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Messages 69629 - 69660 of 69801   Oldest  |  < Older  |  Newer >  |  Newest
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69629 CMT-Support@yahoogrou... Send Email Feb 1, 2012
10:58 am
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
69630 sal2491 Offline Send Email Feb 2, 2012
12:21 am
When you say your knees buckle are they hyper extending (going backwards) or are they buckling forward. Hope I said that right. Thanks. Sal...
69631 sherry37919 Offline Send Email Feb 4, 2012
8:39 pm
Sal, not sure who you are addressing this message to. When I use the term "knees buckling" I am referring to my legs collapsing as my knees buckle forward, not...
69632 sal2491 Offline Send Email Feb 5, 2012
12:16 am
Thank you for your post. Sal...
69633 Chantal B.T.
canadian_aqu... Offline Send Email 		Feb 5, 2012
5:39 pm
hi,   i have the same issue, my knees let go on m, they go forward, i fall often right hatd on my knees then to the floor as my knees pull mee forward..   ...
69634 Geri Melton
gerimelton Offline Send Email 		Feb 6, 2012
4:27 pm
Well, my hands have really started going crazy!! I just lose coordination for periods of time (especially when typing, etc.), can't even open a bag of chips...
69635 Chantal B.T.
canadian_aqu... Offline Send Email 		Feb 7, 2012
2:13 pm
hi, geri   i understand,when i was little my finger next to the pinky on my right hand was down the other were normal, my k=doctor tease me was telling me it...
69636 Geri Melton
gerimelton Offline Send Email 		Feb 7, 2012
3:32 pm
So sorry Chantal. This whole "journey" is frightening because one never knows what is awaiting us around the bend. Just really feeling yucky today. The ends...
69637 fr3nc7 Offline Send Email Feb 8, 2012
4:28 pm
Hello ,or good morning ! I have just known my gene NEFL GLU90LYS CMT2E . Know if you have members who have the same CMT2E ?. Have you got documents of the...
69638 Nicole
nikasmomma2001 Offline Send Email 		Feb 9, 2012
3:17 pm
Time to share events for 2012. I have compiled a list of events on my blog, but I'm looking for more. I have the CMT Association Chuck E. Cheese fundraiser...
69639 Karen Smith
ksmith6957 Offline Send Email 		Feb 9, 2012
3:17 pm
Yes. Sent from Karen's iPhone. ... [Non-text portions of this message have been removed]...
69640 summer keenan
pmoments81 Offline Send Email 		Feb 9, 2012
3:17 pm
Geri,  Glad you finally found a doctor that actually listened to you. I get so sick of doctors who think they know me better than I do. ...
69641 sal2491 Offline Send Email Feb 9, 2012
7:20 pm
B6 is the bad one if taken in large amounts. Sal...
69642 sherry37919 Offline Send Email Feb 11, 2012
12:56 am
While at the hair salon today, waiting for my hair dye to take hold, I picked up the latest issue of More Magazine. This is what I found: ...
69643 Daniel
danielinpgh Offline Send Email 		Feb 11, 2012
10:18 pm
Hello, I have a "paling" of my optic nerve in my right eye that makes me not see well out of it. I tested negative for Lieber's Optic Neuropathy. I also have...
69644 Angela
tlcforcmt Offline Send Email 		Feb 11, 2012
10:25 pm
Hi Daniel,   Yes, optic neuropathy is possible with CMT, though it could be other things as well.   Here are a few subtypes where this has been identified: ...
69645 susanmoore46@...
susanmoore4646 Offline Send Email 		Feb 11, 2012
10:45 pm
What a well written article about a gal who is a role model for all CMTers, but also for anyone with any kind of health issues. I salute you, Allison Moore. ...
69646 Lana Jarvis
fyfer1949 Offline Send Email 		Feb 12, 2012
8:21 am
I read somewhere that retinal nerve problems are more related to CMT2.  Sal might know more about that. lj ________________________________ From: Daniel...
69647 sal2491 Offline Send Email Feb 12, 2012
9:44 pm
Hi Lana, Sorry I really don't. Perhaps others do. Sal...
69650 Gwen Thrower
gwen.thrower Offline Send Email 		Feb 16, 2012
5:16 pm
IS job offer a scam since they want us to pay $97.00 to get started Gwen ... From: morobin69@... To: bboston3@... ; memabonnie@... ;...
69651 bobart45 Offline Send Email Feb 16, 2012
5:31 pm
Of course! Sent from my iPad ... [Non-text portions of this message have been removed]...
69652 Becky@CountryLakeBloo...
countrylakeb... Offline Send Email 		Feb 16, 2012
6:18 pm
Hum.......thought I deleted that post yesterday and banned that person.   ~>Becky M.    ~Bloodhounds ~R~ Beautiful~ http://www.countrylakebloodhounds.com ...
69653 paulfranco89 Offline Send Email Feb 16, 2012
11:30 pm
Hi everyone, I have posted here once or twice before, and I am back due to being at my wit's end with my general physician, urologist, and neurologist. I am 22...
69654 Hey you
becauseimlik... Offline Send Email 		Feb 17, 2012
1:53 am
I thought I would post on here, I am starting a support group in the Parkersburg/Vienna West Virginia area through the CMTA. I'm excited to meet others in the...
69655 Jennifer Race
jenn_race Offline Send Email 		Feb 17, 2012
4:59 am
Paul: I know we have had a related discussion here in the past about CMT possibly affecting women by decreasing the feeling during sex.  My CMT causes me to...
69656 Angela
tlcforcmt Offline Send Email 		Feb 18, 2012
4:56 am
Hi Paul,   Peripheral neuropathy can cause ED issues.  Here's a study from Dec 2011 that shows a connection.  I didn't see where they spoke of treatment...
69657 Daniel
danielinpgh Offline Send Email 		Feb 18, 2012
8:43 pm
Thanks Angela, That is helpful but confusing. There are so many different genes the could be involved especially considering the mitochondrial ones. The one...
69658 Angela
tlcforcmt Offline Send Email 		Feb 20, 2012
1:18 am
Hi Daniel,   Yes, it is confusing to sort through all the subtypes.  So sorry you've had such a difficult time trying to get a good answer. If you haven't...
69659 Geri Melton
gerimelton Offline Send Email 		Feb 20, 2012
3:06 pm
Had my neuro appt on Friday and been pretty upset. He looked me right in the eyes and said "you need to start making some plans because, you do know you...
69660 sal2491 Offline Send Email Feb 20, 2012
7:35 pm
Hi Geri, I am sorry to hear all of this. I cannot remember if you wear AFO's or not. Why does the doctor figure that you are going to be in a wheel chair...
Messages 69629 - 69660 of 69801   Oldest  |  < Older  |  Newer >  |  Newest
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