Hi all,

My son is 2.5 and he can frame sentence eg., Monkey eating bananna,etc,
but his articulation is really poor. He tends to speak too fast
(without break between words) that no one except me or my wife can
understand what he is saying.
Has anybody had similar situation and could you please share what
helped in terms of therapy and supplements.

Thanks,
Satish.

HI,

I have a 8 year old son with Aspergers who was denied
eligibility to special education three times.  Fourth
time was the charm.  We still struggle with the CST in
seeing eye to eye about what his needs are.  So, I've
been there.  Being polite and professional in meetings
is the way to go, and being the squeaky wheel that
does not go away is also the way to go.

I would recommend you educate yourself on the law
(wrightslaw.com is an excellent start) and continue up
the chain in your child's district special services
department until someone gives you a clear explanation
as to why when some particular thing is the law they
are not following the law.  (Like making you provide
transportation for ESY.)  Ask a very direct question,
citing the law if you can.

We did consult with a lawyer at one point.  Her name
was Greenwald.  Their web site was
http://www.special-ed-law.com/
We got good advice from her.

Best wishes, and feel free to mail me privately
(reillye@...) if I can be of help.

Eileen
--- adc1620 <adc1620@...> wrote:

> Hi,
>
> I'm hoping someone might be able to recommend a
> lawyer and/or
> advocate to me. My son is 6 and has been in the
> system since he
> started early intervention at 9 months old. He does
> not have a clear
> cut diagnosis. Dr. Mars has suggested he may have
> Aspergers, but he
> can be so very typical at times that it's not
> obvious and there in is
> our problem. My son is quite and well behaved. I'm
> finding that
> without behavioural issues, it's difficult to get
> attention.
>
> We have been stream rolled and ignored since
> entering the public
> school system at 3.I have been in touch with SPANN
> and they have
> indicated that his rights are being violated and his
> right to a FAE
> impeded. He will start 1st grade in the fall but his
> fine motor
> skills are approximately those os 2.5 year old. The
> school admits
> that he needs OT over the summer but said he doesn't
> qualify for ESY,
> but they will offer him OT over the summer for 30
> minutes one time a
> week (his IEP call for 2) if my husband and I
> provide transportation.
> (SPANN says that if you qualify for ESY for any
> reason then the whole
> IEP must be filled and transportation provided.)
>
> I have written letters, provided doctors reports and
> called meeting
> after meeting, trying to remain calm and reasonable
> but to no avail.
> We recently took him to a developmental pediatrician
> in Manhattan for
> yet another opinion. She has suggested that legal
> counsel is need at
> this point in order to get a FAE my son (who is in
> the general ed
> class with a shared aide and pull out for services.
>
> I appreciate any advice anyone can offer.
>
>

Hi,

I'm hoping someone might be able to recommend a lawyer and/or
advocate to me. My son is 6 and has been in the system since he
started early intervention at 9 months old. He does not have a clear
cut diagnosis. Dr. Mars has suggested he may have Aspergers, but he
can be so very typical at times that it's not obvious and there in is
our problem. My son is quite and well behaved. I'm finding that
without behavioural issues, it's difficult to get attention.

We have been stream rolled and ignored since entering the public
school system at 3.I have been in touch with SPANN and they have
indicated that his rights are being violated and his right to a FAE
impeded. He will start 1st grade in the fall but his fine motor
skills are approximately those os 2.5 year old. The school admits
that he needs OT over the summer but said he doesn't qualify for ESY,
but they will offer him OT over the summer for 30 minutes one time a
week (his IEP call for 2) if my husband and I provide transportation.
(SPANN says that if you qualify for ESY for any reason then the whole
IEP must be filled and transportation provided.)

I have written letters, provided doctors reports and called meeting
after meeting, trying to remain calm and reasonable but to no avail.
We recently took him to a developmental pediatrician in Manhattan for
yet another opinion. She has suggested that legal counsel is need at
this point in order to get a FAE my son (who is in the general ed
class with a shared aide and pull out for services.

I appreciate any advice anyone can offer.

This is a great for parents to use for special needs children
especially if they are non verbal.

http://www.mycentraljersey.com/apps/pbcs.dll/article?
AID=/20080625/NEWS/80625013

Just wanted to update the group that I have available openings for
therapy and consultation for occupational therapy services in your
home.  For more information go to: www.Eponatherapyservices.com

Openings available for weeks in July at Somerset Hills Handicapped
Riding Center.  We provide an integrated summer camp for children with
and without disabilities.  Summer camp provides a chance to learn
horseback riding skills in a safe and supportive environment, while
having fun with traditional camp activities, such as crafts and outdoor
games.  See brochure in files section or contact Kathy Brennan at 908
439 9636 or email SHHRCPD@...

www.spectrumcenter.com
 
The Tomatis Method involves 60 hours of therapeutic listening over a period of 2-3 months. Typically,  you will visit us  10 days in a row for two hours a day and listen to music filtered through the Tomatis Electronic Ear.  At the same time we do other Sensory and Vestibular Integrative activities, one on one, with your child. Then you wait a month. Then you come back for ten more days.  Finally, you  wait another month and return a final time for 10 days. Cost: about $7000. After that, you may find a booster loop useful about once a year for an additional cost.

 
If anyone is interested she is ready to come and do it in New Jersey. She just needs a group of 6 kids.
We are looking for setting this up in piscataway/edison area.
We have not set up the time period.
If interested email me at nkewal@...
 
We already have 2 kids.We need 4 more for her to come to edison/piscataway area.
 
Regards,
Neelam

Glad it was sort of over but upset that at a recent Special Ed meeting
the director mislead many parents by stating that the difference
between mediation and due process is that you have to hire an
attorney.  I corrected her stating that anyone can defend themselves in
court which she dismissed.  So many families here in Piscataway are
just not involved and I guess they just sign the IEP.

Summer school just started and our son had a new bus, new bus driver,
new aids, new therapists and new teacher.  He did real well because we
prepped him - how did it go for any of you with ESY?

April

Hello - We just had to share that we recently resolved our conflict
with our school district with regard to services.  Our recent IEP
meeting lasted from 1-4:20 pm and I was prepared to stay over night to
work out the correct goals and reveiw progress reports as well as
demonstrate a need for greater services.  We lucked out with a free
advocate from DDD who works for the Cerebral Palsy of NJ but did know a
great deal about Autism and speech evaluation results.  I hope to have
a successful year with our son heading to Kindergarten that is self
contained.

The Wrightslaw course that some wonderful soul passed on this loop was
very helpful in our reviewing the re-evaluation process and two of us
Moms went and got what we needed and what was appropriate for our
kids.  Thanks to Jennifer Brown for getting that together (and for her
company next to me at the table).

Warm regards - April Larsen

My pediatric group does stock them individually, so
ask your doctor's office if they do that.  I did split
all vaccines for my daughter.  What made them happiest
about it was that I presented them a type written
schedule that I was going to follow.  This made their
life a lot easier.  We could all make sure she was
getting what she was supposed to get.  No one had to
remember.

(another) Eileen

--- Eileen Kisly <eskisly@...> wrote:

> Hi all,
>  In response to Tina's question regarding
> vaccinations. My pediatrician recommended to give
> Measles Mumps and Rubella separately. Giving just
> one vaccination one month a part. She told me they
> do this in Europe (and though not proven true) they
> have a very low Autism rate. I did this with my
> younger son due to my older son having Asberger like
> tendencies and having the combination vaccination.
> Doctors usually dont stock individual vaccinations
> so you have to purchase them through a regular
> pharmacy who also don't stock them.  So I had to go
> to a Natural pharmacy. Your pediatrician should be
> able to tell you who carries them.  Ifs a bit of
> hassle going to the doctors 3 times, but it seems
> like Im always there anyway.  I hope this helps.
>
>
>
>
>
>

Hi all,
  In response to Tina's question regarding vaccinations. My pediatrician
recommended to give Measles Mumps and Rubella separately. Giving just one
vaccination one month a part. She told me they do this in Europe (and though not
proven true) they have a very low Autism rate. I did this with my younger son
due to my older son having Asberger like tendencies and having the combination
vaccination. Doctors usually dont stock individual vaccinations so you have to
purchase them through a regular pharmacy who also don't stock them.  So I had to
go to a Natural pharmacy. Your pediatrician should be able to tell you who
carries them.  Ifs a bit of hassle going to the doctors 3 times, but it seems
like Im always there anyway.  I hope this helps.

Hi,
If you have any doubts, skip the shots until you can thoroughly
research.
A good book that goes through each vaccine and explains the pros and
cons is the Stephanie Cave book "What Your Doctor May Not Tell You
About Children's Vaccines".
Is your child in daycare, or at home? If he's at home, no need to rush
the shots. Take your time, and do the research.
-Hilary
>
> Hello all,
> Tomorrow my son is going for his 2 year check up. He was diagnosed
> with mild PDD last November and he has been on EI ever since. He is
> doing great. The neuro-dev-ped saw him again in April and she even
> said it could just be language delay at this point because he has
> improved very much. Based on this, I am very nervous about the
> vaccines he is due at 2 yrs. I didn't even take him for his 18 months
> check up, let alone he had the vaccines he was due then. SOoo, he is
> missing those too. I am afraid of regression if I do give them some
> vaccines at this point. Does any body have a suggestion? Tracey, has
> given me some ideas based on her experience but I was wondering if
> somebody else has ther experiences that I can learn from. Thanks in
> advance!!
>

Hello all,
Tomorrow my son is going for his 2 year check up. He was diagnosed
with mild PDD last November and he has been on EI ever since. He is
doing great. The neuro-dev-ped saw him again in April and she even
said it could just be language delay at this point because he has
improved very much. Based on this, I am very nervous about the
vaccines he is due at 2 yrs. I didn't even take him for his 18 months
check up, let alone he had the vaccines he was due then. SOoo, he is
missing those too. I am afraid of regression if I do give them some
vaccines at this point. Does any body have a suggestion? Tracey, has
given me some ideas based on her experience but I was wondering if
somebody else has ther experiences that I can learn from. Thanks in
advance!!

Have any of you tried Cranio sacral or Bioset therapy ? Did you see any
gains ? Any reference for a proivder around the Edison,NJ area.

Thanks,
Satish.