| Name |
Creator |
 CMT Info Sites
Technical data, genetics etc
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Members home pages
Have a homepage? add it here
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Work Issues
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"Hidden Disability" website
for those of us that may have CMT but don't appear disabled to anyone else - a good (but pretty basic) site
http://www.hi2u.org/frame22.htm |
gnome1999
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* The Creatine Kinase Test (Info)
Almost everyone with a neuromuscular disorder has had, or will have, a creatine kinase test. But what exactly is creatine kinase (CK), and why are its levels measured in neuromuscular diseases? Find out Here.
http://www.mdausa.org/publications/Quest/q71ss-cktest.html |
gnome1999
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Advances in Clinical Neuroscience and Rehabilitation
An excellent online magazine (lots of PDF pages) good article on foot drop....
http://www.acnr.co.uk/index.shtml |
gnome1999
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All I can saw is Wow
A CMT guy that hikes - BIG time
http://www.martinmccorkle.com/ |
gnome1999
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BBC's Disabilities website
A nice site for anyone with anything....
http://www.bbc.co.uk/ouch/ |
gnome1999
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Beautiful Silver Rings that are also splints!
The hand is a marvelous tool that performs both subtle, delicate movements and powerful sustained, or repetitive work. While plastic splints were fine for treating short-term trauma, no one would willingly use this cumbersome and embarrassing solution for the remainder of their lifetime. Whether they need finger stability for hand-intensive work or merely for everyday tasks like cooking and holding a pencil, thousands of people have made SIRIS™ Splints a valued part of their everyday lives.
http://www.silverringsplint.com/ |
gnome1999
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Benefits Now Shop
Buy stuff to assist in daily living - wide range of products
http://www.benefitsnowshop.co.uk/index.htm |
gnome1999
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Blue Badge Scheme
details of the disabled parking badge, how to use it and when not to. (pdf file you will need adobe acrobat to read this file)
http://www.dft.gov.uk/stellent/groups/dft_mobility/documents/page/dft_mobility_507582.pdf |
gnome1999
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But you don't look sick
Where the story of the spoons originated, apologies to Christine - I didn't know where it was from when I amended it for the CMT group
http://www.butyoudontlooksick.com/ |
gnome1999
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CMT NEWS
This site is from Canada Nth America is an excelent site full of helpfull information regarding almost evrything on CMT matters from diagnosis to Drugs and even splints and physio
http://www.lindacrabtree.com/cmtnews/index.html |
invada1
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CMTUS
"Can Manage This" is the motto of this positive and upbeat global portal for experiential sharing of multi-faceted CMT. Research news posted quickly and often, many contacts and professionals helping with awareness and fundraising to bring HOPE for CMT - Be aware this list is set to APPROVE all messages before posting. free speach may not be encouraged.
http://cmtushope.info |
gnome1999
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Disabled Living Foundation
Some useful factsheets to help you choose equipment, get grants etc
http://www.dlf.org.uk/factsheets/ |
gnome1999
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Easier Living
Ideas for help around the home, scissors, gardening tools, can openers, ring pull openers etc
http://www.ricability.org.uk/reports/report-household/easierliving/aboutthisguide.htm |
gnome1999
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GP Info
http://www.gpnotebook.co.uk/cache/-1241120765.htm |
gnome1999
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Hey Rebate
The Best Deals, Coupons, and Freebies Everyday!
http://heyrebate.com/ |
alisasmith80
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Info for OT's
http://www.otdirect.co.uk/cmt.html |
gnome1999
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Magic 8 Ball
Need an answer to a burning question - ask the magic eight ball
http://www.mattelgames.com/magic8/flash_index.asp |
gnome1999
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Medical Alert
These drugs are toxic to the peripheral nervous system and can be harmful to the CMT patient.
http://www.charcot-marie-tooth.org/site/content/medical_alert.asp |
gnome1999
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Nerve Pain
It exists! And here you can read all about it.
http://www.spine-health.com/topics/cd/neuropain/neuropain03.html |
gnome1999
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Neuropathic Pain (Nerve Pain)
Article from 'Prescriber'
http://www.escriber.com/Prescriber/Supplements.asp?Action=View&Archive=True&ID=8 |
gnome1999
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Splints to buy
another UK splinting and AFO company - nice clear pictures and prices online
http://www.aclassmedicare.com/index.htm |
gnome1999
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Splints to buy
all manner of splints! some to buy some only through your health care professional! - finger straighteners, ankle supports, wrist braces etc etc
http://www.medistox.net/ |
gnome1999
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The Frog Pond
Site for kids, teens and adults with chronic illnesses
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/ |
gnome1999
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Wessex CMT Group
http://www.hants.gov.uk/istcclr/cch06356.html |
gnome1999
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online gambling
online gambling sites
http://www.chipsncoins.com/ |
freebiesonli...
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stress relief
professional articles about managing stress
http://outofstress.blogspot.com |
disease_cure...
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