CMTUS shares resources, positive living strategies, practical suggestions, and new treatment paradigms for Charcot Marie Tooth syndrome (CMT), the most common inherited neuromuscular disorder, globally affecting over 6 million people of all ages. It is also known as Hereditary Motor Sensory Neuropathy (HMSN).
The butterfly is our symbol of HOPE and we believe that C.M.T. means "Can Manage This"! CMT can cause slow degeneration of the nerves in the extremities, thus muscles atrophy due to the loss of stimulation by affected nerves. CMT symptoms are diverse and present in many different ways due to each individual's genetic code.
Unique to CMTUS is our experiental sharing; "this is what works for me"; all in an upbeat and positive light. CMTUS members develop a positive quality of life, provide affirmation, encouragement, inspiration,
HOPE, empowerment, and practical suggestions. We share information gathered from the medical community but
MOST IMPORTANTLY we share personal discoveries and insights that we've gained from living with CMT. We're here to learn all about the complex, idiosyncratic nature of CMT. Of utmost importance to our mission is
PROVIDING DIVERSIFIED, ENGAGING, OPEN ACCESS RESEARCH NEWS to members. This includes, regenerative and nanomedicine, advances in disorder arrestment, prolotherapy, nerve growth factors, gene silencing, Curcumin and Citicoline supplements, Myostatin, C-Jun nerve repair, microRNAs, progesterone discoveries, Ruboxistaurim use, heat shock protein mutations, FK506 early muscle recovery, Ascorbic Acid(Vitamin C), Innurex and Hedgehog Protein, Dynamin research and neuro-regenerative peptides. New dimensions in pain therapies, health and exercise studies are posted as are important articles on disabilities, SSDI and SSI.
Help arrest CMT and back CMTUS by buying a sheet of our USPS-approved letter stamp.