009 3:57 pm
Subject: Re: Vision Therapy

cinnych

Offline

April.... as a pediatric occupational therapist with over 15 years of experience
I have to
comment on what the website you referenced said...

SOME OTs ARE TRAINED IN VISION THERAPY.  Conferences are repeatedly made
available
to us on this topic.  There is at least one, if not more, books specifically on
the topic
(Understanding and Managing Vision Deficits: A Guide to Occupational Therapists
by
Mitchell Scheiman, OD).  Also, some of the developmental optometrists offices
that offer
vision therapy use an OT to provide it.  It is generally true that our training
does not go as
far as using techniques that involve specialized lenses and prisms.  I
personally have
training in vision therapy and can work on issues related to ocular motor
control.  I have
contacts with many of the developmental optometrists in the area and often
because of
my referrals we work together to address a child's needs.   You may want to
check out the
web site of a local doctor as he has great references and links for review ...
http://www.njeyesite.com/index.html - Dr. S. Moshe Roth, OD of Family Eye Care
in Old
Bridge.  He is actually doing a presentation for OTs (and maybe parents) in
Somerset if
you are interested.

In regards to planning for therapy, before you stress yourself out and even
consider
changing therapies around, you need to see what your child's issues are. What
are some of
the symptoms you are seeing?  Has anyone done a screening for you, before diving
into
the expense of a full eval?  If it turns out he just needs prism lenses then
there is no need
to cut one therapy for another... or if it is just ocular motor issues find out
if your current
OT has the skills to consult with the OD and do the work.

I would be more than happy to discuss your concerns regarding your child
off-line if you
wish.  I hope this information has helped.

Christine Horvath, MS, OTR/L

--- In Care-to-ShareSupportNetwork@yahoogroups.com, "April Larsen"
<ALarsen65@...>
wrote:
>
> I read this on one site for vision therapy:

> OTs are highly skilled in helping
> children with developmental, gross motor, and fine motor activities
> particularly handwriting, but they are not trained or licensed in
> vision therapy. Specifically, occupational therapists can not
> administer important vision therapy procedures which involve lenses,
> prisms, and devices which insure that both eyes work together as a
> synchronous team.
>

> ---------------------------------------------------------------
> so my question is we propose to ask the school in writing to test him
> (the funtional test itself is $500) and then see about having this
> done at school.  We think we might be able to cut out one OT for his
> therapy and then try to pay for additonal speech at home instead of
> the vision therapy.  It's so overwhelming.  April
>

Reply | Forward | Messages in this Topic (5)

#1814

From: Christine <cinnych@...>
Date: Fri Feb 20, 2009 2:38 pm
Subject: Summary of Stimulus Bill and IDEA Funding

cinnych

Offline

Summary of Key Points in the Stimulus Bill for Special Education

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	Summary of Stimulus Bill & IDEA Funding

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February 17, 2009

ISSN: 1538-3202

Issue: 474
Subscribers: 67,228

In This Issue:

What Happened in the Final Bill?

Bill Provides Major Increase in Special Education Funding

Questions and a Plan of Action

Two Sources of Funding to School Districts

Reporting Provisions & Modernization/ADA Compliance

How to Find the Bill

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Wrightslaw Way Blog

How Much $$ Will Your District Receive from Economic Stimulus Bill?

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What Happens Next on Special Ed Regs?

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Contact Info

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P. O. Box 1008
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Dollar signs Dear Friend & Advocate

The final Stimulus Bill emerged on Friday. Overall, the bill will provide a major increase in special education funding, including $12.2 billion for IDEA.

In this issue of the Special Ed Advocate, Jessica Butler from the Council of Parent Attorneys and Advocates, Inc. (COPAA) explains what happened in the final bill and provides a summary of key points.

"Below are my initial thoughts on the bill, as I was asked to provide them.�This is not a complete analysis, even though it looks long (because its hard to reduce this into 2 sentences and make it understandable).

The final stimulus bill emerged on Friday. It will take time for people to read it and determine how it works and interacts with the IDEA.��So, please do not read this as a final analysis, or even a semi-final one." -Jessica Butler, COPAA Co-Chair, Congressional Affairs.

Please don't hesitate to forward this issue to other families, friends, and colleagues.

Summary of Key Points in the Stimulus Bill for Special Education

The Senate Stimulus bill would have allowed SEAs/LEAs to use all IDEA funds to supplant state/local special ed funds. This would allow states and school districts to cut overall special ed spending.��Instead of�an increase in special ed funding, as the stimulus contemplated, there would be a decrease in funding.�

This provision applied to Part B and C funds, not just the additional stimulus funds. If this had passed, it would have changed a provision that has been a fundamental part of the IDEA since 1975.�This would mean that��school districts could use their entire Part B and C allocations (regular allocations plus stimulus money) to reduce the funds they have to spend on special education.�This would mean real cuts, in the sense that districts could divert not only their stimulus funds, but could cut more funds because of the Part B and C funds they would be receiving through the regular process.

What Happened in the Final Bill?

The good news is that this provision was eliminated from the final bill.��Thanks to Congressman Miller, Congressman Obey and their staffs on the House side; to Senator Kennedy, Senator Harkin and their staffs on the Senate side, and to the members of the Conference Committee and Appropriations Committee who worked to protect the needs of children with disabilities.

We also thank the Disability Policy Collaboration (ARC/UCP), Easter Seals,�National�Center�for Learning Disabilities, National Down Syndrome Society, and many disability organizations and individuals who worked on these issues during the last few weeks.�We thank�the many members of the Council of Parent Attorneys and Advocates, parents, family members, friends, advocates, attorneys, and others who rallied against the Senate provision in response to this threat.

We received copies of many letters that were delivered to the conferees. More calls and faxes were sent.�COPAA members and other child advocates published the alerts through listservs and yahoo groups, on their webpages, and on Facebook and other social-networking pages.�Thanks to everyone who promoted the alerts and who worked on this issue!

Bill Provides Major Increase in Special Education Funding

Overall, the bill will provide a major increase in special education funding, including $12.2 billion for IDEA.��This includes $11.2 billion for Part B, $400 million for IDEA preschool funding, and $500 million for Part C.�These funds are�in addition to the regular Part B and Part C allocations.

IDEA has long been woefully underfunded and we have all seen the effects of this. Children are not identified for special education, or when identified, receive inadequate services and assistance.�While many school districts strive to provide good special education programs, we must ensure that all children with disabilities receive appropriate educations that prepare them for independent living.

As we have seen in our communities, many families are experiencing severe economic stress, job loss, reduced hours, and cuts in their businesses and retirement funds.��This includes parents of children with disabilities who face constraints in the services they can provide for their children.�

Children with disabilities are a very vulnerable population. Before this recession, many children lived in families who facing financial stress.�Before�the recession, approximately 2/3 of children with disabilities lived in families that earned under $50,000 a year. Approximately 35% of children lived in families earning less than $25,000 a year.

Children with disabilities need appropriate educations and services if they are to meet the purpose of IDEA. The�stimulus bill provided additional IDEA funds to meet the needs of children with disabilities.�Just as adults with disabilities are vulnerable populations who need additional funding, children with disabilities are vulnerable too.

For these reasons, it was essential that Congress delineated these funds to benefit children with disabilities - not simply as additional block funding for school districts or block funding for school district job creation/preservation.

I think Congress recognized that the families of children with disabilities are facing job losses and severe economic burdens. They acted to protect those children and their needs by providing additional IDEA funding. This funding includes providing appropriate special education and related services, equipment, assistive technology, training for teachers, access to nurses, etc.

Questions and a Plan of Action

Parent, advocate meeting You need to begin working with other advocates in your community and state to provide input about how these funds will be spent.��Find out the process your state and school district will use to award and spend these funds, and how you can have input.

While some states complained that getting money for two years of special education is useless, we question this claim.�Assistive technology, equipment, teacher training in reading and other methodologies are important factors that will have a long-term impact. The same is true for providing appropriate services - districts must provide FAPE.

Watch for the impact of layoffs in special education.�Look at the requirements for�providing highly qualified special education teachers. Are appropriate staff providing services? Are these services appropriate?

Are children being shifted from 1:1 and 1:2 therapy to large group therapies?��What will your state do�to increase transparency - to make public aware of how additional IDEA and School Stabilization funds are spent?�What accountability mechanisms are in place?

Be part of the process and have an impact!

Two Sources of Funding to School Districts

Dollar sign In the stimulus bill, school districts will get two sources of funds:

additional IDEA funds for 2009-10 and
stabilization funds.�

The increase in IDEA funds is substantial. Stabilization funds can be used for a variety of purposes, including special education and the school modernization you heard about in the press.�(Separately, there are also additional funds for Title I and other educational purposes.

Under the Stabilization Funds part of the bill (a separate title called State Fiscal Stabilization Funds), the Secretary of Education will get limited waiver authority to count stabilization funds as non-federal funds when calculating maintenance of effort.��This waiver authority is intended to be very narrow. If a school district spends its stabilization funds on special education, the Secretary of Education can give a waiver so the district can count those stabilization funds as though the funds were the district's money. The district may cut its contribution to special education by a similar amount.

This waiver authority only applies to stabilization funds and requires approval by the Secretary of Education.�The waiver�does not apply to the Part B or Part C funding the school district receives every year, or to the additional IDEA funds in the stimulus bill.�

This is a significant improvement over the language in the Senate bill. The Senate bill would have allowed waivers for all IDEA funding -- and would have allowed greater cuts in school district and state spending for special education.

But there may be an impact on maintenance of effort requirements under the IDEA.�The stimulus bill includes $11.3 million in Part B funds for FY 2009 and 2010.�These funds�could be awarded as lump sums to the states, which will allocate the funds to school districts.

In 20 U.S.C. 1413 of the IDEA, if a school district's allocation of Part B funds is greater than the past fiscal year, the district may reduce its spending by 50 percent of the increase.��The additional IDEA funds in the Stimulus Bill may be affected by this provision.

Reporting Provisions & Modernization/ADA Compliance

The final law includes a list of reporting requirements in the State Stabilization part of the bill. These requirements include how the state stabilization funds are used, the state's progress in hiring highly-qualified teachers, and the state's �progress toward developing valid and reliable assessments for limited English proficient students and children with disabilities.

Modernization/ADA Compliance

State Stabilization funds may be used for school modernization.�You need to find�out what your school district will do to ensure that school buildings are ADA-compliant, and how to prioritize this goal.�Identify schools that need improvements to be ADA-compliant. Advocate for this with your school board. Help the school board understand why ADA compliance is so important.

http://www.copaa.org/conference/index.html

How to Find the Bill

The formal name of the Stimulus bill is the American Recovery and Reinvestment Act (ARRA).�The final bill is posted in several places.

The bill is posted on the House Appropriations Committee website at�http://appropriations.house.gov/

The provisions relating to special education (IDEA) and the Stabilization fund are in the Document marked "Bill Text, Division A" at http://appropriations.house.gov/pdf/Recovery_Bill_Div_A.pdf

The Education section begins on page 168 of the file. The section about State Stabilization Funds and waivers begin on page 425 of the document. The title is State Fiscal Stabilization Funds.

Thanks to everyone who worked to protect funding for children with disabilities in the stimulus bill!

________________________________________________________

Thanks again to Jess Butler, Co-Chair, Congressional Affairs, COPAA, for this analysis.

Find out more about the Council of Parent Attorneys and Advocates (COPAA) - a national voice for special education rights and advocacy at http://www.copaa.org.

Interested in COPAA Membership?

We look forward to seeing you at the annual COPAA conference in Washington, DC on March 5-8, 2009.

What People Are Saying About The Special Ed Advocate Newsletter

"Thanks for the trustworthy information and support you provide through the Wrightslaw web site and newsletter. You helped our family act when we needed to - we are thriving now."

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#1813

From: Christine <cinnych@...>
Date: Fri Feb 20, 2009 2:30 pm
Subject: RAC Seminar Series

cinnych

Offline

Hunterdon Medical Center

Child Development Center

� Regional Autism Center

Presents:

�

Parent Based Seminars

Facilitated by Debra Baumann, MSW,LSW�

�

��Understanding Your Child�s Behavior�

�� Parents will learn about what you can do to improve your�child�s behavior

�� Parents will learn why your child behaves the way they do

March 4^th 7:00 to 9:00

�

This seminar marks the beginning of a series of seminars for parents.� Additional seminars will include the following:

��No More Excuses� (April)

�� Parents will learn ways to teach appropriate behaviors while taking into consideration their child�s disabilities and diagnoses.

�

��Temper Tantrums and Non Compliance� (May)

�� Parents will learn how to change the cycle of non-compliance

�

��Out of Control Behaviors� (June)

�� Parents will learn how to better manage aggressive behaviors

�

�Sleep Issues� (two sessions-July/August)

�� Parents will learn how to manage sleep issues

�

��Self Injurious Behaviors� (August)

�� Parents will learn why self injurious behaviors happen and how to better manage them.

If you are interested in attending these workshops, please email Jean Hewens with you name and email address: hewens.jean@...

�

Please post and distribute this flyer

These seminars are offered at no cost, but participants are asked to RSVP

�

�Services are funded in part by the new jersey governor�s council for medical research and treatment of autism, special child health and early intervention services, new jersey department of health and senior services�

�

#1812

From: "April Larsen" <ALarsen65@...>
Date: Wed Feb 18, 2009 11:36 am
Subject: Re: Vision Therapy

larsenapril

Offline