Thanks for sharing. I am inspired by your success.
My 6 year old son does not try cooked or uncooked vegetables or soft fruits. The only fruit he eats is apple. He does not try anything sour. No soups. Lots of aversion to color except M&M and Fruity loops. He used to eat french fries and potato. But stopped that too.
We try and try and end up frustrated.
Though he gets his veggies and fruits as smoothies everyday, I really want him to eat like rest of the family. My 2 year old daughter can eat everything, or atleast try before she says no.
We are vegetarians, so he don't have to try meat. Now he uses " I am vegetarian" when some outsider offers him food.
I have an insurance question.
1) How do I get it covered.
2) How do I get a prescription for referral from the doctor for this.
3) Can you please give the contact information for the JFK feeding therapy.
The Pediatrician feels he is healthy and does not have any eating issue.
But that is because, he gets half of his nutrition as smoothie. Thank goodness he like his carbs (his own white diet).
Just taking a moment to brag about our son's graduation from Feeding Therapy at JFK in Edison. Chris was dx in March of 07 with feeding issues primarily aversions to food and textures and the inability to
chew evenly on both sides etc. He had a feeding eval done and we targeted several areas and placed a lot of challenges ahead of him. Our Therapist made learning fun and easy. We worked at home like crazy too and even enlisted our son's teacher and aides in giving us lunch
feedbacks. We got the bible of all feeding therapy books called "Just Take a Bite" and tried to alert friends and family about our situation. Well it took over a year of heading in once a week but we
had our last session last night. He came out of his room with a big smile having tried a peach for the first time (he is going on five) stating that he 'found the treasure', having found the pit in the
center. We are so pleased and happy we wanted to share how well it worked and I only really found out about the program via a support group online - where one Mom actually worked at JFK and recommended it. Our insurance covered it (oddly they don't cover any speech) and
Chris is actually one of success stories because often times I hear people say feeding therapy did not work for them. Just wanted to share in case anyone here had feeding issues. April Larsen
I will be out of the office starting 07/30/2008 and will not return until
08/07/2008.
If you need to schedule time on Dan's calendar please contact Rosalyn
Santiago at 201-761-4804. Any other issues will be addressed upon my return
on August 7th.
The information contained in this message may be CONFIDENTIAL and is for the
intended addressee only. Any unauthorized use, dissemination of the
information, or copying of this message is prohibited. If you are not the
intended addressee, please notify the sender immediately and delete this
message.
Just taking a moment to brag about our son's graduation from Feeding
Therapy at JFK in Edison. Chris was dx in March of 07 with feeding
issues primarily aversions to food and textures and the inability to
chew evenly on both sides etc. He had a feeding eval done and we
targeted several areas and placed a lot of challenges ahead of him.
Our Therapist made learning fun and easy. We worked at home like crazy
too and even enlisted our son's teacher and aides in giving us lunch
feedbacks. We got the bible of all feeding therapy books called "Just
Take a Bite" and tried to alert friends and family about our
situation. Well it took over a year of heading in once a week but we
had our last session last night. He came out of his room with a big
smile having tried a peach for the first time (he is going on five)
stating that he 'found the treasure', having found the pit in the
center. We are so pleased and happy we wanted to share how well it
worked and I only really found out about the program via a support
group online - where one Mom actually worked at JFK and recommended
it. Our insurance covered it (oddly they don't cover any speech) and
Chris is actually one of success stories because often times I hear
people say feeding therapy did not work for them. Just wanted to share
in case anyone here had feeding issues. April Larsen
CARE TO SHARE SUPPORT NETWORK PRESENTS
Respite Care Connection Fair For Parents of Children with Special Needs
Thursday - August 7, 2008 - 7:00 - 9:00 pm - (Adults Only Please)
DON'T MISS THIS OPPORTUNITY TO FIND LONG TERM CHILD CARE FOR YOUR CHILDREN!
Hillsborough Municipal Complex - (Multi-Purpose Room)
379 South Branch Road
Hillsborough, NJ 08844
$25 Admission Includes:
* Complete information packet on the program, including summaries on all
child care providers
* Opportunity to interview potential in-home care providers
* 12 month access to provider/parent database, search for additional
child care resources & edit your personal profile as your needs change
Register Now - Space is Limited
RSVP to Tina Rear - tina@... or 908-450 - 5691
Allison... I know exactly what you are going through as I just
attended a meeting with another parent from your district and they
have the same request/concern.
The issue that is on the table here is the fact that you want your
concerns listed/attached "verbatim" to the document. The reason they
dont want to do this is somewhere in a recent court case (not sure if
it was in your district or not) the parents won thier case
specifically because thier concerns were listed verbatim and thus
your district is being more careful.
In the case of the family that I am working with the school district
named and referred to the document that listed the parents input for
the PLEP and concerns, and said it was available in his file for
review (knowing most people wont take the time to go to a separate
building to ask for permission to review it), but would not
incororate or attach it. Under the Parent Concerns section of the
IEP they did discuss each point the parents listed and gave their
response to each as to why they werent doing what the parent asked.
In doing thier summation and response they did not necessarily
reflect the true nature of the parents concern and they left some
portions out. At this point they are not willing to ammend them,
therefore the parents are STILL requesting they be included and thus
it is now one of many items pending for due process/mediation. One
of the issues referenced by the parents is the knowledge that in the
PAST they added the family's comments verbatim and FOR OTHER FAMILIES
they have added comments verbatim. The schools response is that due
to this issue with more than one family in the district and the past
case ruling the special ed director is reviewing the matter with
their lawyer to clarify overall school policy going forward... things
in the past/other families do not matter at this point... once they
get a response from their lawyer (who is going on vacation) they will
inform us of the decision.
An advocate that has reviewed the case has commented that family
input SHOULD BE part of the IEP as they are by law considered part of
the team. There is no law that states parent input has to be
accepted verbatim (at least not that she was aware of at the time of
our conversation, but she is looking to clarify that as well as
checking to see which case was won regarding parents verbatim
input). It is typical that schools put in a summary of the parents
concerns along with their comments, but if the parents are not
comfortable with how it reads they either need to be willing to amend
it to assure the parents true views are represented or then insert
comments verbatim. Either way the school is running a risk as to how
it will all be interpreted if an issue related to the IEP goes to
court. If they dont ammend/attach they are not including the parent
as an equal part of the team/document. If they do attach verbatim
they run the risk of how much credence the court gives to the parent
input versus the school report.
The advocate also said if the school agrees to include/reference the
parent comments verbatim you dont want them listed as a separate
document referenced (for legal reasons NEED it to be part of actual
IEP document) you also dont want them just attached to the end of the
IEP where they tend to be overlooked but rather incorporated within
or just after the Parent Concerns section of the IEP. If thier
computer program does not allow for full input then attach it within
the middle and number the pages as 8a, 8b, 8c etc depending how it
falls WITHIN the IEP pages.
If the school does not agree to incorporate your comments and you
choose to not pursue it through due process there apparently is a
form that can be attached to the front of the IEP that allows you the
chance to make a brief statement that there is a section of the IEP
you disagree with...That way all reading the IEP sees this notice
first. Maybe some of the advocates on this listserve can reference
which form this is and the process that is necessary to get it
attached cause I am not clear about how this all works.
If you are still within the 15 day period for review of your IEP and
since the lawyer is reportedly going on vacation you may not get a
response to resolve this before your 15 day time period. In order to
not loose your rights, prepare to file a request for mediation before
the 15 days are up so you have somewhere to move on the issue if need
be. If the school responds before it becomes a state process you can
always revoke the request saying that it was already resolved with no
harm to you. If you already missed that vital 15 day time line, you
either request a new IEP meeting so the time starts cycles start
again and/or file a formal complaint with the state... again..
ADVOCATES... please advise as I am not sure of the proper process
after the 15 days and I know of one other family that did miss that
time line due to being called away for military duty.
Hope this helps and if I learn of more info regarding the policy/law
I will let you know.
~ C
--- In Care-to-ShareSupportNetwork@yahoogroups.com, "allie08520"
<allie08520@...> wrote:
>
> Hi -
>
> I'm trying to get a parent attachment into my son's IEP. However,
our
> school district is saying we are not allowed to add an attachment.
>
> From what I've seen on the Internet, I think we should be allowed
to
> have an attachment, but don't have any definite proof. In short,
the
> attachment says that our son should get more OT and we list reasons
> why. The request was already denied, but we just want to get our
> thoughts on the official document. They have offered to summarize
our
> thoughts, but not attach the letter.
>
> Is this the law? Has anyone else had this experience? If my
school
> district is "erring", how do I convince them to attach our letter?
>
> Thanks - Allison
>
posted for a good friend and neighbor.....
We are happy to announce the creation of the Autism JAM Foundation, a
new organization Steve and I have established along with my sister,
Jeralyn, and her husband, Tom. Our mission is to raise money for
autism research and heighten autism awareness. We would like to help
parents, professionals and scientists to work collaboratively to find
an effective treatment and a cure for autism.
We have launched a web site at www.autismjam.org and are also holding
a fundraising event on August 9th near Rochester, N. Y. The event
will include a 5K Run/Walk, family picnic, silent auction, 50/50
raffle and games for kids. More information is available on the web
site.
Although this event is not being held in New Jersey, you can help by
going to our web site and sponsoring a runner/walker or making an
online donation. All proceeds from the event and online donations
will go directly to Autism Speaks®, the organization we have chosen
to support.
We encourage you to forward this message, visit the web site and
learn more about us.
Your support of our families and other families dealing with autism
means a great deal to us.
Thank you!
Jennifer and Steve Collucci
Autism JAM Foundation
info@...
If you want a visual to bring to your IEP meeting, click on the link below to access the NJDOE's model annotated IEP form, which states on page two that parental concerns must be listed in the document. I've highlighted the statement in red below.
Consider relevant data.Consider the results of the initial or most recent evaluation and, as appropriate, consider the student’s performance on any general Statewide or districtwide assessment [N.J.A.C. 6A:14-3.7(c)3]. List the sources of information including evaluation data, teacher reports, classroom observations, interests and preferences of the student* and parental input used to develop the IEP.State the strengths of the student [N.J.A.C. 6A:14-3.7(c)1].State the concerns of the parent [N.J.A.C. 6A:14-3.7(c)1].
*For the purpose of transition planning, the interests and preferences of the student are recorded on page 3 of the IEP.
Describe the present levels of academic achievement and functional performance including how the student’s disability affects his or her involvement and progress in the general education curriculum.For preschool children, as appropriate, describe how the disability affects the child’s participation in appropriate activities [N.J.A.C. 6A:14-3.7(e)1].
For preschool students, review the preschool day to determine what accommodations and modifications may be required to allow the child to participate in the general education classroom and activities. [N.J.A.C. 6A:14-3.7(c)11].
Include other educational needs that result from the student’s disability [N.J.A.C. 6A:14-3.7(e)3ii.
In addition, consider each of the following. If in considering the special factors described below, the IEP team determines that the student needs a particular device or service (including an intervention, accommodation or other program modification) to receive a free, appropriate public education, the IEP must include a statement to that effect in the appropriate section.If a factor is not applicable, note as such.
Beginning at age 14 or younger, if appropriate, the need for consultation from Division of Vocational Rehabilitation Services, Department of Labor and other agencies providing services for individuals with disabilities or other agencies providing transition services [N.J.A.C. 6A:14-3.7(c)10] (Complete “Statement of Consultation,” page 4).
Whether the student’s behavior impedes his or her learning or that of others.If applicable, develop strategies, including positive behavioral interventions and supports to address the student’s behavior [N.J.A.C. 6A:14-3.7(c)4] (Complete “Behavioral Interventions,” page 7);
Consider the academic, developmental and functional needs of the student [N.J.A.C. 6A:14-3.7(c)2];
Language needs of a student with limited English proficiency [N.J.A.C. 6A:14-3.7(c)5];
Communication needs [N.J.A.C. 6A:14-3.7(c)7];
For a student who is deaf or hard of hearing, opportunities for direct communication with peers and professional personnel [N.J.A.C. 6A:14-3.7(c)8];
The need for assistive technology devices and services [N.J.A.C. 6A:14-3.7(c)9] (When applicable, identify the assistive technology devices and services on page 8); and
Other
For a student who is blind or visually impaired, the IEP team shall provide for instruction in Braille and the use of Braille, unless the IEP team determines that such instruction is not appropriate.Such determination shall be based on an evaluation of the student’s reading skills, writing skills, current and projected needs for instruction in Braille.Provide a rationale for such determination [N.J.A.C. 6A:14-3.7(c)6].
Renay Zamloot Non-attorney Education Advocate 23 Wellington Drive Annandale, New Jersey 08801
Telephone: 908-730-0080 New e-mail address: rzamloot@...
*Advocating the Rights of Students with Disabilities and Their Families*
Notice: This e-mail correspondence, including any attachments, is for the sole use of the intended recipient(s) and may contain information that is confidential and/or privileged. If you are not the intended recipient or agent thereof, be advised that you have received this e-mail correspondence in error and any use, dissemination, disclosure, printing, copying, or any action taken in reliance on the contents of this e-mail correspondence is strictly prohibited. If you have received this e-mail correspondence in error, please notify the sender immediately by return e-mail and delete the original message, attachments and all copies of the original message from your system.
I agree with the others that the parents concerns are a place for
that. If you feel you need this info in there for the record and state
somethink like if our son has not shown significant improvement by such
and such date the parents wish to have an independent evaluation done
at the district's expense to determine the level of impairment - just
to prove a point to to get some amo for upcoming mediation you can ask
them to place this in the IEP and you can follow up with a letter - let
them tell you in writing why this cannot be done by asking them to
specifically outline any violation of code.
April
I have always attached a written "portrait" of my children into the IEP. District has never denied me doing so, but they do want a copy before the scheduled IEP meeting to address any statement in the portrait that they may or may/not agree with during the meeting.
In our district, there is a section called Parental
Concerns where this type of information goes. WE
think our kid should get X, Y, and Z. The district
will put in whatever we say were are concerned about,
and then list their justifications about why we're
wrong. But at least the next year's teachers see what
you think is going on.
I cannot find a regulation that says they must do
this. What I did find in NJ administrative code is
this:
(c) When developing the IEP, the IEP team shall:
1. Consider the strengths of the student and the
concerns of the parents for
enhancing the education of their child;
Eileen
--- allie08520 <allie08520@...> wrote:
> Hi -
>
> I'm trying to get a parent attachment into my son's
> IEP. However, our
> school district is saying we are not allowed to add
> an attachment.
>
> From what I've seen on the Internet, I think we
> should be allowed to
> have an attachment, but don't have any definite
> proof. In short, the
> attachment says that our son should get more OT and
> we list reasons
> why. The request was already denied, but we just
> want to get our
> thoughts on the official document. They have
> offered to summarize our
> thoughts, but not attach the letter.
>
> Is this the law? Has anyone else had this
> experience? If my school
> district is "erring", how do I convince them to
> attach our letter?
>
> Thanks - Allison
>
>
Hi -
I'm trying to get a parent attachment into my son's IEP. However, our
school district is saying we are not allowed to add an attachment.
From what I've seen on the Internet, I think we should be allowed to
have an attachment, but don't have any definite proof. In short, the
attachment says that our son should get more OT and we list reasons
why. The request was already denied, but we just want to get our
thoughts on the official document. They have offered to summarize our
thoughts, but not attach the letter.
Is this the law? Has anyone else had this experience? If my school
district is "erring", how do I convince them to attach our letter?
Thanks - Allison
I am wondering if anyone would be interested in starting a play group
for high functioning autistic boys ages 7-9. My son has mild autisim
and will turn nine in August. He has been in a social skills group for
the last three years which has been beneficial. He has socialized with
some of those boys here and there, but I'm looking for something more
consistent. I live in North Brunswick, so I guess if you live in
Central Jersey, that would work. My idea would be to meet once a month
(or every 5 weeks or so to start) at either someone's home, backyard,
or out somewhere, a park, a zoo, museum etc.
If you are interested please email me at janeborselli@...
Thanks,
Jane
Camp Kiddie Keep Well is having an "Autism Community Resource Fair"
this Saturday from 10-3. It's listed as being an informational fair on
autism discussing the resources available, with entertainment
featuring a DJ, clowns, magician and face painting.
This was in The Star Ledger.
Dawn - We have not had that experience. My so is high functioning but
does have some areas that are severe impairment with regard to feeding
therapy, OT and of cours speech but they contact us with checks and
support. They would also send us money for respite if we needed or
asked and they offered the free advocate via CP of NJ so it depends
mainly on who your case manager is - and ours is Sandy Dunleavy and she
is amazing. If you are denied I would send in any and all evaluations
to ask them to consider because every few months they go over the cases
and the progress and we applied in Nov of 06 and got money in August of
07 but not approval by the time the deadline was for camp. We were
kind of limited because of my son's age anyway but it would have been
nice.
April
HI Evelyn, this subject came up at the very first SPANN meeting I ever attended, at SOmerset Medical Center.
The bus driver wanted my friends son to wear a restraint vest on the bus, it was a 45 minute ride. She fought it, she had to transport him herself for a while too. It was a decent ride, about 45 minutes. I think she was able to get him a one-to-one aid for the bus ride, and that solved the problem.
Putting restraints in any form on someone is something that should be taken very seriously. I am a former RN, and nurses are not allowed to put restraints on someone UNLESS, all other approaches to the problem have been attempted first. They must also be documented. I question the credentials of a bus driver to insist on a child wearing a restraining device. I worked in an Emergency Department, and there were times when we had to take care of people who had behavior that was dangerous to themselves or others. It was always our responsibility to make sure there were no circulation problems from something that was too tight. I wonder, how is a child supposed to go to school and write, or use their hands properly, if a restraining device was apply to tightly for the last hour??? Nurses have to document the list of circulatory checks, making sure nothing is
too tight, every fifteen minutes. There are other things that need to be documented this way too. I wonder, do they check this on the bus? I would bet not.
I would never sign a form giving anyone blanket permission for this. The need for restraints is so individualized, and there are so many interventions that can be used to avoid the need for restraints. We need to maintain a level of accountability, the people taking care of our children need to tell us why they are using restraints, and what other measures were attempted, and how long they are on our children? Lots of questions, I hope we can get the answers!
Signing a form like this could lead to terrible exploitation of something that started with good intentions. Its like the slippery slope, once they start, how far does it go? Diane
--- On Sat, 7/12/08, Evelyn Delgado <joyzee_devil@...> wrote:
From: Evelyn Delgado <joyzee_devil@...> Subject: [Care-to-ShareSupportNetwork] Re: Fwd: URGENT Request for copy of parent consent for aversives and restr aints To: "Suzie Fiordland" <sfiordland@...> Date: Saturday, July 12, 2008, 1:00 PM
My 2 children are in out of district placements and I never had to sign any such form to have them placed in the school. I deal with a lot of parents who opt for out of district placement and I've never heard of such a request. Would any parent in their right mind sign anything as stupid as a consent for aversive and restraint techniques applied to their child? Does a harness on the bus also qualify as a restraint? I know of a parent who was just asked if she would consider a harness for her child, of course she said NO and was stunned at the request. It was only a verbal request at this point but if they insist and produce a form I will definetly get it to you.
I sent a letter a while back to Renay Zamloot condemning this practice. I was wondering whatever became of that movement to remove restraints from being used on our children?
I would be very interested in seeing such a restraint form and how it is worded?
I received an email and call from a reporter from LRP publications looking for input on the new COPAA position on aversives and restraints. I shared some information with him including the fact that parents are often forced to sign consents for out of district placements to use aversives and restraints in order to get their child/youth placed. He would like to see such a form and even to post it on their website (it doesn't have to be completed with the child's name). This is a tremendous opportunity to showcase how abusive this practice is. Anyone willing to share a copy of such a form? Also, he may want to do a bigger story on this. Anyone willing to speak to him? Anyone who has a parent whose child is in one of the new in district (segregated) programs for students with autism whose child is being abused with aversives or restraints in district? He is interested in this development as
well. Let me know ASAP. Thanks.
My 2 children are in out of district placements and I never had to sign any such form to have them placed in the school. I deal with a lot of parents who opt for out of district placement and I've never heard of such a request. Would any parent in their right mind sign anything as stupid as a consent for aversive and restraint techniques applied to their child? Does a harness on the bus also qualify as a restraint? I know of a parent who was just asked if she would consider a harness for her child, of course she said NO and was stunned at the request. It was only a verbal request at this point but if they insist and produce a form I will definetly get it to you.
I sent a letter a while back to Renay Zamloot condemning this practice. I was wondering whatever became of that movement to remove restraints from being used on our children?
I would be very interested in seeing such a restraint form and how it is worded?
I received an email and call from a reporter from LRP publications looking for input on the new COPAA position on aversives and restraints. I shared some information with him including the fact that parents are often forced to sign consents for out of district placements to use aversives and restraints in order to get their child/youth placed. He would like to see such a form and even to post it on their website (it doesn't have to be completed with the child's name). This is a tremendous opportunity to showcase how abusive this practice is. Anyone willing to share a copy of such a form? Also, he may want to do a bigger story on this. Anyone willing to speak to him? Anyone who has a parent whose child is in one of the new in district (segregated) programs for students with autism whose child is being abused with aversives or restraints in district? He is
interested in this development as well. Let me know ASAP. Thanks.
If your child was approved by the DDD, and you are going to attend a DDD funded camp you are eligible for services. You don't need to re-apply unless during an in-take you indicated to your case manager that you no longer require services, your case manager is to contact you every year asking that you still want to continue to receive services. I would check with your case manager, as far as respite goes it depends on what agency will be providing the respite and what type of hours you are looking for. The actual DDD does not provide the actual respite they have contracts with several different agencies (ie The ARC) that provide differnet services like respite, saturday recreation programs, after school, etc. not all agencies provide identical
services. Some agency also do a cash option for respite where you find your own respite worker, you pay the worker directly and you get reimbursed once a month from the agency. Most have waiting list but you have to be the one making the calls finding out where you are on a waiting list..You are correct that they need to be more accepting of disabilities, the high functioning people seem to get left out here, that is why you need to re-apply after you have been denied. Once you are approved with the DDD you then need to call your case manager on a weekly basis reminding them who your child is and where do they stand on the waiting list. If you don't call they forget you, a lot of times case managers change so often things get "lost" so more reason to keep calling for those services.
Hopefully this will provide you with some insight on how the DDD operates.
Kim
----- Original Message ---- From: Amy <asteinberg01@...> To: Care-to-ShareSupportNetwork@yahoogroups.com Sent: Friday, July 11, 2008 1:38:42 PM Subject: [Care-to-ShareSupportNetwork] Re: DDD- they need to be more accepting!!!
my ds has been accepted by DDD in 2006. I have to re-apply again in September/October. it only took a few months for us to get word that he was approved. he is also eligible to attend camp jatoni. he went for the first time last summer and will be going back again this summer. i understand that the respite that ddd provides is in extreme wait list mode.
--- In Care-to-ShareSuppor tNetwork@ yahoogroups. com, Dawn <onegr8keeper@ ...> wrote: > > It took me 2 years to get my son Aaron into the program - keep trying. Once you're in with the DDD, you'll have to keep after them all of the time any way. > > My girlfriend's daughter who is in the same out of district school as my son, was also told that her daughter was too
high functioning but she kept at it and just got the okay from DDD and it also took her about 2 years. > > Keep up the fight - it will be worth the effort. Dawn > > --- On Thu, 7/10/08, Evelyn Delgado <joyzee_devil@ ...> wrote: > From: Evelyn Delgado <joyzee_devil@ ...> > Subject: [Care-to-ShareSuppo rtNetwork] DDD- they need to be more accepting!!! > To: Care-to-ShareSuppor tNetwork@ yahoogroups. com > Date: Thursday, July 10, 2008, 8:10 PM > > > > > > > > > > > > Concerning the DDD if they deny Andrew you should appeal that decision. I've been told that they usually accept 90% of the
cases they receive but it takes time. > > I can tell you from experience though that my children were not accepted even after I appealed the decision. Don't be discouraged by my experience because I plan to reapply. My children were also considered to be high functioning and thus not accepted. I find this totally unexcusable from the DDD office. My children are in out of district placements and the behavioral issues are too numberous to count. Their intellect is in tact and so the DDD figures they are high functioning and would not accept them. As soon as I get my new reports I will apply again. > > > >
my ds has been accepted by DDD in 2006. I have to re-apply again in
September/October. it only took a few months for us to get word that
he was approved. he is also eligible to attend camp jatoni. he went
for the first time last summer and will be going back again this
summer. i understand that the respite that ddd provides is in extreme
wait list mode.
--- In Care-to-ShareSupportNetwork@yahoogroups.com, Dawn
<onegr8keeper@...> wrote:
>
> It took me 2 years to get my son Aaron into the program - keep
trying. Once you're in with the DDD, you'll have to keep after them
all of the time any way.
>
> My girlfriend's daughter who is in the same out of district school
as my son, was also told that her daughter was too high functioning
but she kept at it and just got the okay from DDD and it also took
her about 2 years.
>
> Keep up the fight - it will be worth the effort. Dawn
>
> --- On Thu, 7/10/08, Evelyn Delgado <joyzee_devil@...> wrote:
> From: Evelyn Delgado <joyzee_devil@...>
> Subject: [Care-to-ShareSupportNetwork] DDD- they need to be more
accepting!!!
> To: Care-to-ShareSupportNetwork@yahoogroups.com
> Date: Thursday, July 10, 2008, 8:10 PM
>
>
>
>
>
>
>
>
>
>
>
> Concerning the DDD if they deny Andrew you should
appeal that decision. I've been told that they usually accept 90% of
the cases they receive but it takes time.
>
> I can tell you from experience though that my children were not
accepted even after I appealed the decision. Don't be discouraged by
my experience because I plan to reapply. My children were also
considered to be high functioning and thus not accepted. I find this
totally unexcusable from the DDD office. My children are in out of
district placements and the behavioral issues are too numberous to
count. Their intellect is in tact and so the DDD figures they are
high functioning and would not accept them. As soon as I get my new
reports I will apply again.
>
>
>
>
May Institute's Summer Autism Workshop Series for Parents
To celebrate the opening of our new office in Burlington, New Jersey, May Institute is pleased to offer a series of parent workshops. Each workshop is approximately 90 minutes in length and includes a 60- minute presentation, a 15-minute work group, and a 15-minute Q&A session.
Yes! Please register me for the following workshop(s):
_____ Autism & Developmental Disabilities July 15, 2008 6:00 - 7:30 p.m. Understanding autism and developmental disabilities in relation to mental retardation, developmental delay, and ADHD.
_____ What is Applied Behavior Analysis (ABA) July 22, 2008 6:00 - 7:30 p.m. Understanding why children with autism behave the way they do. Using positive strategies to support the development of desired behaviors.
_____ Social Skills for Children with Autism July 29, 2008 6:00 -
7:30 p.m. Determining age appropriate social skills and how to incorporate social skill instruction into your child's daily routine.
Let us know if you have topic ideas for future sessions: ____________ _________ _________ _____
Renay,
you rock - thank you!!!!
Tracey
--- In Care-to-ShareSupportNetwork@yahoogroups.com, "Renay Zamloot"
<rzamloot@...> wrote:
>
> The following has been taken from SPAN's website: www.spannj.org
>
>
>
> Morris
>
> Boonton Parents of Exceptional Adults and Children
> Town: Boonton
> Contact person: Wendy Stanton
> Email: stanfam3@...
> Second contact person: Gabrielle Bohon
> Second contact email: ptamentor@...
> Target group: All disabilities
> Meeting location: We hold a monthly "coffee" on Saturday mornings
from 9-11am rotating sites. Contact us for more information.
> Area served: Boonton and surrounding areas
>
> Boonton PEAC seeks to provide information and support to families,
in addition to providing recreational activities to adults and
children with and without special needs in our community.
>
> Butler Parents of Exceptional Children
> County: Morris
> 10 Kakeout Road
> City: Butler
> Contact Person: Frank Rivera, President
> Phone: 973-865-6411
> Email: butlerpec@...
> Second Contact Person: Andy Lugo
> Target group: All Special Needs welcome
> Meeting Location: Butler Public Library, 2nd & 4th Thursdays of
each month
> Website link: www.butlerpec.org
> Area Served: Butler and surrounding communities
>
> The Butler Parents of Exceptional Children Inc. mission is to
improve the quality of life and education for children with special
needs and raise public awareness of their needs and talents. We will
also support fellow parents of children with special needs in Butler
and the surrounding communities.
>
>
>
> Chatham
> ChASE (Chatham Association for Support in Education) is a district-
wide parent group focusing on special services. Open to all parents.
ChASE meets every other month during the school year See the calendar
for the schedule. For more information check out our
> website.http://www.chatham-
nj.org/coin/ChatSS/chasehome.htm
> You can email ChASE at our email address chase@...
>
> ChASE distributes a monthly newsletter to all schools and to
parents of children in out-of-district placements who request it.
This newsletter announces our meetings and lists other nearby
meetings and programs of interest. See the current newsletter or
archived newsletters
> COIN - Chatham Online Information Network
> School District of the Chathams
> Contact Person: Jean B. Earle
> Chatham, New Jersey
> 973-635-4734
> 973-635-1926 (fax)
> http://www.chatham-nj.org/coin/
>
> COSAC - The New Jersey Center for Outreach and Services for the
Autism Community
> Contact person: Jodi Pimentel
> Phone: (973) 663-2505
> Target group: Parents, Family Members and Caregivers of Individuals
with Autism Spectrum Disorder
> Meeting location: Hackettstown Hospital, 7:30pm to 9:00pm
> Website: www.njcosac.org
> Area served: Northwestern NJ
>
> Providing support, information and resources for the autism
community. The Morris group usually meets the fourth Monday of the
month. Please call the contact person to verify dates, times and
location.
>
> Denville S.P.A.R.K. (supportive parents advocating for our kids) We
meet each month on the first Tuesday of the month (except for
November when it's the 2nd Tuesday due to election day. We meet at
the Valleyview Middle School Library at 7:30 pm. contact person --
Sheila DiFalco 973-586-9712.
>
> Jewish Education Association
> County: Morris
> 901 Route 10, Whippany
> Contact person: Linda Kay
> Phone: 973-929-2968
> Fax: 973-428-4720
> Email: lkay@...
> Second contact person: Wendy Dratler
> Second contact phone: 973-929-2969
> Second contact fax: 973-428-4720
> Second contact email: wdratler@...
> Target group: CP, Seizure Disorders, Physical Challenges, ADHD,
ASD, Behavioral Disorders
> Meeting location: Jewish Education Association of MetroWest, 901
Route 10, Whippany, NJ 07981
> Area served: Morris, Essex, Union, Sussex Counties
>
> Two monthly parent support groups meet at the Jewish Education
Association of MetroWest, 901 Route 10 East, Whippany, NJ. Groups
offer guidance regarding educational issues, support, advocacy, and
resources to parents. Group A is for parents of children with
developmental / medical disabilities. This group meets one morning/
month. Group B is dedicated to parents of children with learning
disabilities, ADHD, ASD, and behavioral issues. this group meets one
Thursday evening/month. Both groups are facilitated by a clinical
psychologist. There is no fee to attend either group. For more
information and meeting dates and times contact: Linda Kay - 973-929-
2968 / lkay@...
>
> Mount Olive Special Kids Group
> City or town: Flanders, NJ
> Contact person: Awilda Belardo
> Phone: (973) 252-9424
> Email: mtospecialkids@...
> Target group: All disabilities
> Meeting location: We meet the last Thursday of each month at the
Mount Olive library meeting room at 6:45 pm.
> Area served: Mount Olive school district and beyond, all are
welcome.
>
> Open to parents of students with all disabilities or special needs.
>
> Parents Of Exceptional Adults and Children PEAC
> Address: 407 Pine St
> Town: Boonton
> Contact person: Wendy Stanton
> Phone: 973 334 5243
> Email: stanfam3@...
> Target group: Any disability
> Area served: we welcome anyone from anywhere
>
> We are a group of adults committed to improving the lives of people
with disabilities in our town; through recreation, life skills and
service to the community
>
> Kinnelon PEC
> County: Morris
> 29 Chilhowie Drive, Kinnelon, NJ 07405
> Contact person: Ellen Sharpe
> Phone: (973) 492-2909
> Fax: (973) 492-6076
> Email: elmsharpe@...
> Second contact person: Tania Haycock
> Second contact phone: (973) 838-1520
> Second contact email: tanianhal@...
> Target group: All
> Meeting location: Kinnelon Public Library - 132 Kinnelon Road,
Kinnelon, NJ
> Website link: http://www.kinnelonpec.org
> Area served: Kinnelon and surrounding communities
>
> Kinnelon PEC supports the educational, emotional, and social
welfare of children with special needs and their families.
>
> Lincoln Park PEC
> Address: 19 Jardine Lane
> Town: Lincoln Park NJ 07035
> Contact person: Margaret Hefferle
> Phone: 973 331-0705
> Fax: 973 290- 7358
> Email: LPPEC@...
> Second contact person: Denise McCarthy
> Second contact phone: 973 694-7817
> Target group: All disabilities
> Meeting location: meetings are a monthly coffee on the first
Saturday of the month 9-11am
> Area served: Lincoln Park/Morris County
>
> Lincoln Park Parents of Exceptional Children is a district-wide
organization whose goal is to support children with special needs (of
all ages) and their families.
>
> Madison Parents & Professionals for Exceptional Children
> Contact Person: Tara Amaral
> Contact Phone: 973 410-0965
> E-mail: tnamaral@...
> Second Contact: Joan T. Palmieri
> Phone: 973 377-6809 Fax: 973 377-6809
> E-mail: joanpalm@...
> Website: www.madisonpublicschools.org
>
> PPEC is a collaboration between parents and the Special Services
Department of Madison. By working together, our goals are: . To
provide support and advocacy for families with children who have
special needs . To develop more effective communication between
parents and special services personnel in the schools . To provide
programs and information for parents and professionals on current
topics in special education . To improve the educational,
recreational, vocational and social programs for our children . To
keep abreast of federal, state and local legislation that may affect
the education of exceptional children
>
> Parents Advocating for Special Services
> Contact person: Rachelle Welt
> Phone: 908-604-1131
> Email: rachelleshelly@...
> Meeting location: Long Hill Twp. Library
> Area served: Long Hill Township
>
> To educate and provide support to families with children having
disabilities.
>
>
>
> Parents and Professionals for Exceptional Children
> Randolph, NJ
>
> Monthly Meetings are held at 2 Emery Ave.
>
> on Wednesday nights at 7:30pm
>
> President: Laurel Clark (973)328-0531 lclark88@...
>
> Vice President: Lucy Ortiz (973)537-0539 lucyortiz@...
>
>
> THE ROXBURY PARENTS FOR EXCEPTIONAL CHILDREN, INC. (PEC)
> PO Box 128
> Succasunna, NJ 07876
> (973) 598-0848
> Jodi Cullen, treasurer
> Programming for children and teens with disabilities and their
families are offered throughout the year.
> E-mail Jodi Cullen at cullens@...
> S.P.A.R.K. (Supportive Parents Advocating for Ou"R" Kids)
> Town: Denville, NJ 07834
> Contact person: Dr. Sheila Brodhead DiFalco
> Email: sbdifalco@...
> Target group: All disabilities
> Meeting location: Contact sbdifalco@... for a calendar, to join, or
to be put on the mailing list.
> Area served: Denville, Parents and children from other towns are
welcome to participate.
>
> A parent group dedicated to providing resource sharing, and
emotional, social, and recreational support for families who have
children with special needs. A main goal is to help these children
integrate successfully into the larger community. Educational evening
programs for parents are held periodically during the school year
>
>
>
> Renay Zamloot
> Non-attorney Education Advocate
> 23 Wellington Drive
> Annandale, New Jersey 08801
>
> Telephone: 908-730-0080
> New e-mail address: rzamloot@...
>
> *Advocating the Rights of Students with Disabilities and Their
Families*
>
>
> Notice: This e-mail correspondence, including any attachments, is
for the sole use of the intended recipient(s) and may contain
information that is confidential and/or privileged. If you are not
the intended recipient or agent thereof, be advised that you have
received this e-mail correspondence in error and any use,
dissemination, disclosure, printing, copying, or any action taken in
reliance on the contents of this e-mail correspondence is strictly
prohibited. If you have received this e-mail correspondence in error,
please notify the sender immediately by return e-mail and delete the
original message, attachments and all copies of the original message
from your system.
> ----- Original Message -----
> From: paltrace
> To: Care-to-ShareSupportNetwork@yahoogroups.com
> Sent: Thursday, July 10, 2008 12:38 PM
> Subject: [Care-to-ShareSupportNetwork] Support groups in Morris
County
>
>
> Does anyone know if support groups in Morris County that I could
look
> into when Andrew and I move?
>
> I'd love to be able to start something up there but with the
divorce,
> move, and going back to school - it's not something that I can
even
> fathom at this point.
>
> Even any respite resources would be great.
>
> I've already contacted ARC of Morris and they really couldn't
help me
> until I found out if Andrew will be accepted by the DDD. I,
> personally don't think that will happen as he is too high-
functioning.
>
> Anyway, if anyone has any useful information for me, I'd really
> appreciate it.
>
> And, even though we will be moving - I still hope to come back
down
> for the picnic in September.
>
> Thanks for all your support.
>
> Tracey
>
It took me 2 years to get my son Aaron into the program - keep trying. Once you're in with the DDD, you'll have to keep after them all of the time any way.
My girlfriend's daughter who is in the same out of district school as my son, was also told that her daughter was too high functioning but she kept at it and just got the okay from DDD and it also took her about 2 years.
Keep up the fight - it will be worth the effort. Dawn
--- On Thu, 7/10/08, Evelyn Delgado <joyzee_devil@...> wrote:
From: Evelyn Delgado <joyzee_devil@...> Subject: [Care-to-ShareSupportNetwork] DDD- they need to be more accepting!!! To:
Care-to-ShareSupportNetwork@yahoogroups.com Date: Thursday, July 10, 2008, 8:10 PM
Concerning the DDD if they deny Andrew you should appeal that decision. I've been told that they usually accept 90% of the cases they receive but it takes time.
I can tell you from experience though that my children were not accepted even after I appealed the decision. Don't be discouraged by my experience because I plan to reapply. My children were also considered to be high functioning and thus not accepted. I find this totally unexcusable from the DDD office. My children are in out of district placements and the behavioral issues are too numberous to count. Their intellect is in tact and so the DDD figures they are high functioning and would not accept them. As soon as I get my new reports I will apply again.
Yes, that is true. If the district agrees to the placement, then they have to provide transportation. However, if you are behind close doors, in the spirit of negotiation, getting the district to agree to an out of district placement you may be able to get it if you negotiate transportation. It's called whatever works. Like I said before, if the district refuses to agree to an out of district placement then you spend many dollars going to due process if you cannot come to an agreement prior to that with no guarantees. You have to decide what works best for your individual situation and your pocket book!
I'm not an expert but I do believe that if it is agreed upon that a child needs to go to an out of district placement for whatever reason transportation has to be provided by district. I'm not aware of any district asking parents to be their own transportation for the child or paying for transportation...
Does anyone have an any information on transportation and the rules, are transportation issues covered in IDEA?
Concerning the DDD if they deny Andrew you should appeal that decision. I've been told that they usually accept 90% of the cases they receive but it takes time.
I can tell you from experience though that my children were not accepted even after I appealed the decision. Don't be discouraged by my experience because I plan to reapply. My children were also considered to be high functioning and thus not accepted. I find this totally unexcusable from the DDD office. My children are in out of district placements and the behavioral issues are too numberous to count. Their intellect is in tact and so the DDD figures they are high functioning and would not accept them. As soon as I get my new reports I will apply again.
I'm not an expert but I do believe that if it is agreed upon that a child needs to go to an out of district placement for whatever reason transportation has to be provided by district. I'm not aware of any district asking parents to be their own transportation for the child or paying for transportation...
Does anyone have an any information on transportation and the rules, are transportation issues covered in IDEA?
There is a big difference in cost paying for bus service picking up a child within the town to the district then having to pay for a bus to pickup a child at their house to drive two hours each way. Some parents in other districts (no mine) have worked it out that they would provide the transportation and the district would pay for the tuition in order to obtain an out of district placement that was a distance but I work full time and couldn't make that offer.
My district would gladly not have to pay for one more dime then they would have to - they don't care about kids with special needs and anything that would cost them additional dollars then the norm they do not want to do! After a two year fight, I finally got a program closer to what more child needs along with a new special education teacher and new aid who really care about my child along with extended ESY and a home program five days a week. No Autistic program existed at this district and there is one now because I took them to court and filed a complaint. I do feel good that I not just helped my son but have helped all children with Autism in implementing a program that previously never existed at this district.
Districts are not going to come right out and say because of the transportation or because of tuition we are not going to provide this program. They will just say they feel an out of district program would not be an appropriate program for this child. Trust me, Bernardsville has a lot more money then the town where I live.
Subject: [Care-to-ShareSupportNetwork] Re: Lawyer, Advocates and Parents OH My!
I should have mentioned that, we have a family whose child attends a great program in Bernardsville public school.
Gail you keep mentioning transportation cost in your emails. Our district has never had an issue with transportation. Does your district use "Transportation" as a reason that a child cannot go to a certain placement? I've never heard of a district using that as an "out" for not sending a child to an appropriate placement.
My district would gladly send my children to the moon and back on a space shuttle if they thought the placement was appropriate, LOL!!!