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CMT-Support · CMT- Friends and Support

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751 CM aka Libby
charnicoma57@... Send Email
Oct 1, 2001
12:59 pm
We'll see... Once upon a time, there was a farmer in the central region of China. He didn't have a lot of money and, instead of a tractor, he used an old horse...
752 AMOUR49@... Send Email Oct 1, 2001
1:47 pm
My daughter was sleeping at LOT when she was a teen. People told me that was normal but she was sleeping almost 10 to 12 hours a day! And was tired during...
753 Alisha Peckham
fivertherabbit@... Send Email
Oct 1, 2001
4:41 pm
hey there, well my weekend wass interesting for sure, i met up with my friend sarah on friday, we watched a few movies (driven, someone like u and crocodile...
754 ktbugg54@... Send Email Oct 1, 2001
4:42 pm
In a message dated 9/30/2001 1:42:02 PM Eastern Daylight Time, ... Mary I too have had numerous sprains on my right foot, it was fused in 94. However, the most...
755 ktbugg54@... Send Email Oct 1, 2001
4:47 pm
In a message dated 9/30/2001 4:09:02 PM Eastern Daylight Time, ... Welcome to the group Holly. I'm Katie, I have a daughter the same age as yourself, also has...
756 ktbugg54@... Send Email Oct 1, 2001
4:55 pm
In a message dated 9/30/2001 11:50:46 PM Eastern Daylight Time, ... Hi Martha, I'm Katie and we are practically the same age. I'll be 48 in 3 months. As you...
757 KathleenLS@... Send Email Oct 1, 2001
9:55 pm
Out Of The Mouths Of Babes ... While I sat in the reception area of my doctor's office, a woman rolled an elderly man in a wheelchair into the room. As she...
758 Sue Horder-Mason
sue@... Send Email
Oct 1, 2001
10:04 pm
Wonderful Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer "I Thank God for my...
759 Ernie Z.
ezduzit@... Send Email
Oct 2, 2001
1:05 am
Hi Kathy, Ernie here.. You wrote: "He had symptoms back to early childhood. He struggled throughout his youth with being clumsy, embarrassment of his "chicken...
760 mrstl5ice@... Send Email Oct 2, 2001
1:43 am
Hi Ernie. Thanks so much for your reply. I get so much out of being on this list as well. Even though I do not have CMT, I live with it every day with my...
761 Lamar Stephenson
lls@... Send Email
Oct 2, 2001
2:34 am
Katie, Lamar here, Vioxx and Celebrex are both NSAIDS. See http://www.merck.com/product/usa/vioxx/hcp/prescribing_info/full_pi/clin_pha rm.html ... From:...
762 armando bravcamontes
bracamontes@... Send Email
Oct 2, 2001
4:24 am
To any of the smart people out there: Have tried and tried to remember what the technical name is for hyperextended knees (bending backwards). Anyone know...
763 Sue Horder-Mason
sue@... Send Email
Oct 2, 2001
6:27 am
Hi Cathy I have bone spurs in my upper back. They are little bits of bone that push into the spinal cord but apparently don't do any damage. My quack...
764 Buchie54@... Send Email Oct 2, 2001
11:40 am
Hi Mary! The technical term for hyper-extended knees is "genu recurvatum". I also might add that this is very serious problem if left untreated. The knees ...
765 Dr. Brad
rbthomas@... Send Email
Oct 2, 2001
2:15 pm
Good morning Ernie & Kathy, Brad here: I must tell you that I relate to everything you are discussing. I have CMT type 1B and I have had it since I was born....
766 writerroz@... Send Email Oct 2, 2001
4:02 pm
It is nine o'clock here and I wasn't going to go on but I thought maybe it would chear me up. I am off to buy a Bissell Go Vac at Sears which is like a ...
767 Ernie Z.
ezduzit@... Send Email
Oct 2, 2001
4:26 pm
Hi Kathy, Ernie here.. You wrote: "He had symptoms back to early childhood. He struggled throughout his youth with being clumsy, embarrassment of his "chicken...
768 Marshal Levine
MSLevine@... Send Email
Oct 2, 2001
4:30 pm
Hello. I have been a "lurker" but thought I could add a bit. I have had extremely painful calluses on the ball of my foot which became repeatedly infected...
769 April
aprileyer@... Send Email
Oct 2, 2001
6:59 pm
I have not been able to post on here pretty much since I joined. I do r ead the posts though, and have enjoyed everyones input. I just found out yesterday...
770 writerroz@... Send Email Oct 2, 2001
7:38 pm
just to reasssure you before you get more precise info...mosstof us have gone under general anesthesia of one kind or another I think without any ill affects....
771 Lamar Stephenson
lls@... Send Email
Oct 2, 2001
8:15 pm
April, Lamar here, First talk with the anesthesiologist and make sure he is aware of your CMT. You might want to Print out the following and share with him....
772 KathleenLS@... Send Email Oct 2, 2001
8:21 pm
In a message dated 10/2/01 12:03:26 PM, aprileyer@... writes: << Anyways, it requires that I go under general anesthesia. >> You can send an email to...
773 April
aprileyer@... Send Email
Oct 2, 2001
9:46 pm
Thank you all for responding so quickly. I have e-mailed linda crabtree and will make sure to notify the anesthesiologist about what to do. I have already...
774 KathleenLS@... Send Email Oct 2, 2001
10:13 pm
I forgot that Lamar has a concise synopsis regarding anesthesia, which he sent already. It is a terrific guide. Regards, Kat...
775 writerroz@... Send Email Oct 2, 2001
11:09 pm
I send my mail to myCMT group now because I don't remember who might haave asked a question so forgive me. Anyway, Dr. Martha spoke about Mary Janes' by Ecco....
776 cat926@... Send Email Oct 3, 2001
12:03 am
LOL!!! Gee Sue we both have so much in common.....The spurs and quack Drs.!!! I have a couple of them and I do keep listening to them.....even though sometimes...
777 H. Mat.
hm1103@... Send Email
Oct 3, 2001
2:14 am
... April, Helen here. When I had anesthesia a couple of years ago, my legs and arms were moved and massaged every twenty minutes. My biggest concern was...
778 Martha Head
marthahead@... Send Email
Oct 3, 2001
3:32 am
@home Content-type: text/plain; charset="US-ASCII" Content-transfer-encoding: 7bit ... Hello April, I too have read that CMT can affect general anesthesia, but...
779 Martha Head
marthahead@... Send Email
Oct 3, 2001
3:40 am
@home Content-type: text/plain; charset="US-ASCII" Content-transfer-encoding: 7bit ... Hey Roz - I am so proud of you and your shopping day! You go, Girl!!...
780 armando bravcamontes
bracamontes@... Send Email
Oct 3, 2001
4:00 am
Thank you, Betty for your reply. I will have to write it down several times to remember it! I will take it up with my Doctor on my next visit. My Dad has...
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