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Erin I think when you said we just get used to it we don't notice and not
being able to feel things 'normally' sums it up. Oh well with blue mottled hands,...
Kay, Go to the CMT-Supportgroups site at yahoo and to the Art Gallery there. There is a "self portrait" of my feet. It was sketched sometime around 1982....
Karl, Just title the post: NOT CMT...AND SEND IT... A lot of stuff talked about on list is not CMT...We're free here...I'd love to here it....Unless you did...
... either of ... thought I ... Tina, It's Jim and I am seriously considering going. I must confirm that I don't work that weekend or can get it off. We are...
Cool! Bradford is somewhere in Pennsylvania! The more the merrier....I gotta say thanks again for those planning this! Ya'll rock! Shannon On Sat, 01 Jun 2002...
Hi Jim, we want you to come just as badly as it sounds like you want to join us! Seriously, it will be so much fun for all of us! I will pray that you are able...
Me too Shannon! Thanks, Say a special prayer just for me until I know for sure! Keep Boinging little Sis! Take Care, Love Ya, Tina! :-) ... From: Shannon...
Hi, my Son and I with CMT both take Claritin, it seems to work great for us. We both have Asthma. Taylor has hayfever which triggers his, and I am allergic to...
You ought to see my husbands tatoos, he has a whole civil war scene on his back and the man that done the tattoo is going next saturday to a tattoo fest with...
Yeah shannon I got to meet susie lemin and it was such a surprise, as i said she brought so much happiness in our time of sorrow and mom and I were so glad to...
Shannon I hope I get to meet you one day, you are so sweet and full of life keep boinging Love ya KAy ... From: Shannon Marzinski <butterflypower@...> ...
Anybody working a little and collecting disability? I've read you can collect a couple of hundred and till get your disability check.Is there anybody who...
Erin, I tried to send this before I left for school yesterday. Realized it was bounced when I got home today. You were in my thoughts. ... Good luck, Erin....
TODAY! MY DAD MADE! THE RESERVATION AT! THE BEST WESTERN! SORRY ABOUT ALL THE EXCLAMATION POINTS, BUT I AM SOOOO EXCITED!!!! IT'S FULL, IN STONE, WE WILL BE...
THAT IS SO COOL! That is so awesome, especially since you are distant family! That rocks! God blessed you in that way and May He continue to! Love Shannon On...
Thanks Kay....You are WAY too sweet! I really hope to be able to meet you someday too! And if worst comes to worst, heaven will be where we meet and BOING! ...
I will be praying! Know that this is in God's hands and I'm thinking of you! And may you keep BOINGING too! Love ya lots, Tina, and remember you make a big...
Guys, maybe you noticed I haven't sent you a lotta poetry lately...But here's some that I thought you might like...I've been FINE TUNING them and I thought you...
Excerpt from "The Golden Corn" by Karl Belden Once more, he knelt on the cold hard concrete to clean from the wall the debris that had accumulated there. What...
Too cool Kay! I would love to see that! I started a whole back. But ran out of money, so only about 2/3 of my back & one hip is done. It still looks pretty...
There are currently abvout 15 members who have emails "bouncing" due to the fact that their mailbox is full. When this happens either the member or a...
Kia Ora All , Firstly my belated condolences to both Kay and Patsy ,So sorry to hear the bad news but as everyone else has said at least they will not be...
Yeah! The photo board with info about other members would be cool! But I have no clue what's up with it! Just thought I'd say that! Shannon On Sun, 02 Jun 2002...
Thank you Lamar! Shannon ... ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM...
Shannon, Thank you for your poems. "I just have to remind myself of my most important stride," is a good one for me to remember too. Karl Also, to Rebecca...