Hi My name is ingrid i have CED, I live in santiago chile and my English is very little.:) I looking for more people with the syndrome, the communication will...
Hello, my name is Shauna and i live in New Mexico..I am 29 years old and i was diagnosed with this disease at the age of 4..I have felt like i have been living...
Hello Shauna, My name is Blaise, I'm 47 years old and also have Camurati Engelmann's disease. I onset with it at age 19. It has completely changed my life. I...